Jennedy

@AleHondaa good for you! On both The trade school and the attitude change. I am working on mine (attitude). 

@AleHondaa good for you! On both The trade school and the attitude change. I am working on mine (attitude). 

Hey all,
I just got my second out of four infusions done yesterday with enhertu. Like last time this treatment shouldn’t be too hard on me like chemo was. I have been able to work and do thing I use to do like go to the gym and work on my project car. I forgot to mention I’m going to trade school! One thing I have learned with this disease is that it can beat you to the ground and keep you there if you let it, which had happened to me. Not being able to work, being stuck at home 24/7 and stuck in that neck brace threw me into a bad depression. But I realized what cancer was doing to me and I fixed it right away. Now a days I’m doing better and my neck injury has been as well. I look forward to good news my way because I know I’m due for it. Hoping this treatment works in my favor, I have a feeling it will. I hope each and everyone has been doing good and has had good things come there way in life. If not, I’m sorry but keep your head up because it does get better. ❤️

Hey all, 
Quick update, I’ve been pretty good. I’ve managed my nausea with an anti acid pill I was prescribed. Other than that life has been pretty normal as it gets, no sickness or anything. I’ve been working again as well, I’m just waiting for my next infusion. Hopefully y’all are good and good news has come yall way. 

Hey all, 
Treatment with the new drug starts today. I found out it’s called enhertu and it targets the mutation in my blood to kill it off or put it under control. Let’s hope it works and does the trick! 

Hey all, 
Quick update on my targeted therapy. It was accepted by insurance and I’ll be starting tomorrow. Let’s hope this does the trick and controls this thing! 

KM_NRP,
Thanks for your update. I was wondering where you were in your treatment and how things are going for you. Side-effects are the real down side to chemotherapy. I like to think of the magnitude of effects this way: if this stuff makes me feel so lousy, imagine what it is doing to my cancer cells!
Stay the course.
Tom

I forgot the name of the drug but it’s used against breast cancer and colon. My mutation is HER-2. It’s a targeted therapy against that mutation.

Hey all,
I’ve been doing much better mentally. Going to therapy has helped a lot and my therapist has seen Improvements within the last week. I’ve gotten back into my main hobby which is building my project car and it’s brought me happiness. 
 
In other news my scans where yesterday and most likely will be told the results today. I’m very nervous of the results but I know in my gut I’m due for good news so let’s hope for something good from the treatments. My 3rd infusion is today as well, after this one more left before I’m just left on immunotherapy. 
 
I want to thank y’all for being there for me when I’ve most needed it and this time I’ve hit my worst. I know I don’t post much or check the community that much either but I hope each and everyone of y’all has received good news lately. ❤️

I am also free!! My cervical collar is officially off after it’s 2 month stay. I have a really bad ache on my neck but it’s to be expected when my muscles around my neck haven’t been used a long time period. 

Welp, headed to the hospital for a high fever. Hopefully I ain’t there for long. 

Well, I would think this is day 2 after infusion and so far I feel fine. A tad bit of fatigue nothing bad. I had a bonfire last night and i stayed out late which I think gave me a sore throat unless that’s a side effect. I have noticed a little bit changes in taste, very slight changes but I have noticed. I mean it’s to early to tell but I think I’ll be fine through this, but we’ll see on the upcoming days. I’ll give you guys an update or question when I have one. For now I’m going to rest and maybe enjoy the nice warm day, go for a drive maybe. 
 
Thank you guys again for being there for me with all this. The information and support definitely helps me out so much. I stopped using Reddit since there was so much negativity on there and I never see that here. Thanks again for being here ❤️

About  Neulasta:  About 10 years ago I had Neupogen during treatment for a non-lung cancer. After each infusion I had to give myself daily shots for several days  Neupogen is a long-acting form of Neulasta, so you only have to have one shot after each infusion. Thte side effects of the two meds are pretty much the same, since they're the same durg.  The most common side effect is bone pain. I had  NO side effects at all. There  is some evidence that Neupogen is a little less likely to cause bone pain, but I don't know anybofy else that's had Neupogen.  I think that it's not given much, maybe they think iit's too hard for people to give shots to themselves. I guess they figured I was a tough old bird and could manage it.
One more thing. The reason Neupogen ie given is to prevent neutopenia (low neutophis, a type of white blood cell that fights infection.) Witth low neutrophils, your can easily get an infection not only  from  bacteria in the environment, but also from the bacteria that normally live on our skin or in our digestive tract. These  infections can become life-threatening quickly . Fever is often the only symptom.  So if you develop fever during chemo, contact your doctor or emergency room immedately. Don''t 'wait until morning". Most people on chemo get this advice but some don't, or don't take it seriously or it gets lost in a bunch of other  nfo.
Fortuately  I got the info. I had neutorpenia and had to go the ER twice. The second time, my neutrophils were zero. I got antibiotics and was okay.

