[My updates (22 Years old, NSCLC)]

@AleHondaa good for you! On both The trade school and the attitude change. I am working on mine (attitude). 

[Are there any Hospice Nurses on this site?]

@allie0318 I'm sorry for the loss of your father. Please forgive yourself self. My brother was a cardiologist and said sometimes, the patient would wait...for the loved one to fall asleep, get a coffee, step in the hall to take a call. He knew.

[My updates (22 Years old, NSCLC)]

I'm sorry Alex. I know that feeling all too well. What mutation do you have and what targeted therapy drug?

[My updates (22 Years old, NSCLC)]

I was also told that the side effects were cumulative, but from the standpoint that your body doesn't have time to fully recover (think all the blood tests they do before the infusion). 

My SILs mom had Glioblastoma. She was told to double flush each time she used the bathroom.

[Any Pancoast survivors/stories?]

@huj123 The side effects from the radiation are gone now. It took several weeks on steroids. I also wish there was some way other than a scan to see whether or not the therapy is working.

Patience has never been my strong suit. I am trying to work on that. 

Keep us posted!

[Any Pancoast survivors/stories?]

@huj123

I was 61 when diagnosed with Stage IV nsclc this past June. I had started going to physical therapy for shoulder pain. I had had an xray and MRI of my shoulder and neck and was told it was my neck causing the pain. In the middle of ame back inconclusive. The second was EBUS, which is a broncoscopy guided by ultrasound. We knew it was adenocarcinoma after that. I had a PET scan and that is when it was determined to be in my shoulder blade as well.

While we waited for the biomarker results, I had 10 radiation treatments to the main lung tumor and my shoulder. It helped immensely with my shoulder pain. And my lung as well. But I did end up with difficulty swallowing and radiation pneumonitis (kind of like pneumonia but caused by the radiation). Those side effects depend on the location of the tumor in your lung. And minecwas in the right lower lobe. 

It totally caught us off guard too. 

Will be thinking of you and your mom.

Jenny