catlady91

My mum doesn't have COVID. She says that a lot of her friends have been feeling unwell as well. 

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

My mum doesn't have COVID. She says that a lot of her friends have been feeling unwell as well. 

The Polish GP who had the scan didn't know my mum's history plus she made a mistake about which lung it was. Apparently she told my mum it was bad news and slammed the phone down! What terrible bedside manners!
Luckily my mum went to the pulmonologist and oncologist (still in Poland) which she booked before. He received my mum's x-ray from the GP and said it was nothing concerning especially when my mum explained her history to him. He said that there's nothing in the left lung and there's scarring in the right lung (which my mum's oncologist in the UK told her she had anyway from the radiation) and with my mum's treatment history, nothing to be too concerned about. 
He also heard of the hospital that my mum is under in the UK- he worked there for a few months and sung it's praises (my mum is under one of the best and most specialist cancer centres in the UK). He said if there was anything they would have picked it up.
He did say that my mum has a chest infection (she sounded dreadful when I spoke to her and kept coughing) and gave her antibiotics. He was surprised that GP didn't give her antibiotics. 

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

My mum doesn't have COVID. She says that a lot of her friends have been feeling unwell as well. 

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

My mum doesn't have COVID. She says that a lot of her friends have been feeling unwell as well. 

What a relief! So happy for you both. 

Isn’t it horrible when some doctors make mistakes or treat patients inhumanely?! I can never understand bad bedside manners, they can break one’s spirit sometimes. Glad your mom saw a more competent specialist and she was reassured. Hope her infection is minor (did she get a COVID test)? Best wishes.

The Polish GP who had the scan didn't know my mum's history plus she made a mistake about which lung it was. Apparently she told my mum it was bad news and slammed the phone down! What terrible bedside manners!
Luckily my mum went to the pulmonologist and oncologist (still in Poland) which she booked before. He received my mum's x-ray from the GP and said it was nothing concerning especially when my mum explained her history to him. He said that there's nothing in the left lung and there's scarring in the right lung (which my mum's oncologist in the UK told her she had anyway from the radiation) and with my mum's treatment history, nothing to be too concerned about. 
He also heard of the hospital that my mum is under in the UK- he worked there for a few months and sung it's praises (my mum is under one of the best and most specialist cancer centres in the UK). He said if there was anything they would have picked it up.
He did say that my mum has a chest infection (she sounded dreadful when I spoke to her and kept coughing) and gave her antibiotics. He was surprised that GP didn't give her antibiotics. 

That's brilliant news I'm so happy for you both,its so stressful 
Take care Justin x 

The Polish GP who had the scan didn't know my mum's history plus she made a mistake about which lung it was. Apparently she told my mum it was bad news and slammed the phone down! What terrible bedside manners!
Luckily my mum went to the pulmonologist and oncologist (still in Poland) which she booked before. He received my mum's x-ray from the GP and said it was nothing concerning especially when my mum explained her history to him. He said that there's nothing in the left lung and there's scarring in the right lung (which my mum's oncologist in the UK told her she had anyway from the radiation) and with my mum's treatment history, nothing to be too concerned about. 
He also heard of the hospital that my mum is under in the UK- he worked there for a few months and sung it's praises (my mum is under one of the best and most specialist cancer centres in the UK). He said if there was anything they would have picked it up.
He did say that my mum has a chest infection (she sounded dreadful when I spoke to her and kept coughing) and gave her antibiotics. He was surprised that GP didn't give her antibiotics. 

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

Catlady,
This is great news! It's always good to let the present medical team who knows the patient best make determinations.  I'm so glad to hear this.  Thank you or the update.
Lou

Hi June, we all know what a shock it is to be diagnosed. I certainly was shocked when I was told I had Stage IIIB lung cancer in October 2019. 
It's important to have your biomarker test results when your treatment plan is established. You may have a genetic mutation that can be treated with a targeted therapy drug. My mutation is EGFR Exon 19 deletion and I take a daily pill. There are many Stage IV patients who are doing well for a long time. I've had No Evidence of Disease since April 2021 and although I'm not cured, I am healthy. 
So don't listen to Dr. Google and consider virtually attending LUNGevity's upcoming International Lung Cancer Survivorship Conference, where you can learn a lot in a short amount of time. 
Let us know how things go. Hang in there and try not to get ahead of yourself. 

