PShsy

Thank you Michelle and Opal.

Opal, I hope you’re healing from your fall. Stitches must suck but you did get the head scan. I’m not entirely sure why they stopped the treatments and in fact am really conflicted about it. I have/ had pneumontis they believe caused by radiation but I also tested positive for corona antibodies.. The pulmonologist isn’t sure why they stopped either. I also only sleep for about 2-3 hours at a time wake up and force myself to sleep and I’ve actually skipped a night or 2 with no sleep at all I have been able to get back into bike riding and mild yoga so I’m trying my best to combat this weight gain and reverse it. I’m not sure how to go about asking for second opinion about whether discontinuing Durva treatments or even I should? Any advice? Polly

Roseann Thought I was one of the few gaining weight in this treatment. Started at 156 in December when I was diagnosed. I am now and not so proud 185. I’m only 5’3”. Doc said it’s diet and I told her that the prednisone has me angry or hungry. Easier to satisfy hunger. Lol Hoping now that I’m not on Durva anymore my weight will go down? Maybe? Michelle, I wish I wore dresses. Those are adorable. Polly

Michelle they did a biomarker. Don’t remember the results. Having the antibodies relieves a little bit of my anxiety but I live in middle of NYC and it’s been crazy over here!!!

I don’t have a port. It was during the CT scan so no durva. Think it was the contrast. My arm was swollen for 2 days. Hurt like a mofo.

Hi all, Just a little update. As I was approaching # 5 I was experiencing some chest pains and shortness of breath so my CT scan that was scheduled for 5/28 got bumped to the 5/5 and treatment was to be deferred. Worst scan ever.. nurse did something wrong and I ended up with a very painful extravasation. Nurse missed the vein putting the needle in. Results from the scan indicated a plureral effusion or suspected pneumatitis from radiation. I was placed on high dose of prednisone, currently tappering down. Oh and somehow during this time I managed to be exposed to covid and tested positive for the antibodies. I had a follow up today with the thoracic oncologist and was informed that I will no longer be doing immunotherapy. I’m having a very mixed reaction to this. My tumor has shrank from its original 4.3 cm x 2.9 cm to 2.0 x 1.9. One node has remained the same. And one node has slightly decreased since November 2019. I am super grateful for the treatments but what happens if I start to go backwards. I’m not sure what the next steps are... Polly

Hi everyone, Quick question about zinc supplements and durva? Are they compatible? I asked doc about vitamin C and she told me don’t take any vitamin c supplements. Ron H and Grahame, i took some prednisone.... my sister has acute asthma and my chest is feeling better. Polly

Thank you Michelle snd DFK. I did tell my drs about the symptoms and she looked at my ct scans and didn’t see anything. Shortness of breath has subsided and I have an appt with the pulmonologist in April. But I’m not due for another scan until May. Staying indoors except for s grocery run or drs appt. New York is eerily quiet. I live near Times Square and have never seen the streets so desolate. Be safe everyone Polly

Hi everyone, Just finished infusion #1 and # 2. Chest feels a little tight and have headache. Had scans done and left mass reduced from 4.2 x 3.2 to 2.4x 2.0. Other nodules reduced is So grateful. But am feeling more out of breath?? Love reading up on everyone. Polly

Hi everyone, Just finished infusion #1 and am a little worried about side effects. Had scans done and left nodule reduced from 4.2 x 3.2 to 2.4x 2.0. Other nodules reduced is So grateful. But am feeling more out of breath?? Love reading up on everyone. Polly