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Lindsay

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  1. Like
    Lindsay reacted to Tomm in Durvalumab   
    Lindsay..
    real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and  stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and  go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer   after Durva is done. So real life after is great, your future is Bright.
    I got results from my CT last week... still NED
    Good news! There are well over 100 labs in America working on developing a vaccine.
    Just wait til they get the German shepherds involved!
     
    .
  2. Like
    Lindsay got a reaction from Sillycat1957 in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  3. Like
    Lindsay got a reaction from sashjo in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  4. Like
    Lindsay got a reaction from Rower Michelle in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  5. Like
    Lindsay got a reaction from GaryG in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  6. Like
    Lindsay got a reaction from Barb1260 in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  7. Like
    Lindsay got a reaction from Tom Galli in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  8. Like
    Lindsay got a reaction from LouT in Durvalumab   
    Good Morning Durva Club!
    It seems we have a lot to celebrate! Congrats SillyCat on completing your Durva, I hope your scans come back excellent, please update us once they are back!!!
    I just made it to the halfway point, and I'm so excited, it seems to have gone a lot faster than I anticipated. Mind you, I'm only going once a month, so I don't feel my life has been THAT interrupted. (Thanks COVID)
    I'm also happy to report that I've had very minimal side effects which has also been a blessing, I'm hoping these next 6 months don't change that. 
    I'm curious what the next steps have been for some of you after you've completed treatment. I've talked with my onc about it, and it seems that it depends on how much of the tumor is gone/dead. I'd love to hear some real life stories of what to expect next. 
     
  9. Like
    Lindsay got a reaction from RonH in Durvalumab   
    Congrats to all of you guys. I love reading all these positive stories!! It really gives me hope! 
    Tomorrow is treatment day for me, I’ve lost count/it’s too much to do the math on what treatment I’m on with the switch to monthly! Lol 
    I think this is treatment 5 of my double dose?! 
     
    either way doing well, no real side effects aside from a sour stomach in the morning. 🙈
  10. Like
    Lindsay got a reaction from Rower Michelle in Durvalumab   
    Congrats to all of you guys. I love reading all these positive stories!! It really gives me hope! 
    Tomorrow is treatment day for me, I’ve lost count/it’s too much to do the math on what treatment I’m on with the switch to monthly! Lol 
    I think this is treatment 5 of my double dose?! 
     
    either way doing well, no real side effects aside from a sour stomach in the morning. 🙈
  11. Like
    Lindsay got a reaction from GaryG in Durvalumab   
    Congrats to all of you guys. I love reading all these positive stories!! It really gives me hope! 
    Tomorrow is treatment day for me, I’ve lost count/it’s too much to do the math on what treatment I’m on with the switch to monthly! Lol 
    I think this is treatment 5 of my double dose?! 
     
    either way doing well, no real side effects aside from a sour stomach in the morning. 🙈
  12. Like
    Lindsay got a reaction from Tom Galli in Durvalumab   
    Congrats to all of you guys. I love reading all these positive stories!! It really gives me hope! 
    Tomorrow is treatment day for me, I’ve lost count/it’s too much to do the math on what treatment I’m on with the switch to monthly! Lol 
    I think this is treatment 5 of my double dose?! 
     
    either way doing well, no real side effects aside from a sour stomach in the morning. 🙈
  13. Like
    Lindsay got a reaction from ashnnazila in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  14. Like
    Lindsay got a reaction from Tom Galli in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  15. Like
    Lindsay got a reaction from Rower Michelle in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  16. Like
    Lindsay got a reaction from Tomm in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  17. Like
    Lindsay got a reaction from Steff in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  18. Like
    Lindsay got a reaction from Sillycat1957 in Durvalumab   
    Good morning! 
    I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. 
    I started at 5 cm back in December 2019 when they found it,  chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! 
    I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  19. Like
    Lindsay got a reaction from Sillycat1957 in Durvalumab   
    That’s awesome Barb! I just had my first CT through treatment on Tuesday, and will get my results next week! 
     
    Grahame, nice to hear you’re seeing results too! I’m doing my treatments every 4 weeks, I go for number 5 next week, which I guess technically would be #10 given I have a double dose. Good luck to you!   
  20. Like
    Lindsay got a reaction from Rower Michelle in Durvalumab   
    That’s awesome Barb! I just had my first CT through treatment on Tuesday, and will get my results next week! 
     
    Grahame, nice to hear you’re seeing results too! I’m doing my treatments every 4 weeks, I go for number 5 next week, which I guess technically would be #10 given I have a double dose. Good luck to you!   
  21. Like
    Lindsay reacted to Tomm in Durvalumab   
    I got a surprise phone call today from my onc nurse today. The results from yesterdays CT is NED. I was NED during my year of Durva. It managed to keep my cancer away ... good news for all patients. 
     What do you call seagulls that live near the bay?
    Bagels.
     
  22. Like
    Lindsay got a reaction from Sillycat1957 in Durvalumab   
    Well, blood work was good, and I will do treatment number 4 tomorrow! Got some good information on the change in protocol to 4 weeks, and it sounds like this might be the way forward with some of the studies. Which would be nice to not have to go in all the time and be such a regime! 
    No real side effects yet, when did you all start to notice any?
  23. Like
    Lindsay got a reaction from Sillycat1957 in Durvalumab   
    I am so happy I found this group, thank you all for the support and responses to my concerns. 

    I look forward to continuing reading all of your experiences and sharing mine along the way. It’s nice to have the support of those going through or who have gone through the same thing. 
     
    treatment number 4 will be in a couple weeks for me. Fingers crossed the blood work is good and we can keep going! 
  24. Like
    Lindsay got a reaction from Tom Galli in Durvalumab   
    Thanks Roseann! 

    so far I’ve been feeling good. I get a bit of a discomfort in the center of my chest but no shortness of breath so they’re not too worried about it. 
    We’ll see how things continue, I’ve only had 3 treatments total - 2 regular and one double. I just hope the math works out that it ends up being the same treatment in the end. 
    I’m sure I’ll be in here lots with questions as things move along. I’m not too sure what to expect side effects wise, it seems like some of you had some and some hand none! 
     
  25. Like
    Lindsay got a reaction from Opal in Durvalumab   
    I am so happy I found this group, thank you all for the support and responses to my concerns. 

    I look forward to continuing reading all of your experiences and sharing mine along the way. It’s nice to have the support of those going through or who have gone through the same thing. 
     
    treatment number 4 will be in a couple weeks for me. Fingers crossed the blood work is good and we can keep going! 
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