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Jenny G.

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Everything posted by Jenny G.

  1. I'm sorry you are having to go through this. It's good to know that your doctor is being thorough in ruling everything out. Remember that no matter what, there are treatments and we can only take this battle one step at a time. The waiting is the absolute worst and I am praying for good news for you. Jenny
  2. Thank you John for your always valuable information. I've just come back to this and although it is a lot to read and digest, you can browse and go to other sections of interest. Much better to read this now than later and bookmark for future reference. Could make a big difference in your survival.
  3. Hi Botley, Welcome to the group. I had a similar situation and started the radiation around my 3rd dose of chemo, but thought it should have been sooner and felt that I had to push for it. There may be good reason he wants to hold off, but I'd ask what it was. Depending on the health and tolerance of the patient, I always wanted the most agressive treatment available, but of course, we don't want to die from the treatment either. ALWAYS question until you feel comfortable with the answers. Chemo and rad at the same time can be tough. I was also hospitalized for 5 days due to an infection developed because of low white blood cell, but this can be combated with neulasta, which I was given after that. In her case, they might give it from the start. The neutropena can be life threatening. It sounds like things are going pretty well with the treatment, I wish you the best. Jenny[/b]
  4. Kristy, This sounds like a very good plan. I'm glad you found a doctor willing to fight with you and give you hope. It just makes sense to get the blood clots under control, try chemo to shrink the tumors, and proceed with the surgery if possible. I think it's good you got other opinions, but in the end, you have to go with what feels right for you. It's also really important to research on your own and learn as much as you can about what is being done and the options others are trying. I'm glad that you found this site. I wish you all the best. Jenny
  5. A good idea is to post like you have, that you would like to talk to people in your area from the group. That way if they are interested, they can contact you and exchange phone information. Private message is a good way to extend the board to a more personal level. Jenny
  6. Wish I could help. The only one I've been on is the neulasta and it did the job of keeping my white blood cell count up. If they are giving her steroids as they often do before chemo that could be the cause, but her doctor should be able to tell you what can have this effect. These are all really powerful drugs, but we can only hope they will do their job with the least amount of side effects and that if the side effects aren't tolerable they will find something to help with that too or change the treatment. I would just always be sure to mention anything to the doc. Hoping for the best for you. Jenny[/code]
  7. There is a national study going on now and I agree that is what he is probably referring to, but the point is being missed here. What about all those people who don't smoke, never smoked, or quit years ago, and even those that still do - it's the old "they deserve it" attitude and I know that a lot of us have accepted that too, but to write off hundreds of thousands of people who are and will be effected until the time comes, and it would take many years for the smoking risk to be erradicated from our society . Early detection is now the best chance for survival. I guess he doesn't think they are worth the effort or investment. Thank you for posting this and I hope they hear from many of us. Jenny[/i]
  8. Gina, I can't believe either that you have been worrying with that and the form that good news now takes. I don't think we'll ever be able to not worry about every new pain and symptom that comes along. I'm kinda like you about sharing information, worry in silence until I know. But we're here for you. Jenny
  9. Jenny G.

    Ta-Da!

    Oh Sandy, I'm so happy for you. What a relief! You continue to be an inspiration for me. Jenny
  10. 10 for me too and only 2 left. I'm sad about the hair too, just got a full head again.
  11. Many of you have probably seen this, but for those that haven't....... A blast from the past. Subject: Are You Older than Dirt? > > > How many do you remember? > > > > > > Head lights dimmer switches on the floor. > > > Ignition switches on the dashboard. > > > Heaters mounted on the inside of the fire wall. > > > Real ice boxes. > > > Pant leg clips for bicycles without chain guards. > > > Soldering irons you heat on a gas burner. > > > Using hand signals for cars without turn signals. > > > > > > Older Than Dirt Quiz: Count all the ones that you remember not the > > > ones you were told about! Ratings at the bottom. > > > > > > 1. Blackjack chewing gum > > > 2. Wax Coke-shaped bottles with colored sugar water > > > 3. Candy cigarettes > > > 4. Soda pop machines that dispensed bottles > > > 5. Coffee shops with tableside jukeboxes > > > 6. Home milk delivery in glass bottles with cardboard stoppers > > > 7. Party lines > > > 8. Newsreels before the movie > > > 9. P.F. Flyers > > > 10. Butch wax > > > 11. Telephone numbers with a word prefix (Olive-6933) > > > 12. Peashooters > > > 13. Howdy Doody > > > 14. 45 RPM records > > > 15. S&H Green Stamps > > > 16. Hi-fi's > > > 17. Metal ice trays with lever > > > 18. Mimeograph paper > > > 19. Blue flashbulb > > > 20. Packard's > 21. Roller skate keys > > > 22. Cork popguns > > > 23. Drive-ins > > > 24. Studebakers > > > 25. Wash tub wringers > > > > > > If you remembered 0-5 = You're still young > > > If you remembered 6-10 = You are getting older > > > If you remembered 11-15 = Don't tell your age, > > > If you remembered 16-25 = You're older than dirt! Ok, now post your score.
  12. Thanks, I checked it out, but not right for me. I'm still looking, seems to be more available for NSCLC than SCLC. I just want my local doctor to get me a vaccine,, but don't know if that's possible. I'll work on him some more. He thinks I'm a real pain, but he's a good sport about it. [/code]
  13. I'm so glad to hear they went ahead and started your treatments. This is good news. I hope you do well. How many will you have? I'm surprised too that I wasn't warned about these side effects, they acted like they weren't all that common. I was only told about the fatigue and hair loss. I thought the doc said decadron, but the bottle says dexamethasone, is that the same thing? Did they give you anything to take, or will they just wait to see what happens? Keep us posted. Jenny
  14. Jenny G.

