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RH1970

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  1. Like
    RH1970 got a reaction from Sheryl E in Biopsy confirmed Stage IIIb Non-Small   
    Thank you all so much for the support!
    This is definitely a hard time, but I'm determined to get to that place of being 'sanguine' as soon as I can..for myself and for my family.
    Michelle, Once I get my biomarker test back and see what options I might have, I may reach out to Mass General to see what they have to say.  I'll also look into the groups.  Thanks for the tip.
    Tom, I'll let you know what radiation technique the doctor referred to when I talk to her next week.
    GaryG, I've heard many amazing things about immunotherapy.  It is definitely a comfort to know that IIIb-ers are out there fighting the good fight.
    -Rick
  2. Like
    RH1970 got a reaction from Tom Galli in Biopsy confirmed Stage IIIb Non-Small   
    Thank you all so much for the support!
    This is definitely a hard time, but I'm determined to get to that place of being 'sanguine' as soon as I can..for myself and for my family.
    Michelle, Once I get my biomarker test back and see what options I might have, I may reach out to Mass General to see what they have to say.  I'll also look into the groups.  Thanks for the tip.
    Tom, I'll let you know what radiation technique the doctor referred to when I talk to her next week.
    GaryG, I've heard many amazing things about immunotherapy.  It is definitely a comfort to know that IIIb-ers are out there fighting the good fight.
    -Rick
  3. Like
    RH1970 got a reaction from Tom Galli in Biopsy confirmed Stage IIIb Non-Small   
    Just got home from Roswell Park CCC in Buffalo carrying some bad news.
    The biopsy confirmed that the 2.5cm nodule and lymph node(s) are positive for cancer.  The doctor says it's stage IIIb Non-Small.
    I was so hoping that it was an infection, but I guess luck was not on my side this time.
    They will be scanning the tissue for gene mutations.  I am a never-smoker, so that increases the chances that there is some mutation that might allow me to take advantage of some of these new treatments.  But I understand that mutations are generally uncommon, so I may be looking at chemo/radiation.  My doc says that at Roswell they have some 'expiramental' radiation technique that she may push for.  I'm not sure exactly she was referring to.  But in general she said we would treat it aggressively since I'm relatively young (50) and in good health otherwise.  We will know more once the full biopsy report is available in week.
    Also, I have a second opinion in the pipeline from Memorial Sloan Kettering next week.
    I thank you all for the support and advice you've given so far.
    -Rick
     
     
     
  4. Like
    RH1970 reacted to LouT in Hi from Upstate NY - Possible Lung Cancer iii   
    Rick,
    Just throwing my hat in the ring to welcome you to the group and while I'm not a stage III survivor, I can tell you that we have them and they will be a great help to you along your journey.  I'll be here to provide any support I can to you as you face this.  The one thing I can tell you (regardless of stage) is that we were all in shock, thought the worst and bemoaned where we were.  But, this group has a great deal of experience and will be able to answer questions, provide insights and be a great sounding board for anything you want to share.
    Lou
  5. Like
    RH1970 got a reaction from Tom Galli in Not diagnosed but future looks ominous   
    Karen,
    I’m struggling with that ominous possibility too, so I know where you’re coming from.  Like the others have suggested, I think a PET scan would be the next step in figuring out what you’re dealing with, then on to a biopsy.  
     
    I may be simplifying It, but the way I understand it is that if a PET scan shows little or no uptake, the nodule is more likely benign.  However if it does show an uptake, malignancy is still a possibility, and so a biopsy is then needed.
     
    I’ve also come to understand that an PET scan uptake still doesn’t necessarily mean malignancy.  It could also still mean some kind of infection.
    In the end only way to confirm what you’re dealing with is a biopsy.
     
    I’ve moving on to a biopsy next Friday, but until then, I’m trying not to draw any dire conclusions.  It’s definitely hard, but I’m trying.
    The people in this forum are a BIG help.
    Good luck and keep us posted.
    -Rick
     
  6. Like
    RH1970 got a reaction from BridgetO in Not diagnosed but future looks ominous   
    Karen,
    I’m struggling with that ominous possibility too, so I know where you’re coming from.  Like the others have suggested, I think a PET scan would be the next step in figuring out what you’re dealing with, then on to a biopsy.  
     
    I may be simplifying It, but the way I understand it is that if a PET scan shows little or no uptake, the nodule is more likely benign.  However if it does show an uptake, malignancy is still a possibility, and so a biopsy is then needed.
     
