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Fuzzy

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  1. Like
    Fuzzy got a reaction from LouT in Tested positive for covid   
    James:
    prayers up for a fast recovery...all of us are behind you!
  2. Thanks
    Fuzzy got a reaction from TJM in Update and some worry...   
    Tom:
     
    Damn...prayers up you get good news....
     
    Pat
  3. Like
    Fuzzy reacted to TJM in Update and some worry...   
    Fuzzy
    Similar situation with me. I finished radiation first of August and my screening CAT scan in November showed a pretty sizable mass in my RML. I too am very concerned with the speed of the recurrence.
    Was suppose to see my oncologist today to review a PET scan and path forward, bit he canceled it at the last minute and wanted to reschedule in 2 weeks. I nearly lost it but firmly said that was just not acceptable. Now I am scheduled for a phone consult Friday. So more waiting.
    It is entirely possible that yours is not a recurrence. That is my hope for you.
    Peace
    Tom
  4. Like
    Fuzzy got a reaction from JamesB in Tested positive for covid   
    James:
    prayers up for a fast recovery...all of us are behind you!
  5. Sad
    Fuzzy reacted to JamesB in Tested positive for covid   
    Well this puts the icing on the cake so to speak. Got on the bus was on my way to the end of the line subway stop that is indoors and I thought I could build up my strength walking as there aren't many people here. Got the phone call from my test on Wednesday as I has been more  short of breath and sweating and just plain tired.
    This explains a lot,I just hope it doesn't get more full blown Am supposed to start with Immuno on Friday. I have been so careful with prevention too.
    Say some prayers thanks.
  6. Like
    Fuzzy reacted to TJM in Tested positive for covid   
    I HATE this cancer. I HATE this virus.
    Peace
    Tom
  7. Confused
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    No light up!!!
     
    but some coughing brought up a tiny bit of blood-CT scan showed a 0.9 x 0.6 cm nodular opacity that they said is “possibly infection or inflammatory”.... it wasn’t on the PET scan from six weeks earlier, so doctors don’t seem overly concerned ( of course I’m scared to death!)
     
    I have a previously scheduled CT scan on the 9th of December.  I’m more than a bit apprehensive. 
  8. Like
    Fuzzy reacted to BridgetO in A welcome side effect of chemo (apparently)   
    Interesting! When my mom had chemo for advanced breast cancer she had a lot of spots on her arms turn  scaly and peeling. It seems probable that she had very early skin cancers or maybe precancerous spots, since she had a lot of sun exposure throughout her life. She tanned really well, unlike me- it seemed to me I burned and/or freckled even thinking about the sun.  Maybe that protected me from skin cancers. 
    Anyway, my mom complained to her onclogist that the chemo was making her arms look like a fish. His reply: Better a live fish than a dead duck.
    Bridget O
  9. Like
    Fuzzy reacted to LouT in A welcome side effect of chemo (apparently)   
    Wow Lexie...not only are you beating cancer, but you also managed to clear up your complexion.  Seriously though, it does make sense that any abnormal cells might be responding to the chemo.  That really reinforces how those chemicals do go through our whole system, doesn't it?  Glad to hear the news and hope to hear more good news from your next scan.
    Lou
  10. Like
    Fuzzy reacted to LexieCat in A welcome side effect of chemo (apparently)   
    For the past 20 years or so, I've had a steadily growing/darkening rough skin patch on my right cheekbone. I've seen dermatologists, who assure me it's not cancerous or pre-cancerous, but just one of those things. It looks like a large, rough, reddish-brown birthmark. Before my latest LC diagnosis I was toying with getting laser resurfacing to deal with that, as well as other little age spots cropping up and wrinkles.
    Anyway, since I've been on chemo, the patch has lightened all over, the roughness has smoothed out, and it's generally far less noticeable. I haven't been wearing makeup because of the need for masks, but makeup would also almost completely cover it now, I think.
    I suppose it makes sense, if chemo targets fast-growing cells, that it would attack a benign growth like this, too. Whatever, it's a welcome effect!
  11. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Forgot to add that as of now, healing is nearly complete. A rare twinge of tightness is the surgical area but no pain at all. 
  12. Sad
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Lou:
    I hope this finds you well and fighting on! Please forgive me for not updating earlier as my wife had done health issues wanting attention-she’s fine now!
    Im doing pretty well...pet scan showed nothing lighting up-I was beyond thrilled with that. 
     
    A few weeks later in October i had some loose coughing and brought up a bit of phlegm/mucous with a tiny amount of blood in it ( a few spots)  I went to MSK where they did a follow up ct scan on 26 October (6.5 weeks after the pet scan )which was fine except for 
    “A new 0.9 x 0.6 nodular opacity in left anterior upper lobe possibly infectious/inflammatory”
    Of course, I’m thinking the absolute worst but doctors don’t seem overly concerned as I’m due for another follow up ct scan on 9 December-one previously scheduled after my PET scan in September. 
     
    I don’t consider myself a wimp, but now I’m on eggshells waiting for two weeks from now-and I’m hesitant to dump what’s likely ( hopefully) nothing onto folks like yourself who’ve gone through far worse  
    still, I’d like your opinion. 
     
    best wishes
     
    pat
     
      
  13. Like
    Fuzzy reacted to BridgetO in Stage IV Lung Cancer, NSCLC Adenocarcinoma, Ketruda & Dementia   
    Hi Deb and welcome. I'm sorry to hear about your husband's diagnoses. I see why you call this a whirlwind. I've never been in a situation like yours. The nearest iwas when my mom was having ongoing chemo every 3 weeks for metastatic breast cancer. She had neuropathy that was causing her tobcome disablee and she could no longer walk and she was beginning to lose the use of her hands. I lived hundreds of miles away, so was not her caregiver, though I was her health care power of attorney. She didn't have dementia prior to treatment, but after months of this chemo, she was getting increasingly mentally foggy. She was still making her own decisions and when she decided to discontinue her chemo against her oncologists advice, I supported her decision. So in a way it's the reverse of your situation.
    How able is your husband to understand his situation and to espress what he wants? If he is able to do so, even though he has some mental impairment, If it were me, I'd be inclined to support him in what he wants, so long as it makes some sense and seems to be consistent with his values before he had dementia. If he is too impaired, then I'd want to know whether, before he became imparied, he'd expressed any wishes about end of life care and use that to guide decisionmaking. 
    Does he have a neurologist and/or primary care doctor who can weigh in on the decision?  Personally, I don't think it's reasonable to deny treatment simply because of age or a diagnosis of dementia. If a person is in too poor of health to tolerate treatment, that's a different consideration.  
    If your husband wants to continue treatment or if you think that's what he'd choose and it seems reasonable to you, but and the oncologist resists that, you could seek a second opinion.
    This is a hard situation you and your husband are in. There may be  no "one right answe" but rather a number of reasonable paths. I wish you all the best.  
    Bridget O
  14. Like
    Fuzzy reacted to LouT in Stage IV Lung Cancer, NSCLC Adenocarcinoma, Ketruda & Dementia   
    Deb,
    I'm so sorry to hear about your husband's condition.  The dementia is a real complication to any kind of medical treatment.  My wife is in late stage dementia and I can tell you that many medications, procedures and other medical items that work well on normal people often have deleterious effects on those with dementia.  One reason is that the involvement of the nervous system complicates reactions to the medicines, regardless of what they are.  Also, as the brain damage progresses the bodies functions are not what you could normally expect.  I can't say with certainty what your doctor is thinking, but perhaps you should ask him why he is recommending this path of treatment (hospice).  By now you likely spent time with your doctor and hopefully you got the answers you were looking for.  My prayers are with you and your husband.  I understand what you live with everyday.
    Lou
  15. Sad
    Fuzzy reacted to MyWifeSCLC in Esophagitis   
    Since this thread was pulled forward I thought I would add to what Judy posted.
    My wifes esophagus was so bad that the only thing helping was oxycodone. At one point a surgeon put a camera down her throat to check for a constriction. I was sure she was going to have to have a balloon placed in her throat to expand a constriction. The surgeon saw an angry red path through her esophagus with no constriction. It took a couple of months after radiation stopped before coming off of pain pills. Her esophagus is doing well now with no lingering effects.
    Steve
  16. Thanks
    Fuzzy reacted to MyWifeSCLC in Side effects   
    Hey Tom ... My wife wasn't a fan of the magic mouthwash with lidocaine. It barely worked and the numbness did scare her a little. I sure hope the pain gets over quickly.
    Steve
  17. Thanks
    Fuzzy reacted to LouT in Introducing myself and my cancer   
    Fuzzy,
    Glad to hear that you are beginning your treatment.  How's the healing going from the surgery?  It sounded like you're moving a long well in that department.
    Lou
  18. Thanks
    Fuzzy reacted to LouT in Introducing myself and my cancer   
    Fuzzy,
    Fingers and toes crossed that you'll have a good outcome with your latest tests.
    Lou
  19. Thanks
    Fuzzy reacted to BridgetO in Introducing myself and my cancer   
    Let  us know your results. Fingers crossed for no "light up" on the PET.
    Bridget
  20. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    All done with PETscan Tuesday. More than a bit nervous though I’m feeling pretty good physically
     
     
  21. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Bridget
     
    all done treatment and have my pet scan Tuesday. When they did surgery, they found one level seven node was cancerous, but not grossly oversized. A pet scan just before chemo and radiation showed another nearby node lit up-so that got zapped with radiation.  I did carboplatin and Alimta one cycle every three weeks ( four treatments) I handled it fairly well.  Radiation gave a good case of esophegitis but that’s mostly gone now.
     
    im a nervous one waiting for my pet scan.... 
  22. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Tom:
     
    I'm healing quite well, still a bit of stiffness and some areas numb- but little actual pain.  
    I've had 10 radiation treatments, and get second cycle of chemo next week (Carboplatin/Alimta) 
    So far the worst effect is tiredness...but I've been told second chemo is where hair loss usually begins.  I've had some nausea, but it';s easily controlled
    Cheers!
  23. Like
    Fuzzy got a reaction from Scruboak in Introducing myself and my cancer   
    Treatment starts tomorrow!!  I'm glad/apprehensive that it's FINALLY started.  Last PET scan 11 days ago showed no hotspots except a lymph node not removed during surgery-and not far away from a node that was removed and found to be cancerous.  
    both oncologists are optimistic about results!
  24. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Treatment starts tomorrow!!  I'm glad/apprehensive that it's FINALLY started.  Last PET scan 11 days ago showed no hotspots except a lymph node not removed during surgery-and not far away from a node that was removed and found to be cancerous.  
    both oncologists are optimistic about results!
  25. Like
    Fuzzy got a reaction from Tom Galli in Introducing myself and my cancer   
    Apologies for not getting back sooner-It's been a madhouse tase last two months!
     
    update:
     
    I'm getting treatment starting tomorrow.  Radiation and chemo simultaneously.  chemo will be  Carboplatin/Alimta every three weeks for four cycles. Radiation was originally 30, but dose was increased slightly and treatments reduced to 20 to keep me from coming out often with this virus about.  
     
     
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