elkiesmom
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Posts posted by elkiesmom
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What great news.prayers for another round of sucess
Lorrie
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"carolhg"]Lorrie,
Copy and paste this link from Dr. West's site he did a post on Pet scanning. It may give you some information.
http://onctalk.com/2007/01/09/pet-scanning-intro/
Carol
Thank you Carol.
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Thank you Kasey. I have been a very bad poster lately.I do read the board everyday though.
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Thanks Don, Trish and Libby
I must say that visit to the ONC today really thru Gary and myself. I really didn't know if it was good or bad.I am just so use to knowing about the Lungs but then he threw in abdomem. I am thinking what next. I was so glad that Gary's brain CT scan was ok lately he has been so forgetfull but he is also very busy at work and I do believe he has what is known as chemo brain.
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"Don M"]Sounds good to me Lorrie. my colon has always shown uptake, as it is supposed to do.
Don M
Thanks Don we were not told that. You have eased my mind a bit.I should say a lot.Our Onc told us he should have a consult with a gastro doc which we will.
Lorrie
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Everything is almost OK. They did find in the reports words an area of uptake in the right midabdomen laterally. They then say it might reflect physiologic uptake or prehaps inflammatory or neoplastic uptake. They also still see something in his thyroid but it has remained the same since last April and we have had an ultrasound and blood work and they have all came out fine. Every thing else is fine but we will be going to see a gastro doc next week. Our Onc does not seem concerned and he will see Gary in three months to review X Rays that will be taken prior.Forgot to add they also found a patchy white area in his left lower lung lobe but they think it is from an infection and did not light up on PET scan.His right Lung minus the upper lobe is great.
Lorrie
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Carol my husband also has the tightness and the scar feels like as my husband tells me ants running in the opposite direction when he touches it.He also had his surgery July 2005.The tightnes bothers him more then the so called ant feeling.
Lorrie
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My cousins husband Jim went to sloan yesterday and they agree with his onc in Conn. Today he will start Chemo Carboplatin, Gemzar and Avastin..Has anyone had this combination and what should he expect? I do not know how often or how long Jim will have this treatment. Diane just sent me a quick E mail on her way out with Jim to go to the first Chemo session. I put this in the first post but I am afraid it will get lost in the subject.
Lorrie
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My cousins husband Jim went to sloan yesterday and they agree with his onc in Conn. Today he will start Chemo Carboplatin, Gemzar and Avastin..Has anyone had this combination and what should he expect? I do not know how often or how long Jim will have this treatment. Diane just sent me a quick E mail on her way out with Jim to go to the first Chemo session.
Lorrie
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Dr West thak you. I thought I knew everything about lC since gary has gone through it.Surgery to take out his upper right lobe to remove a 10 cm mass and then he had the option for Chemo just in case.I am just so baffled by my cousins husband having so many tumors in his lungs. He had the follow up on after the colon and stomach surgery but was never offered chemo to kill any other cancer cell that might have been persent at the time nor had he ever had a pET scan. To me these are all safe guards and I wish his surgeon at sloan had been doing that for the last three years. I do know that my husband has been getting these scans every three months and even though it is scary everytime they do it when you get the ned you can relax and not worry for a few more months.Jim was only getting a colonoscopy (sp) and I feel that wasn't enough. I am sorry I am rambling but Jim is Young only 61 and I feel that this could have been prevented.
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"KatieB"]Alot of it depends on where the tumors are. They do do targeted radiation in some cases, but again, that depends on the size and location of the tumors.
Just recently I've learned from members here that there is great chance of heart damage, so this is probably why they are so cautious.
Once a CT and/or PET is done, you should have more information.
Hoping for the best, keep us posted.
Mary I guess you and a lot of the others are right about the rad. Jim did have the pet and ct scan and that is when the onc said no to rad. In his x ray it only showed a 2 1/2 mass but the pet showed them all.
Lorrie
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"marym"]Hi,
I think in general, lung cancer is not treater with radiation to the lung. I believe the harm done to the lung is unacceptable.
Good luck with your tests. Think positive.
Mary
Thanks mary but I can't help but think that they only did an x ray two months ago and even though it did not show anything we all know that sometimes x rays will not give a true pictureso this next pet and CT scan will show all.I have to reassure ny self that if they find anything it can be treated early but gary will be devestated. he thinks all is well.he is positive and I am a what if type of person.
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Has your cousin's husband had a second opinion yet?>>>>>>
No he hasn't that is why his other surgeon at sloan is going to look over all his test results and maybe suggest that Jim should come to Sloan where he had his other cancers treated.When Jim had the stomach and Colon surgery there they did get it all but didn't do a follow up with chemo like Gary did.Maybe they only do the follow up Chemo only for LC I don't know but we were told that even though they thought they got all the cancer and no lymph nodes were involved this was just a precaution so I do not see why they wouldn't do that for other cancers.
Lorrie
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Dihen That is what my cousin said also but when Gary had his surgery they said not to have rad only because it would melt the fat that they used in the resection of his bronchi tube. He did have Chemo after surgery just in case.
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My cousins husband had three years ago stomach and colon cancer. Surgery was done at sloan and they got it all. He now has LC nscle Adenocarcinoma (The smae as his stomavh and colon) and the pet scan shows many tumors in both lungs and a spot on his spine.He is devestated as is my cousin and all of us. His ONC that he just got wants to put him on chemo and was told they do not do RAD on the lungs is this true? Any help would be greatly appreciated. You have helped gary and myself so much in the past.I am so worried on two levels one is Jim and the other is Gary who so far is ned but he is going for his three month scans in Jan. It just seems like our family is falling apart since both my sil have had breast cancer also in the last two years.
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Thank you Ann for your kind words and prayers.
Lorrie
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I have not posted in awhile but I do read this wonderful board all the time.
My cousin's husband has just been diag with LC. A few years back he had stomach and colon cancer and he is fine and all tests show ned. This is a new primary cancer and if you pray for him I know it would help.I sent her this web site also and told her this site is by far the best around.You all have helped me so very much.
gary so far is doing fine and in sept for his three month scans showed ned. two weeks ago gary got a sore on the roof of his mouth and last week they have taken a biopsy of that and another lump in the same area. We will get the results friday.A little prayer would be appreciated for Gary also.
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Thank you Kasey.I am sure it is an age issue but post LC ya never know. BTW it is great being back again. I will be posting again when we get back home Gary and I both need this great board.
Lorrie
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Lilly even though Gary had great veins it soon got difficult to put the IV poison in him and he also had only one nurse that did a great job. He has said if he ever needs chemo again he will have a port. We could see how easy and fast things went with the one's with the port and the few without it.
Good luck.
Lorrie
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A little late but I hope you had a very happy B day.I hope all is well with you.
Lorrie
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I haven't posted in awhile I just needed a break. Gary and I are going to drive to NH tomorrow and visit with his brother and family for two weeks.I worry some because Gary's knee and hip hurt but the hip did hurt before being diag with LC. When we get back most of sept will be blood work,Xray this time ( wish it was a scan and then the results.My mental vacation is over and I look forward to be posting on this board again.
Lorrie
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What great news. Way to go. gee I can't say enough.
Lorrie
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Thank you all with your kind and heart felt words. We all need good news and I must thank you all for letting me share my news with you.
Love Lorrie
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Hi Lorrie,
Yes, I did read "Marley and Me" and it was very good! And also very funny, especially since I have had similar experiences with Ed, particularly with the chewing. