May2

Sorry you have to go through all this, it is a lot to take. May god be with you and give you both the strength and patience.

Thank you 🙏 Praying and hoping for health and healing for everyone.

I have been good. Thank you for asking. I just recently got my first scan after starting on Retevmo. Doctor said I still have one nodule in my lung and one node in abdomine, but they are smaller than before and inactive. I started with 3 nodules in my lung, and a few lymph nodes in abdomine area. I am very grateful for this outcome, hoping it keep working for a long time. 🙏🙏

I am glad your pain eased up. any scans?

I am so glad to hear you have been stable. That is great news. Thank you for sharing. Hoping your pain will ease up, And praying your surgery goes well.

Thank you Judy. how are you doing on Tagrisso?

I am so happy to know your cancers are all under control. was your Oncologist supportive of Melatonin? Did it effect your labs in any way? I have NSCLC stage 4 btw. RET mutation. I am currently on Retevmo.

That is very helpful. Thank you so much for sharing your experience.

Hi, I came across this article about the use of melatonin for cancer, especially for NSCLC. Sorry it is a very long article, feel free to skip the first a few paragraphs. I was wondering if anyone has any thoughts, or experience with this. https://cancerci.biomedcentral.com/articles/10.1186/s12935-019-0853-7

Hi, I came across this article about the use of melatonin for cancer, especially for NSCLC. Sorry it is a very long article, feel free to skip the first a few paragraphs. I was wondering if anyone has any thoughts, or experience with this. https://cancerci.biomedcentral.com/articles/10.1186/s12935-019-0853-7

So glad to hear about your good response. I hope remaining side effects will continue to resolve. Thank you for sharing. Would you mind sharing with what NSCLC mutation you had. Thank you.

Hi Jack! I am not sure honestly. I know that tumor markers are not usually specific to one type of cancer. It can be present in various types of cancer. My doctor tracks my CEA. CEA is usually associated with colon, rectum, pancreas, stomach and lung cancer. Ca-19-9 can be present in various types of cancer as well such as pancreatic cancer, liver, lung, ovarian, and gastric cancer..etc However, I am not sure why a doctor would choose to track one marker over the other. So far I have only heard of CEA being used as a tumor marker for lung cancer. I would be curious to know why your doctor chose to track the Ca-19-9. You can definitely ask him, and let us know. Aside from that, how are you doing on Keytruda? Any side effects? Are you noticing any improvement in cancer related symptoms?

Is anyone on Retevmo/LOXO targeted tgerapy for the RET mutation?

Hope all goes well. Keep us posted ☺️

When I was on Keytruda my symptoms were not very consistent. I would have a combination of different symptoms after each infusion. However in general they were all inflammation related. I had caugh sometimes, runny nose on occasion, Joint and muscle pain, tiredness, headache, fever...etc. they felt like flu symptoms. I would say my worst side effect was a consistent shortness of breath, I would get very tired after walking a short distance. (Short distance can mean walking from family room to my bedroom😬 during early days right after infusion, or a walk around the block towards the end of three weeks after infusion) Taking 2 Advil consistently every 4-6 hours was very very helpful. It defenitly kept inflammation and side effects at minimum. I always took 2 Advil before going to sleep, it made waking up in the morning a lot easier.