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TJM

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Everything posted by TJM

  1. I have Large Cell Neoecrodin Non small cell lung cancer. It supposedly acts much more like SCLC than NSCLC and has the same first line treatment. So I tend to follow this forum the most. Had lower right lobe removed, Chemo (cis/etp) and adjunctive radiation. I should be NED.....will find out soon enough. As for depression, I just finished treatment last week and almost immediately went to a dark place for a solid three days. By far the most depressed since all this started in January. Yesterday was the first day I felt mentally better since last week. No idea why, just glad the cloud has passed. Wishing you all the best Peace Tom.
  2. DFK. Go Breavs! (Not sure if that is the school). If it is OSU and you haven't walked the campus in years I highly recommend that you take a stroll. Nicest campus in the Pac 12. Corvallis is the best town in the Pac 12. Avoid Eugene at all cost and NEVER wear green and yellow... 😎
  3. Yes I know the Chemo I will get -Cisplatin/Etoposide 4 cycles. Radiation is not a surething. Up to the tumor board but my oncologist didnt think there would be an issue. Would be daily but I dont know how many times. Guessing between 10 and 30. Basically standard treatment for small cell. Yes, I am getting a port put in next Tuesday. Yes can do radiation with port. You are correct that it takes some skill, luck and patience to get any specific information on Large cell but I think I am up to speed now. Have a couple specific questions for my oncologist appointment next week. And yes it is frustrating! And ask away. I too have become a cancer junkie. MRI this Friday to confirm no brain mets. Good luck with scan results Peace Tom
  4. To be more specific, I have read one article that implied tecentriq could work on any solid tumor including Large cell. But it was only one article (but less than a year old). I'll talk with the witch doctor next week... 😁
  5. From what I can find Large cell is not normally treated with immunotherapy and the have not done any checks o the tumor yet. I have read of two potentially effective ones tho and will talk with oncologist next week about them. Regardless..the first line of treatment I am getting seems standard and any immunotherapy would be a second line of treatment, so I have time. Thanks for the support and again I am hoping things get better. Tom Tom
  6. Wishing you the best. You are so much further down the journey than I so my advice is not worth much...but I am approaching the coming fight one day at a time, one treatment at a time, one symptom at a time. Hoping for good results and for one more treatment, one more time. Peace Tom
  7. I see that you are using Topamax for migraines. I have Cluster Headaches and for years verapamil worked then it didn't. Tried Lithium but side effects not worth it. So I'm all abortive now. Imetrix shots and Pred Taper. I have a good Neurologist in the sense she writes the scripts but not in the sense she understands the condition. I know Topomax has been used for Cluster headaches.

    If you migraines are "normal" please disregard. If they are cluster please respond back to me.

    Thanks in advance and wishing you and yours good health in 2020

    Tom

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