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Shane18

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About Shane18

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    New York
  • US State (if applicable)
    NEW YORK
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    United States

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  1. Thank you all for your replies. Boomer, it sounds similar to my father, I am sorry to hear. He tapered off the steroids but that made things worse so they have put the him back on the steroids. He now has a breathing machine that he doesnt wear all the time but it helps when he absolutely needs it to catch his breath. He continues to have pain move around his les and his hips. We suspect its damage caused by the radiation. FWIW to others, Mayo clinic told him he shouldnt have had radiaiton to begin with and should have had chemo and then immuno. Thanks again. Shane.
  2. Hi. First I want to thank everyone who has helped with my questions, they responses have been very helpful in helping with my father's symptoms. My dad has stage iv lung cancer that is now in his kidney and his liver. He underwent chemo and radiation and is now on keytruda. He is PD-L1>50% positive which seems to be helping the immuno, his cancer is now 'stable'. But my father has had severe difficulty breathing. It originally started because he had inflammation in his lungs. They put him on steroids to help with the inflammation in his lungs and is now tapering off the
  3. Tom, thank you again for taking the time to respond. A question on the ice cream... We have taken my father off of any sugar in his diet so we have been reluctant to give him any ice cream. I am a strong believer in sugar weakening the immune system and having it feed disease and viruses. But I am also not a doctor. I am curious your thoughts on this? Thanks, Shane
  4. Hi, my father is undergoing chemo and radiation treatment. The radiation is daily on his chest (left lobe, station 4 and 7 lymphnodes). He also just started his second cycle of chemo (cisplatin). He is having difficulty swallowing both food and liquids. The pain seems to be in the middle of his chest under his sternum. Even a glass of water is hard for him to get down. Any tips on helping this issue? Also, he has some uncomfortable taste in his mouth too that he cant seem to get rid of as well if there are any tips for that, but the swallowing is the main concern. Thank yo
  5. Hi, my father has been diagnosed with Stage III (A/B) squamous NSCLC with PD-L1 expression >50%. Surgery is apparently not an option at this point. We just heard word from the radiologist that they are prescribing radiation and chemo first before administering any immuno drug (Pembrolizumab or Atezoliazumab) even though both drugs have been approved by Health Canada as a first line treatment and as combination therapy with chemo and/or radiation. Is there any reason (besides cost consideration by the government) that the initial treatment would also not include the immuno therapy rig
  6. Thank you, Tom. There is no perfect system, but feeling like we are at the DMV with a cancer diagnosis it not the solution the US wants. Thanks for your thoughts again.
  7. Hi, We received results from my father's biopsy performed on Feb 24th. He has stage IIIA NSCLC squamous cell lung cancer in station 7 and 11 lymphnodes with an upper lobe tumor which is relatively small. Station 7 is metastatic. His biomarker testing came back with positive testing for PD-L1 >50% expression (good news!) but negative for the EGRF mutation. We are in Canada so the process has been slow in the universal health care system. I believe they are recommending combination therapy with radiation, chemo, and the immuno drug pembrolizumab. We are schedule for his firs
  8. also sounds like figuring out how how to supplement the Canadian treatment (chemo/radiation/surgery) with other treatment (targeted/immunotherapy) in the US would make the economics much less burdensome. Hopefully I can find someone who has experience taking such a path.
  9. Thank you all very much with providing your generous thoughts and care, and openly sharing your own experiences. I can't thank you enough and will follow up on every suggestion you all have made. Sincerely, thank you. Shane
  10. Hi, we just received the PET scan results and it turns out my father potentially has stage III A or B lung cancer. Next is the biospy (EBUS) which is schedule a few weeks away. He is based in Canada and hence, subject to the universal healthcare system as well, which can cause long delays in appointments and treatments. I am his son and I live in New York City, and I am exploring options in the USA for expedited diagnosis and also treatment. I dont think in Canada we have the same access to dual or combination treatment and immunotherapy as is offered in the USA. I have put in a req
  11. My father has been diagnosed with having a nodule 1cm by 1cm by 2.5cm withe suspicion that is has spread to the lymph nodes. This is from the CT scan that was done. They have now scheduled him in for a full body PET scan. I thought the primary doctor referred us to a specialist for a biopsy but now they are doing a PET scan first. Is this the normal approach? Should we also be asking to schedule a biospy? My father lives in canada and the system can be slow in getting appointments scheduled because of universal health care. I am concerned we will wait for the PET scan and then have to w
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