I had my 3-month MRI this past Monday and saw the onc. radiologist today. There's nothing new to report-- YAY! The ring around the lesion they zapped is fading & breaking up. The little spots they are watching are so small they have a hard time finding them, but the head of the gamma knife program and my radiologist think they're probably just blood vessels. 
My pulse ox was 99! 
The conversation with her is always interesting. She says I've had a superb response to chemo rads and immunotherapy. But, I said, I had barely 25% of the protocol treatment for immunotherapy (Pacific Study.) She said they aren't terribly clear about how much immunotherapy it really takes to jumpstart the immune system. And, she also said she suspected the brain had already been seeded prior to any treatment. But, I said, it's my understanding that EGFR mutated lung cancer doesn't respond to immunotherapy. No, she said, according to Pacific Study treatment protocols, EGFR-positive patients had no difference in response than patients with non-EGFR mutated lung cancers. Which doesn't give you a complete picture because she didn't put her statement in context of total results, but it sounds nice. 
She also took a look at my most recent CT scans of the lungs The only thing to see is ongoing scarring from treatment and pneumonitis, and that may disappear or maybe it won't. 
Pretty amazing, right? I am feeling very, very grateful. 
 
 

Great news on the chest/abdomen scans and worthy of some celebration.  A 3mm met is quite small and should respond well to focused rad treatment.  So many here speak highly of cyber knife results.  Please keep us updated on this.  I want to get to where you can celebrate on both chest/abdomen and brain met frying.  
Lou

That is great news! What a scare, though. I'm so glad everything turned out OK!

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

My mum went to a pulmonologist and oncologist in Poland about her scan and he said that everything is ok and that there's nothing in the left lung (the radiologist made a mistake about which lung it was) and in the right lung there's scarring from the radiotherapy which is normal and my mum's oncologist back at home mentioned she had scarring from the radiotherapy anyway. Such a relief! So there's no need for my mum to have a CT scan right away and she can wait until her scheduled monitoring routine CT scan at the end of November. 

I had my first PET Scan yesterday since beginning my treatments (4 cycles of Carboplatin, Alimta and Opdivo). I received some pretty good results this afternoon. The main tumor shrank from 3.4 x 3 cm down to 1.9 x 1.7 cm. The SUV (activity level) went from 20.6 down to 12.7. The hip spot is harder to measure because of scar tissue, but the SUV there went from 9.3 to 1.9. I can’t tell you how relieved I am that things seem to be going in the right direction. Feeling much more hopeful today!
I now have an appointment on the 28th with a thoracic surgeon. I am frankly surprised that they are considering a lobectomy since I am Stage 4. But my oncologist explained that I am what he calls Stage 4 “with an asterisk”. Since it is not in any of the lymph nodes in the middle of my chest, and is only in one other spot, the small hip lesion, they want to be aggressive and think that a lobectomy will give me the best chance. I myself, like this aggressive approach. Could there be any down side to it?
He also recommended a radiologist to meet with to plan for doing radiation treatments on the hip. This would be done after the surgery though.
I will continue monthly infusions of Opdivo, as long as I can tolerate it (up to two years). Might have to switch at some point though, since I’ve already been having a reaction to it. We’re hoping to keep it manageable as long as possible.
All in all, I'm feeling very thankful tonight. I know I still have a long way to go, but at least things seem to be going in the right direction for now.
Thanks to everyone for your support and encouragement! And especially for your messages of HOPE! 
June

You are correct that the doctors don't know your mom's treatment history so a follow up with a CT Scan really is recommended here so you can be sure of what is going on.  Your mom is in my prayers for a good outcome.
Lou

Praying that there is just suspicion caused by her cold and nothing more. I agree that she should get imaging results to show her drs at home. Praying for you both.

I'm just hoping that it's nothing sinister and just scarring from the radiation. The doctors on Poland don't know my mum's history or have her previous scans.