jack14

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Yay!

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Jack,
Oh my, your post is grand good news. NED is a wonderful outcome. Look forward to those monthly oncology consults stretching to quarterly, then 6 months, then yearly. I'm now at the yearly check and even have the luxury of a low-dose CT scan with no infused contrast.
Stay the course.
Tom

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

Update: I have received nine tri-weekly infusions (paxel / Carbo), and my scan results have revealed no evidence of disease! I am now on a monthly physical exam. My Oncologist says that I could remain clear for months or years.
My prayers are for all of us to beat this horrific disease.

As many know I’ve been on Tagrisso since July 4th.  Tomorrow I’ll know if tumors are gone or reduced.  Especially hoping the esophagus is the same cancer and Tagrisso has shrunk that.  Otherwise I have to consider chemo radiation.  Yuck.  Now I sit without anything good to eat for 24 hours.  

I do know of people who take turkey tail supplements and haven't heard anything negative. Not sure about reishi. As an EGFR patient, I know to avoid antioxidants. They can also encourage cancer cell growth. 

Sorry to hear that. Congratulations on NED!
The science is definitely still out regarding keto. Don't mean to imply that I thought keto is good, just that they have been aware of the glucose mechanism since a long time ago. Personally, I think keto's claims are overrated.
There is a lot to be said about the role of glucose and pathways though whether it is through using caloric restriction, fasting, drugs, and to a lesser degree supplements. Yes, I've also researched the drug interactions, and I will be sure to check. Who knew taking antioxidant supplements during therapy was bad because it lowers the effectiveness of the drugs which work via oxidation?
I am sure some people do fine just with conventional treatment, but some people, especially those in Stage IV, want to improve their odds. I've already gotten turkey tail and reishi for my dad and studies out say taking is better than the non-taking control. They're standard adjuvants in the Old Country for anyone who can afford them. Sadly, some rare stuff is out of my $$$ reach.
 

I know that people do use FenBen but others are adamantly opposed.
Regarding keto diets, I was on one for most of 2019. Then I was diagnosed with Stage IIIB EGFR+ NSCLC in October of that year. That diet did nothing but mask the real cause of my weight loss. After undergoing radiation and chemo and now targeted therapy (for almost 3 years), I am NED and back to good health. The only supplements I take are what my primary doctor recommends for other conditions (like osteopenia). I'm skeptical of claims about both sugar and supplements, and in fact some supplements can interact with targeted therapy drugs. 

I just wanted to chime in on this since this was something I researched. There are actually many people on various other platforms who mentioned trying with different cancers NSCLC and SCLC included but no one here, perhaps because it's a bit less active. Fenbendazole supposedly works via the process of cancer cells having higher microtubule turnover compared to normal cells. With fenben the known risks seem to be liver enzyme raises in rare cases that reverse after stopping, it doesn't work, or possibly it makes hormonal cancer worse.
Fenbendazole
Unexpected Antitumorigenic Effect of Fenbendazole when Combined with Supplementary Vitamins
2008 so long before Tippens, they were aware
Fenbendazole acts as a moderate microtubule destabilizing agent and causes cancer cell death by modulating multiple cellular pathways
Mebendazole (same family but not available without a prescription, but supposedly crosses the blood brain barrier better)
https://pubmed.ncbi.nlm.nih.gov/33506200/
https://www.hopkinsmedicine.org/news/newsroom/news-releases/johns-hopkins-study-anti-parasitic-drug-slows-pancreatic-cancer-in-mice
There is also another school of thought that many people trying the Tippens protocol also seem to try. Basically it's based on the idea that cancer cells compared to normal cells have greater glucose needs, and by "starving" them, that's a method that can be used along with conventional treatment. Whether this is achieved through various pathway blocking or repurposed medications e.g. metformin ...There's also studies on fasting paired with treatments being more effective than treatments alone that show promise as well but that has to be weighed against the danger of not everyone being in a strong enough condition to fast.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7730661/ How Far Are We from Prescribing Fasting as Anticancer Medicine?
I have also looked over Jane McLelland's and COC material, but some of those supplements don't seem to be acceptably safe at this moment.
In 1962, the New York Department of Mental Hygiene published an article about 2 women whose metastatic cancers disappeared after a series of daily hypoglycemia-induced insulin comas (brief and reversible). These patients could not undergo conventional electric shock therapy, hence, the medically induced psychotherapy. Not only did their psychotic and depressive symptoms resolve, but their cancers (grossly visible cervical cancer and metastatic melanoma) became undetectable as early as 2 months into treatment.10 Zuccoli and colleagues reported on a glioblastoma that was effectively treated with temozolomide oral chemotherapy after the patient was weaned off steroids. The patient had a radiographic response and good tumor control for about a year, before discontinuing the diet. She transitioned to chemotherapy, which included bevacizumab (antivascular endothelial growth factor), but the disease progressed and she died.11 In addition, during 8 weeks of ketogenic dieting, 2 pediatric female astrocytoma patients experienced improved mood and showed decreased glucose uptake on PET-computed tomography (PET-CT) of their tumor sites. One of these patients continued the diet and remained disease-free another 12 months.12 These early case reports provide compelling evidence for further research into the role of glucose metabolism in cancer treatment.
From <https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6375425/>
The glucose aspect is something they've been aware of for a a while.

Hi Michelle 
Sorry, I missed this until this evening when I decided to check in.
I am still skeptical, and hesitant to try it. But, if I run out of conventional options…..

Everyone has give good advice. Has your mom had a new biopsy done (tissue or blood) to determine if a mutation is causing this progression? I would want to explore that as well as any clinical trials if your mom was agreeable. Hospital doctors refer people to hospice too quickly in my opinion. 

It sure helps me sleep when I have insomnia. That’s a big plus for me. As for curing cancer, I am skeptical.

Just as I was afraid of... his oncologist confirmed that the growth in his liver is very concerning and he needs to switch up treatments.  So, onto the 3rd and final line of treatment.  If this doesn't work, he will need to look into clinical trials.    

Brother just got his scan results back after a couple rounds on Gemzar as a 3rd line treatment.  Chest and Abdomen CT scans were pretty decent.  Mostly stable and some shrinkage.  Brain MRI though wasn't as promising.  Lot's of progression in that report (increase in lesion sizes and also new ones).  Waiting on doc to contact him to discuss next steps.  He had a couple rounds of brain radiation a while (months) back.  He is close to 16 months post dx now.  Overall performance is better than it was a year ago for sure.  However, he does say that he feels as if he is slowly declining.  Might just be all the treatment side effects compounding to make him feel that way though.  He's definitely a fighter though and taking it all on like a champ.    

Yay for Jack and NED, the cancer survivor's best friend!

Jack,
That's brilliant news well done on NED now celebrating I hope 
Take care Justin 

Just saw the results from my last CT scan: IMPRESSION:
Radiation changes in the left upper lobe
No evidence of recurrent or metastatic disease.
My blood labs however revealed a lower platelet value, of 86. I see my Oncologist later today and suspect that she will probably take me off the Taxol Carboplatin for a month?

Jack,
Your CT report is way understated. No evidence of disease--NED--is very worthy of grand celebration. 
How about that, Jack is NED!
Stay the course.
Tom

Just saw the results from my last CT scan: IMPRESSION:
Radiation changes in the left upper lobe
No evidence of recurrent or metastatic disease.
My blood labs however revealed a lower platelet value, of 86. I see my Oncologist later today and suspect that she will probably take me off the Taxol Carboplatin for a month?