catlady91

I'm really sorry to hear this Justin. Doctors are sometimes quick to give up. I read from your earlier posts that you have a KRAS mutation. I looked up more about it and there's this drug available for it. I'm not sure if it's available on the NHS but it's worth looking into.
https://www.onclive.com/view/adagrasib-provides-new-option-for-patients-with-kras-g12c-mutant-nsclc

I'm really sorry to hear this Justin. Doctors are sometimes quick to give up. I read from your earlier posts that you have a KRAS mutation. I looked up more about it and there's this drug available for it. I'm not sure if it's available on the NHS but it's worth looking into.
https://www.onclive.com/view/adagrasib-provides-new-option-for-patients-with-kras-g12c-mutant-nsclc

I'm really sorry to hear this Justin. Doctors are sometimes quick to give up. I read from your earlier posts that you have a KRAS mutation. I looked up more about it and there's this drug available for it. I'm not sure if it's available on the NHS but it's worth looking into.
https://www.onclive.com/view/adagrasib-provides-new-option-for-patients-with-kras-g12c-mutant-nsclc

I'm really sorry to hear this Justin. Doctors are sometimes quick to give up. I read from your earlier posts that you have a KRAS mutation. I looked up more about it and there's this drug available for it. I'm not sure if it's available on the NHS but it's worth looking into.
https://www.onclive.com/view/adagrasib-provides-new-option-for-patients-with-kras-g12c-mutant-nsclc

My CT with contrast happened Monday, I received results Monday afternoon, and met with the oncologist today. 
The scan indicates that my situation is stable. 
My oncologist says I can go from scans every two months to scans every three months. 
Brain checkin next month. 
I am very very grateful.

Good luck with the call and let us know how it goes. Not all treatment centres are focused on research, so it can’t hurt to ask. I’ll keep you posted.
 

Hi Justin,
Can’t blame you for feeling anxious and out of sorts. Sounds to me like your medical team has left you in a weird limbo.
I think LilyMir has a point, and you/your family could try to ask about trials and/or contact for example the research team at UCLH to see if there is anything going? There are so many trials in progress, including a fair few for heavily treated LC patients. I have an appointment on Monday and could ask for you if you’d like?
Apart from that, hope you are getting through this rough time ok. Rikke

Well there's your answer Jus xx your not about to die, your knackered because your body has been through masses of trauma and you had a huge seizure which you were lucky to survive but you did !! Your body now needs to relax  that's how you repair,  you've not slept for such a long time you have a lot of catching up to do, you should stop googling everything cause you then only see the bad bits, once you gain some strength back you'll start to feel better but not with a negative attitude, you have to have the will to live, I know you've got it in you so let's see it,  I'm convinced you can do this so let's show em eh ! Xxxx love you so so much Jus xxxxx Mum xxxx 

Izzy,
Justin is part of our family and when one of us suffers we all feel it.  Our prayers go out for him, but also for you and the rest of his family.
Lou

Just a quick message to thank you all soo much for the love and support you are giving to Jus, he so needs it at the moment cause things are really tough for him, but he's a fighter as we all are too and we're not about to let him go, so thanks again it means the world to him as it does to me, it's tough being a mum and seeing you child in so much pain but I'm tough too so this cancers got a fight on its hands, thanks again and lots of love and strength back to you all xx Isla xxx 

I'm so sorry to hear this Justin but I agree with the others. So many people have been told they have weeks or months to live but they prove the doctors wrong. Do they know if the treatment is having any effect? Have you had any scans? How can they tell you that you have weeks if they don't know whether or not the treatment is working? 

Jus !! Not a chance that your going anywhere I won't allow it, your tough and your a fighter, we will never give up, where there's life there's hope, your not down n out yet and your not gonna be, they get stuff wrong all the time and they have this time !! You'll see it's a rough patch but one we can come through, come on let's show em what we're made of and kick this cancer into outer space xx I love you so very very much and I'm not prepared to lose you any time soon xxx If others can do it so can we xxx Love you sweetheart always xxxxxxx Mum xxxxxxx

Hi lily and pam
I'm not doing so well really I had a 35 minute seizure and rushed to A&E yesterday, I wasn't expected to come out of it, the swelling has got worse the oncologist has put the steroids up, and she said that I've only possibly got weeks to live but I'm determined to prove her wrong. I do have a wheel chair coming, hopefully then I can get out and make some memories with my family, I hope that you both are doing well, I just hope that I can beat this for a little bit longer, I'm devastated because of all the fighting I've done, seems as though nothing has worked. All the best Justin x 

Hurray for mum!

Thanks mum 
I couldn't have done any of this without you all with me, thank you for everything love you loads xxxx 

Wow !! At last the good news that you so deserve Jus, it's been a tough 18 months without a lot of respite, you've been incredible in your unwavering response to all the gruelling treatments they've put you through but you've kept going throughout, we are all so very proud of you and  your bravery and courage, time now for a well deserved break and a bit of you time, also thanks to all of you on this incredible forum for all your love and support you've shown my wonderful son it means so very very much to us all as this is a very lonely journey for him even tho we are all here around him, and Jus I Love you so so much and you've  got this xxxx all my love xxxx Mum xxxx

Hi chuck 
Thank you for your message it means a lot knowing that people care, hope your well take care Justin 

Hi Monica and rikke 
Thank you for your messages and your support take care Justin x 

I'm so so pleased for you Justin. Your news has made my day, well evening 😊. It seems like there's every reason to be hopeful. I'm glad that you're getting some of the feeling back on your right side. This seems very encouraging. I'm hoping that they'll be more good news to follow ❤️.

I'm so so pleased for you Justin. Your news has made my day, well evening 😊. It seems like there's every reason to be hopeful. I'm glad that you're getting some of the feeling back on your right side. This seems very encouraging. I'm hoping that they'll be more good news to follow ❤️.

I'm so so pleased for you Justin. Your news has made my day, well evening 😊. It seems like there's every reason to be hopeful. I'm glad that you're getting some of the feeling back on your right side. This seems very encouraging. I'm hoping that they'll be more good news to follow ❤️.

Justin,
Great new to hear.  You deserve good news and you got it.  The hair will grow back, but making progress on all fronts is a super thing to hear.
Lou

Hurrah! What a good report, Justin. I'm glad you can take a moment and think about what's next. 

Hi everyone 
Just an update on todays results from the body ct scan and there is no spreading of the cancer and the original lung cancer is still stable,finally some good news, I also have better movement in my right side now I think it's down to building up my strength again, the oncologist thinks there is no hurry to start chemotherapy yet because everything is starting to get better,but if it does start getting worse again I'll have to up the dose of steroids and start chemotherapy sooner, 
I really hope the whole brain radiotherapy treatment has done its job they said it will take around 12 weeks, my hair is still falling out badly but I have been referred to a hair loss person about having a wig made, 
So all In all a really good day and atleast no extra cancer to deal with so I can concentrate on trying to fight the brain cancer 
All the best Take care Justin x 
 

That is great news!