    Lucie's Home!

    Yeah! Way to go Lucie! So glad you are feeling better and back with your sweetie where you belong. I hear you missed the dog hair, isn't it a great feeling to come home!!!!!!
  15. WOW! I know your are just estatic, that is wonderful news! Jenny
  16. Jenny G.

    Pet Peeve

    Don't worry Judy's daughter, it's cool here. Don, is really a sweetheart and we all love lucie!
  17. I am so sorry for what you are going through. It is very difficult to make these decisions and they are very personal ones, but I truly think the patient should have the final say and if he is willing and that is what he really wants, I would get a 2nd opinion and see if other chemo might be possible or at least something else for symptom relief. Focus on getting him stronger now and enjoy your time together as you search for other options. I wish you the best. Jenny
  18. Your wife is so beautiful and your tribute so touching. Thank you so much for sharing your experience with us. I hope that you are spending time with friends and trying to take care of yourself, I can relate to the experience with the neighbors, I went though similar emotional turmoil at one point in my life. I also saw hope for the future in your writing and I was so glad for that. We are all here for you and can feel your pain. I know that you can work your way through and eventually find comfort in your memories. Jenny
  19. Jenny G.

    A small update

    Jay, I was so happy to see your post, but sorry to hear about the headaches. Are you happy about the delayed move to Canada? I know you had mixed emotions on that one, and now with a new friend in the picture.... We worry about the people we don't get updates on, so do us all a favor and keep in touch. We all want to hear from you and we all care about you. How are your father and sister doing? Jenny
  20. I too kept surgery in the back of my mind even though I was told it was not an option. I figured that if the chemo and radiation shrunk it enough then it could be a possibility. I'm not leaning in that direction anymore, but still do try to think ahead to plan B. What I'm really interested in at this point is a vaccine. Looking for a trial or someone who will just give me one. I think very good results and wider use are just a couple of years away. I told my doctor to be sure nothing happened to my bioposy sample (they may not keep them indefinitely) he didnt' think it would be usable, but just in case. I have a lot more research to do in this area. So glad to hear they went ahead with the PCI for David. I think that means good news. Jason, thank you for sharing this information. Please do keep us updated on the progress. Jenny
  21. Johnny, I hope this will be a blessing to get the correct diagnosis and find the right treatment. I hope the best for all of you. Jenny
  22. Amazing, that's a new one on me and a new low. I had someone ask me the other day if I was going to make it. It took me aback for a minute, didn't know what to say to that one. "Well, I hope so". Jenny
  23. And it's all worth it. Love my dog! Jenny
  24. Karen, Yes, the same thing happened to me. Bad headache evening of first treatment, nausea and vomited. Queasy to stomach each day after, but not much more trouble with headache, then got 3 day break over labor day weekend and felt much better. Tech seemed puzzled when I questioned them on 2nd day about my symptoms and said they didn't think it was due to radiation especially after just one treatment. Since I was doing better, I just let it drop, then saw doc this past Tuesday and asked him about it. He said "not usual" to have vomiting with brain radiation, but he could see how it might happen. I think he also suspected swelling caused the headache and perscribed low, short term dose of steroids. (4x2day, 3x2day, 2x2day, 1x2day). I didn't take the 4th one on day 2 and hoped it would level off at the lower doses. They are having a powerful effect on me too. I sure don't have to worry about the fatigue. I'm feeling pretty hyper and weird. At first I thought it was good, but now I don't know. I actually had 2 margaritas at lunch today to try to calm down. Don't know how smart that was, but it did help some. I'm not suggesting that though. Anyway, I'm doing ok and plan to take advantage of the energy boost to get some things done this weekend. Only 2 more treatments left and it has really gone by fast. These are strange drugs to be sure, but I have been so fatigued through most of my treatment, it's nice not to come home and hit the couch right away so I'll put up with it for now. Keep us posted on how it goes with David. How many does he have to do? Best of luck. Jenny
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