    I’ve also come to understand that an PET scan uptake still doesn’t necessarily mean malignancy.  It could also still mean some kind of infection.
    In the end only way to confirm what you’re dealing with is a biopsy.
     
    I’ve moving on to a biopsy next Friday, but until then, I’m trying not to draw any dire conclusions.  It’s definitely hard, but I’m trying.
    The people in this forum are a BIG help.
    Good luck and keep us posted.
    -Rick
     
  7. Like
    RH1970 got a reaction from Rower Michelle in Not diagnosed but future looks ominous   
    Karen,
    I’m struggling with that ominous possibility too, so I know where you’re coming from.  Like the others have suggested, I think a PET scan would be the next step in figuring out what you’re dealing with, then on to a biopsy.  
     
    I may be simplifying It, but the way I understand it is that if a PET scan shows little or no uptake, the nodule is more likely benign.  However if it does show an uptake, malignancy is still a possibility, and so a biopsy is then needed.
     
    I’ve also come to understand that an PET scan uptake still doesn’t necessarily mean malignancy.  It could also still mean some kind of infection.
    In the end only way to confirm what you’re dealing with is a biopsy.
     
    I’ve moving on to a biopsy next Friday, but until then, I’m trying not to draw any dire conclusions.  It’s definitely hard, but I’m trying.
    The people in this forum are a BIG help.
    Good luck and keep us posted.
    -Rick
     
  8. Like
    RH1970 reacted to Rower Michelle in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick, 
    The reeling, oh yeah.  It's real and normal.  I did see the oncology psychologist for a little while, but found it hard because he was 30 something couldn't really relate however I do find the Living with Lung Cancer Support Group to be really helpful.  You might ask the clinic social worker about it since most groups are meeting by Zoom. 
    I have an Integrative Oncologist who gave me a real sense of confidence that I could do this.  There were a few books that helped give me a road map on how to cope: 
    AntiCancer Living by MD Anderson's Lorenzo Cohen PhD
    Cancer: 50 Essential Things to Do by Greg Anderson
    Viktor Frankl's: Man's Search for Meaning, a real inspiration for survivorship against all odds. 
     
    I guess the most important thing I learned is to give myself permission to mourn and  adapt to a new normal.  Brighter days are coming. 
    Michelle 
  9. Like
    RH1970 reacted to Susan Cornett in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick - 
    I see that you've already had a very warm welcome from the others. There is so much good information and wisdom here. The site has been a saving grace for me. We're all here to support you in any way that we can. 
  10. Like
    RH1970 got a reaction from Judy M2 in Hi from Upstate NY - Possible Lung Cancer iii   
    Thanks Judy,
    Yes, this is all so hard to believe.  
    After talking it over with my wife, I think I’m considering counseling to try to figure out how to cope with this better.  Right now, I’m reeling and I haven’t even been diagnosed yet.
     
    I need to find some of that magic that thrivers seem to possess.  I sincerely don’t understand where that comes from.

    I remember from the Prostate Cancer experience, once a treatment plan was determined, I felt a HUGE sense of relief.
    You’re right, though.  This site does help, and the newly approved treatments do offer some encouragement.  Who knows what may come in the next couple of years.
    Thanks for posting.
     
    -Rick
  11. Like
    RH1970 got a reaction from Tom Galli in Hi from Upstate NY - Possible Lung Cancer iii   
    Thanks Judy,
    Yes, this is all so hard to believe.  
    After talking it over with my wife, I think I’m considering counseling to try to figure out how to cope with this better.  Right now, I’m reeling and I haven’t even been diagnosed yet.
     
    I need to find some of that magic that thrivers seem to possess.  I sincerely don’t understand where that comes from.

    I remember from the Prostate Cancer experience, once a treatment plan was determined, I felt a HUGE sense of relief.
    You’re right, though.  This site does help, and the newly approved treatments do offer some encouragement.  Who knows what may come in the next couple of years.
    Thanks for posting.
     
    -Rick
  12. Like
    RH1970 got a reaction from Tom Galli in Hi from Upstate NY - Possible Lung Cancer iii   
    Thanks Babs,
    I need to find those special tools to keep hope up.  They don’t come naturally for me.  This forum definitely helps though.  Thanks for your support. 
     