I was also told that the side effects were cumulative, but from the standpoint that your body doesn't have time to fully recover (think all the blood tests they do before the infusion). 
My SILs mom had Glioblastoma. She was told to double flush each time she used the bathroom.

I’m getting the treatment! I’m only on the chemo for 4 more times and afterwards will be just keytruda. Hopefully this does the truck and gets me going. 

Hey y’all,
Hopefully today will be the day I start treatment. I gave it another week for my platelets to come up so hopefully they’re up. Again I’m a lot more mentally prepared and ready for what comes my way. Wish me luck! 

Sorry I'm so late to the party here, but I'm moving to a smaller house on the 27th and I've been poring over, donating and throwing out stuff my wife and I had gathered over 44 years together...

I'm so glad to hear that you are in your treatment program and sorry to hear about the side effects.  Your attitude is a great one though (could be better, could be worse) and will help you more than you know. I personally have not had chemo of any kind, but many here talk about keeping a journal of their treatment so they can more accurately help the doctor determine all the data around symptoms and side-effects as their treatment progresses.  That may help you.  And researching is fine, but I would stay with souces like Lungevity as it is focused on your key disease and may be more updated and relevant than much of what is out there.
Please keep us posted and know that our thoughts and prayers are going out to you.
Lou

Starting my first round of treatments today. Wish me luck, a lot more mentally prepared this time. 

Hi there,
I was on the same "triplet" of drugs your mom will be getting. The carboplatin is included only for the first four cycles, but the Keytruda and Alimta (pemetrexed) I'm getting every three weeks now, as maintenance therapy, indefinitely.
So yeah, what's being recommended for her is in line with what I, and others here, have been getting. 

UPDATE: as of Tuesday March 30. 2021
After meeting with Thoracic Surgeon and Med Onc I have a game plan.
Surgeon made it Stage 3A.  He is doing a Mediastinoscopy Friday to make sure everything is clear and nothing missed on the PET.
Then do Chemo - Once very 3 weeks with 4 treatments total.
Break for 4-6 weeks then
Lobectomy (RLL)
Depending on EFRG, maybe a medication daily forever.
Note: Chemo will be Alimta and Cisplatin
I still feel fine, except a bit anxious that my PCP noted.  LOL 
OH and in the folder of support information from Hershey Med Center, there was a thing about Lungevity for support.
~Kris
 

@huj123 The side effects from the radiation are gone now. It took several weeks on steroids. I also wish there was some way other than a scan to see whether or not the therapy is working.
Patience has never been my strong suit. I am trying to work on that. 
Keep us posted!

@huj123
I was 61 when diagnosed with Stage IV nsclc this past June. I had started going to physical therapy for shoulder pain. I had had an xray and MRI of my shoulder and neck and was told it was my neck causing the pain. In the middle of ame back inconclusive. The second was EBUS, which is a broncoscopy guided by ultrasound. We knew it was adenocarcinoma after that. I had a PET scan and that is when it was determined to be in my shoulder blade as well.
While we waited for the biomarker results, I had 10 radiation treatments to the main lung tumor and my shoulder. It helped immensely with my shoulder pain. And my lung as well. But I did end up with difficulty swallowing and radiation pneumonitis (kind of like pneumonia but caused by the radiation). Those side effects depend on the location of the tumor in your lung. And minecwas in the right lower lobe. 
It totally caught us off guard too. 
Will be thinking of you and your mom.
Jenny

@huj123 The side effects from the radiation are gone now. It took several weeks on steroids. I also wish there was some way other than a scan to see whether or not the therapy is working.
Patience has never been my strong suit. I am trying to work on that. 
Keep us posted!

@huj123
I was 61 when diagnosed with Stage IV nsclc this past June. I had started going to physical therapy for shoulder pain. I had had an xray and MRI of my shoulder and neck and was told it was my neck causing the pain. In the middle of ame back inconclusive. The second was EBUS, which is a broncoscopy guided by ultrasound. We knew it was adenocarcinoma after that. I had a PET scan and that is when it was determined to be in my shoulder blade as well.
While we waited for the biomarker results, I had 10 radiation treatments to the main lung tumor and my shoulder. It helped immensely with my shoulder pain. And my lung as well. But I did end up with difficulty swallowing and radiation pneumonitis (kind of like pneumonia but caused by the radiation). Those side effects depend on the location of the tumor in your lung. And minecwas in the right lower lobe. 
It totally caught us off guard too. 
Will be thinking of you and your mom.
Jenny