Scruboak

It IS quiet. Thinking of you all in this holiday season. Hoping for good scans Karen❤️

Keep us posted, Julie. I’m sorry you’re having lots of discomfort. It really is an unpleasant experience but it does get better. Keep up your walking!

Welcome to the forum JT. I hope your healing after surgery is going well. I was diagnosed with stage IA2 invasive mucinous adenocarcinoma of the lung 3 years ago (IMA). It was a solitary nodule type, not the pneumonic type. Questions might be what stage, any nodal involvement (IMA often is nodal free and typically does not metastasize outside the lungs), any treatment beyond surgery needed, solitary or pneumonic type. Often stage I lung cancer patients are not offered biomarker testing. I understand that a form of KRAS mutation is common in IMA and there currently is no targeted therapy for this type of lung cancer. I don’t know if I had a KRAS mutation because I was not offered biomarker testing and it is not clear if there would be any advantage to knowing.

Welcome, Mary Ann. I’m sorry you are dealing with this, whether writing for yourself or someone else. I was diagnosed with stage IA2 invasive mucinous adenocarcinoma in May, 2020. It took longer to get it diagnosed because of COVID and the ban on “elective” surgeries. I had a VATS lobectomy on the lower left lung and two weeks later had a repeat VATS to remove part of the upper left lung due to a hemothorax. No treatment other than surgery. My last CT scan showed some scarring and atelectasis (partial lung collapse) in the left lung which I’ve been told is normal post lobectomy. I also have a small nodule (4 mm) that has not grown over the past year. I’ve moved to annual scans! I live at 9000 feet and, after the initial recovery from the surgeries, can breathe just fine. Hiking higher than 10,000 feet is a challenge that I haven’t yet tried. But hell, that was hard even before I was diagnosed. Mentally, I still have niggling concerns about recurrence. I saw an oncological therapist for three months who was very helpful.

Tom, I’m sad to hear that you’re having so much pain. I’ve not been on the site for months and your blog was the first post I read this morning. You have always been a blessing with your right on responses to me and others. I hope you are getting some relief from the medical community who can be so reluctant to prescribe medication for chronic pain. With love from Suzan.

Welcome Herbert. This is a good site to use as people here understand what you’re going through. I talk to my family but often use Forums to relieve my family of some of the worries that come up. And, although the Forum is no substitute for medical advice, you will find people here who are familiar with procedures and protocols. And, we’re very good at just being here for you. Suzan

Welcome, James. I remember the day my husband was diagnosed with leukemia - the memories come back very vividly from time to time. It was the first serious illness we faced as a couple and seemed devastating. We live with it now -everything is the same yet very different. You and your lovely wife will make it together.

When my husband was diagnosed with chronic lymphocytic leukemia 7 years ago,I remember our shock as a long married couple - a “ this is it” kind of shock. We were both devastated. But, it wasn’t “ it” and he’s still around and doing quite well. My lung cancer diagnosis created the same chaos for a while. I’ve come to believe that cancer often can be treated like a chronic condition - it IS just a part of our lives. I wish all the best for both of you. There is a national suicide hotline that you might want to check out for your own peace of mind. Just dial 988. They can help you with your own worry and will be able to inform about preventative measures. Love to both of you. Suzan

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Another welcome for you. This forum has helped me when I have felt crushed. We’re all in this together and how much better can that be? Love to you, Suzan