    -Rick
  13. Like
    RH1970 reacted to Judy M2 in Hi from Upstate NY - Possible Lung Cancer iii   
    Rick, 
    I was also shocked at my diagnosis of Stage IIIB NSC adenocarcinoma in November 2019 at age 66. I went through 30 sessions of radiation, weekly chemo for 6 weeks and am now on the targeted therapy Tagrisso. I had it tough for about 6 months but am feeling good now and my scans are showing continued improvement.
    I look at the folks in these forums as inspiration for survival, especially since there has been so much advancement in treatments. There's a lot to learn, especially when your biomarker testing comes back. This site certainly has something for everyone, and the survivors can appreciate how you're feeling along the way. 
    You can get through this even though it might be hard to see that now. 
    Best, Judy
  14. Like
    RH1970 reacted to Babs in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick,
    Welcome.  I was diagnosed with stage iii NSCLC squamous in August 2019  I could not have surgery because of the location of the mass.  It’s in the mediastinum and occluding the Superior Vena Cava vein.  I did 6 weeks of radiation with weekly chemo.  I then went on a maintenance of Durvalumab every 2 weeks.  I was considered NED (no evidence of disease) for 8 months until a recurrence in the same location.  No metastasis.  I am waiting for my bio marker testing to come back, however with my kind of cancer, squamous, it’s unlikely there are any mutations.  I started treatment again a week ago.  2 kinds of chemo and another immunotherapy drug.  I will find out in about 6 weeks if it’s working or not. 
     
    I too was devastated with my diagnosis.  Once you have your biopsy and can get some definite answers, you will have a plan and the start you need to fight this.  Please don’t lose hope and please stay off google, instead read here all of the survivor stories just like you.  It’s helped me a great deal.
    Babs
  15. Like
    RH1970 reacted to LexieCat in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi, Rick,
    Welcome from me, too. I had a Stage Ib lung cancer surgically removed three years ago, have had clean scans till the most recent, which biopsy has confirmed is Stage IV. I'm hoping to have my treatment plan nailed down by the end of this week, but it looks like I'll be having some heavy-duty chemo plus immunotherapy (Keytruda), followed by radiation to my chest and a small bone met on my spine.
    You're in a great group--I've been a member since my first diagnosis and there's a lot of collective experience, wisdom, and support to be had here.
    Enjoy your camping trip--not my cup of tea, lol, but people who love camping really love it (so I'm told).
     
  16. Like
    RH1970 reacted to Rower Michelle in Hi from Upstate NY - Possible Lung Cancer iii   
    Hi Rick,
    Yes, Roswell is a Comprehensive Cancer Center.  CCC’s generally do a very good job of coordinating care teams & procedures.   
     
    Depending on the biopsy results, if there is something called a mutation (for example EGFR, ALK, ROS1 are most common) detected in the biomarker testing you may also want to consult with Mass General, even though it’s a major haul, MGH does a lot of research & clinical trials with these types of mutations.   
     
    One of the things that really surprised me in the beginning is that lung cancer is rarely treated as an emergency.  Sounds bizarre right?   There’s plenty of time to consult with experts for a personalized treatment plan.   
     
    One hour, one procedure, one day at a time.  
  17. Like
    RH1970 got a reaction from LexieCat in NED by Email....   
    That's great news.  I'm happy to hear it.  Keep those NEDs coming!
    Thanks for everything.
     
  18. Like
    RH1970 got a reaction from Tom Galli in NED by Email....   
    That's great news.  I'm happy to hear it.  Keep those NEDs coming!
    Thanks for everything.
     
  19. Like
    RH1970 got a reaction from Rower Michelle in Hi from Upstate NY - Possible Lung Cancer iii   
    Thanks Tom.  That DOES help!  
    I’m still not officially staged.. one doctor says probably stage iii, the other says he thinks more like stage ii.  Biopsy (hopefully next week) will tell more.

    -Rick
  20. Like
    RH1970 got a reaction from Tom Galli in Hi from Upstate NY - Possible Lung Cancer iii   
    Thanks Tom.  That DOES help!  
    I’m still not officially staged.. one doctor says probably stage iii, the other says he thinks more like stage ii.  Biopsy (hopefully next week) will tell more.

    -Rick
  21. Like
    RH1970 got a reaction from GaryG in Hi from Upstate NY - Possible Lung Cancer iii   
    Gary,  Thanks for the encouragement.  I am a pessimist my nature, but in this case I will definitely try not to lose hope.  I have three young boys and you're right, the alternative is NO GOOD for anyone.  No sense if filling the room with tears and dread.  
     
    Diane, I wondered that too, but my PSA markers have been 'undetectable' since my operation in 2012. So I think PC mets is unlikely.  You're right:  the biopsy will tell all.  Thanks for the good luck wishes.  I'll keep you posted.
     
    -Rick
     
     
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