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joanie55

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Posts posted by joanie55

    Dana Reeve, alive and SINGING

    in GENERAL

    Posted

    Wow! I love Dana Reeves and so glad you got to enjoy such a special night at the Garden. Glad she's looking good and especially that they mentioned Lung Cancer. I'm not especially a sports fan, but do know that being at the Garden is great. Happy for you.

    Joan

    getting nervous again

    in NSCLC GROUP

    Posted

    We're all here for you, every step. If I got throught this stuff, I know you can too and believe me, there is light at the end of the tunnel. I'm just at the point that my hair is starting to look almost cute. Go get em.

    Joan

    Dad had first Oncology Visit Today

    in NSCLC GROUP

    Posted

    So glad you're feeling so much better about the whole situation. Having a good doctor really helps. I also opted to go directly to chemo instead of having the radiation that was originally presented to me because I had no pain and I wanted to go right after the whole thing as soon as possible. Radiation will always be an option.

    Good luck.

    Joan

    Pain management and nutrition question

    in NSCLC GROUP

    Posted

    Hi Dave,

    So sorry to hear the pain your mom is in. Is she being seen in one of the larger NY hospitals? They all have "special pain management" doctors there, that hopefully should be able to help her. As far as the shoulder pain, I've been suffering with lots of shoulder pain lately, including feet and finger pain. The doctors finally concluded that it is neuropathy, caused by the chemo. They just gave me a prescription for it. I'll know in about 2 weeks if it works. I believe its caused by nerve damage.

    As far as the sugar/no sugar controversy, my doctors and a cancer nutritionist I saw felt there was no conclusive evidence regarding eliminating sugar. I think whatever makes the patient feel better is the way to go. (my opinion)

    Wishing you both the very best.

    Joan

    Didn't start chemo today after all

    in GENERAL

    Posted

    Hi Leslie & Mark,

    I hate to hear how you're feeling right now. But I know you'll be better than ever before too long. Taking a break is a good thing and it'll be nice hearing from you more. Just take care and feel better real soon.

    Joan

    P.S. Mark, welcome :D

    Good Afternoon

    in INTRODUCE YOURSELF!

    Posted

    Thank you Bonnie and I'm sorry to hear about your mother. Yes, this is an evil, horrible disease. Glad you came to this site though, because even though I'm fairly new, I'm absolutely amazed at the caring and support I've encountered here.

    Hopefully we can help you get through this difficult time.

    Joan

    joint pain??

    in NSCLC GROUP

    Posted

    Thanks for the tip. What is Celebrex actually used for? I finally found out, actually figured out, that what I have is neuropathy (from the chemo). It still is nerve wracking when your whole body hurts and the doctor says everything is looking good.

    Going to run a 10k race in May

    in HOPE

    Posted

    I am very impressed! That's so great! My husband keeps telling me to exercise, walk, run, anything. He is totally convinced that's the way to beat this thing.

    Joan

    P.S. you made me decide to go out and walk today. Best wishes on scans.

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