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joanie55

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Posts posted by joanie55

    No news is good news????

    in SCLC GROUP

    Posted

    I'm also sitting here waiting for my scan results. My doctor has a rule that no matter what the results, he wants to tell me in person. This way I'll never get upset if he didn't call and if it wasn't good news he wants to tell me in person.

    You need to ask your doc how he handles it. I certainly hope you're right and the news is good.

    Best wishes.

    Joan

    question about chemo and alcohol

    in GENERAL

    Posted

    Hi Maryann,

    One of the first questions I asked my doctor was if I could still have a drink or wine? He said absolutely yes, but for every glass of whatever, I should drink a glass of water. Liquor tends to dehydrate you, so just keep your water glass full.

    Joan

    ?Off Tarceva/1st Alimta Thurs/ in alot of pain today/ UPDATE

    in NSCLC GROUP

    Posted

    I've been on oxycontin and oxycodone since i was first dx. One for long acting pain control and the other for breakthrough pain, which I don't take, fortunately.

    When I had progression on my hip and spine I had radiation done which helped tremendously. I did have a slight worsening of the pain before It felt better, but i believe that's how radiation works. It also kept getting better and better over time. I didn't have that with he chemo since I was already on the oxycontin for the pain.

    Joan

    Hello out there

    in INTRODUCE YOURSELF!

    Posted

    Hi Cheryl,

    I'm also a stage IV survivor of just about 18 months now. When I was diagnosed, my cancer had spread to my sacrum and hip. I've had an amazing ride that I plan to continue. I feel like I'm fighting a chronic disease. I Plan to live a long time and this lung cancer just has to be managed. I'm not expecting a cure, although that would be wonderful, but containment for me would be just as good.

    Remember, this is NOT a death sentence. But you do have to work it!

    Wishing you and your husband the best. I too am available if your husband has any questions at all.

    Joan

    Joels doctor visit results

    in MEMBER UPDATES

    Posted

    Maryann,

    Hoping this all goes smoothly for Joel. I did not have Taxotare, but did have the decadron before and after my chemo treatments. My experience was really good. The decadron made me feel like I was well. In fact, the first day after my treatment I always cleaned my house. It was after it wore off that I felt the chemo effects.

    Hope it effects Joel that way.

    Sending prayers.

    Joan

    My baby is married!! UPDATED with PICS

    in HOPE

    Posted

    Well, my daughter Dana got married yesterday at a georgous twilight ceremony. I have to say that this was one of the best days of my life. She looked absolutely georgous and so, so happy. I danced until my legs went numb. Don't know if it was the dancing or the martinis.

    Anyway, the fact that I was there made every treatment , and every ache and every pain worthwhile, and anyone who ever asks if its worth it should speak to me.

    She's in Hawaii now on a very overdue vacation and honeymoon (this year hasn't been easy on her).

    My focus now is to be around as a grandma to her children. She wants a lot, so I have to rest up and gear up for that. Can't wait.

    Joan

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    My mother Diane

    in INTRODUCE YOURSELF!

    Posted

    Sarah,

    I'm so sorry to hear about your mom, but would like to say to you not to give up hope. I'm glad your mom wants to fight and is having chemo.

    I was diagnosed almost 18 months ago with Stage IV and thankfully will get to see my daughter married this weekend.

    I feel that where there is life, there is hope.

    Joan

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