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joanie55

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Posts posted by joanie55

    Where were you 9/11/01?

    in LC SURVIVORS

    Posted

    I was at work in my office in New York City. Someone said that a plane had flown into the twin towers. I immediately thought of the time a plane hit the empire state building. I ran into our reception area where there was a TV. I sat there mesmorized as the second plane hit tower 2. At that moment I knew it was terrorists.

    By then there were very few working phones, but I needed to find one because my very good friend had just opened her office at the world trade center. I was able to reach her, thankfully, at home. She was running late.

    I made my way uptown to my son's apartment, watching the dust covered people arriving from downtown. In shock, some crying. Lots of people were crying and huddled around cars with their radios blasting. It was like out of a movie.

    I stayed with my son for two days. That first night we could hardly sleep, as there were fighter planes circling the city. It was just crazy and scary. I've never seen the city like that and hopefully never will again. It was a ghost town the following day.

    I'll never ever forget that day, especially the sky. It was the most beautiful blue sky with the most awful mushroom of smoke.

    My husband lost his best friend from his early years, Harvey. He had been at our wedding. Many people I knew lost dozens of friends.

    Just incomprehensible, even 5 years later.

    Joan

    My Heart is Breaking

    in CAREGIVER RESOURCE CENTER

    Posted

    Hi Lisa,

    I'm so sorry to hear about your dad and unfortunately I can totally relate. I was also diagnosed with mets to my sacrum and spine.

    I have to say though that things have not been as bad as I imagined they would be. I really feel relatively well and am totally enjoying my life. In fact, I stopped working the day I received my diagnosis, so you can say, I'm now really able to smell the roses. I enjoy every day, rain, shine, whatever.

    Of course, I've had my days, but all in all, I can't complain.

    They do wonders today with pain management, so I wouldn't fixate on your dad being in pain. Hopefully it will be able to be controlled. There are great drugs out there that work.

    I don't know much about the Cancer Centers of America, but have heard good things. I do know that the major cancer centers are probably the most up to date with any new procedures or information. I myself go to one in New York.

    I wish you both the best and if there is any way I can be of help, please feel free to pm me. There are lots of great people on this site who are living well with very similar dx.

    Joan

    Exercise after surgery

    in INTRODUCE YOURSELF!

    Posted

    I just want to welcome you and wish you well. You sound like you have a great attitude and that will surely help you through this. Also being in such good physical shape should also help.

    Can't really help with the exercise question, but I'm sure others will.

    Joan

    Dehydration

    in HOPE

    Posted

    Don,

    You most certainly have all of my prayers for Lucie. She is my inspiration.

    I've also been hospitalized 4 times for dehydration and totally know how devestating it can be. In fact I was in the hospital just this Wednesday night. I now try to get in before it gets too bad so they can give me my fluids and send me home. The first two times I was there for between one and two days. Hopefully Lucie will respond quickly once she gets the fluids she needs.

    ((((hugs))))

    Joan

    Chemo question

    in GENERAL

    Posted

    I don't think it's anything to "worry" about, but I wouldn't wait and fret about it. I would call the doctor now, instead of waiting for your next appointment. That's what they are there for. My doctor always wants to know if I have any unusual symptoms at all.

    Joan

    am I just selfish?

    in CAREGIVER RESOURCE CENTER

    Posted

    AIMIE !!!!!!!

    I'M SOOOO happy for you. WHOOOOOOOOOOOO.

    Did you pick a date? I may be able to be a help as you know i'm also on the wedding merry-go-round. PM me.

    I'm also very glad Suki is doing well and of course, you and Dave.

    You left out one very important thing you've been working on. The Lung Cancer Walk for New York.

    Always glad to hear from you, but don't you worry. It's NOT "out of site, out of mind".

    Joan

    I NEED YOUR OPINIONS

    in GENERAL

    Posted

    Recently, I was deemed to be stable, after undergoing some radiation on my sacrum. Wonderful news, except now I sit, doing nothing. It's not like I don't have any cancer left, but it is stable at this time.

    My question is this. Should I be doing something (treatment, cyberknife, etc.) to be going after what is there, but not moving. My doctors opinion is that they do not treat stable mets. I have been stable for 16 months. I just sometimes feel like I'm a sitting duck, just waiting for something to happen. I'm sure this isn't uncommon. On the other hand, I'm so thankful to be stable that part of me says "just be happy and enjoy".

    I know I can go for a second, third opinion, etc., but I think I need to have it straight in my own mind firrst.

    Don, I think of Lucy and wonder if she's always been on treatment or if only when she needs to fight.

    I'd love to hear your thoughts.

    Joan

    Just had scans

    in MEMBER UPDATES

    Posted

    Hi Tracy,

    I know how hard this wait is. Try not to count the days, and before you know it you'll be there getting the results.

    I just want you to know that I'll be praying and wishing everything is working the way we want it to. I have a real good feeling.

    I just love your doctor. That's the way I always look at it. Plus, the new stuff that's being discovered every day.

    Joan

    New to this support community

    in INTRODUCE YOURSELF!

    Posted

    Hi Sis,

    I'd like to welcome you to our site. Yes, it is a wonderful place to stumble upon. Hopefully you'll find answers and more.

    I'm also a stage IV and hope to be for a very long time. Remember, every day there are new drugs being developed and we know more than ever before. Just try to help your sister stay positive. I know its hard, but as time goes on, she will hopefully feel better.

    Joan

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