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jack14 last won the day on March 22

jack14 had the most liked content!

About jack14

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  1. jack14

    Cancer Markers

    I have some identified diverticula in my decending colon (CT scans). And some pretty bad chronic constipation that has been going on for a few weeks now. I believe that it may be a flareup (diverticulitis and a resulting stricture?). I also have mild COPD, (empysema). Those two things right there might have caused my CEA to go up to 5.9. I just had my CA19-9 marker that was 63 three weeks ago is now 61 and the PA said that is stable. No word on another CEA check, if, they have even repeated it. Anyway thanks Lou, you sure have been through a lot. Bless you and I surely hope that you don't
  2. Hi

    Can "MET" be included in the "LUNG CANCER MUTATIONS" sub section? There are targetable treatments coming out for exxon14, amplification, skipping, etc. I have this mutation (i.e. MET amplification) and want to know if and when the FDA might approve one of the drugs that has been approved for the MET exxon or skipping mutation.

    Here is a link that substantiates my assertion: https://www.nejm.org/doi/full/10.1056/NEJMoa2002787

    thank you

    Jack Washburn

    1. jack14


      PS That was the request that I sent to her.

    2. LUNGevityKristin


      Hi Jack,

      Adding a subforum takes a little time but we are working on it.  Thanks!

  3. I guess I should have sent the request to you and Katie.
  4. Thanks. I sent Katie B a request.
  5. Yeah that's what I am trying to do. Thanks
  6. Why weren't "MET" mutations included in the "LUNG CANCER MUTATIONS" section? There are targetable treatments coming out for exxon14, amplification, skipping, etc.
  7. jack14

    Cancer Markers

    Thank you everyone for your kind informative responses. A couple of days after I posted this, I received an update of my last labs. Apparently my Onc hasn't replaced the CA19-9 marker, she has just added the CEA one. It has edged up to 63. The nurse called me Friday and told me what it was and said that my Oncologist considers me "stable" and will continue the Keytruda. My next infusion is at the end of the month.
  8. jack14

    Cancer Markers

    As some of you may remember, I have been on immunotherapy (Keytruda), since last May for stage 4 NSCLC (T1aN3M1b). The staging was based on contralateral lymphadenopathy. No mets anywhere outside my chest. Anyway, my Oncologist has been using the CA19-9 marker to help keep an eye on the progress of my therapy between scans, as this marker, usually reserved for pancreatic cancer, also works with some lung cancers, like mine. The CA19-9 marker has ranged up and down between 76 initially, to a low a few weeks ago of 49 wih last months going back up to 60. For some reason, she has switched the ma
  9. Oh yes! You are so right about that! lol
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