jack14

Thanks Edivebuddy sounds expensive.

Thank you LouT I was advised by the tech that the radiologists were behind and it would be read in seven to ten days. I found tge results posted three days later through my portal, the morning of my appointment with her. I told her what the tech had said and she said that they had requested that it be read sooner. I mentioned AI and she said that they were reading it both ways. I researched the radiologist and he is a veteran of twenty years and has a good back ground. I am confident in regards to the cancer assay, but I have several other issues in regards to cardiac, vascular, and urological stuff that I was wondering about. I should have mentioned it to her but I didn’t. No big deal, I will mention it to my Cardiologist who I see next month, and to my PCP who see in October. Thanks I appreciate your insight as usual and I’m glad to see you! later

Greetings peeps! Haven’t posted or even been through here in a while, but I haven’t stopped thinking of you and praying for all of us as well as a cure. So, anyway, I was wondering if anyone knows if it’s possible to get access to an app or program that one could run a CT scan through? I recently had a serial non contrasting scan of my chest, abdomen, and pelvis areas done. Thankfully, there wasn’t any sign of my cancer again. It’s been over a year since we ended chemo. Surely, someone has written a program or knows someone who can? The overburdened radiologist who read mine the other week didn’t go into much detail in regards to anything outside of his search for cancer. I would like to have it run through an AI program too if possible? As though of you may remember, I am a big proponent of “thinking outside the box”. thanks; jack

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years. My prayers are for all of us to beat this horrific disease.

Hi Michelle Sorry, I missed this until this evening when I decided to check in. I am still skeptical, and hesitant to try it. But, if I run out of conventional options…..

And there’s the Joe Tippen Protocol (fenben). Well worth looking into IMO.

So sorry to hear that. I remember how I felt hearing that I had stage 4 adenocarcinoma NSCLC. That was a bit over two years. I had immunotherapy, target therapy, and now chemotherapy. I would get a second opinion if I got anything I didn’t like in regards to the treatment plan. I have been told to find a “comprehensive cancer” center if possible, as they typically get better results than those who lack that designation. Immunotherapy and targeted therapy is a game changer for many of us! Trials are also a promising bet, as I have been told. I think it’s also a wise idea to ask about palliative care to be added to the plan. Last of all, I am getting my fifth chemotherapy infusion (three months so far), as I am typing. It has not been that bad, hair loss and fatigue for a few days after my infusion. They have found ways to eliminate the agony many experienced in the past, so if they offer it, it’s worth trying. You can also halt it at any point. Lastly, I would ask for a panel of genes from Foundation One to reveal any targetable gene mutations, if you haven’t gotten this information yet. It needs doing before any treatment. Good luck to both of you!

It sure helps me sleep when I have insomnia. That’s a big plus for me. As for curing cancer, I am skeptical.

I should know soon. I’m going to try the trial sample next week.

I want to try the Rick Simpson Oil regimen too. The oil counters the side effects of chemo too, as I understand it. Nausea and insomnia in particular.

The immunotherapy drug keytruda worked for almost two years. Then the Tabrecta was working for a couple of months and then it began causing lung problems. Bi-lateral pneumonitis and almost did me in. So, now I am in chemotherapy and so far no real bad issues. Second round this week.

I have metastatic NSCLC and have been through immunotherapy and presently on hold after being on tabrecta. So, I am searching for another line of therapy before doing chemo.

https://www.amgen.com/newsroom/press-releases/2021/05/fda-approves-lumakras-sotorasib-the-first-and-only-targeted-treatment-for-patients-with-kras-g12cmutated-locally-advanced-or-metastatic-nonsmall-cell-lung-cancer

Thank you Tom. I just found this and I really appreciate your advice. You are truly an inspiration.