SteveD
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Everything posted by SteveD
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Tomm, No I don't know what the PDL-1 is. I didn't get a copy of my labs last time either. Hope to have a conversation soon with my doctor. What I do know is, I've had a bad reaction to this drug, and/or, my body must be stronger to withstand this treatment.
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The facts are out there. 36% of those receiving Durvalumab had to suspend treatment due to severe "side effects." Some studies put the number upwards of 42%. Pallative care, aka pain killers, does not appeal to me. Occasional use may be OK but the need for ongoing "pallitive care" is self-defeating, in my opinion. If I am one who cannot tolerate the drug, so be it. I'll wait to speak to my chemo doctor.
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RonH, That't what I'm thinking now. A further break to gain strength before I decide whether to forge ahead. The big question, is it really worth it if I am to be so miserable?
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Had my first Imfinzi treatment on Dec 3rd. My reactions were at least ten times worse than chemo (Carboplatin and Taxol) Fever, pounding headache, sinus neck and eye pain, joint pain, fatigue. I must reassess whether I can tolerate this for a year. One week later I am barely getting back to "normal" . While I have been hopeful I might regain my energy after chemo ended, unless there is a way to moderate this immunotherapy I think I'm going to have to stop it.
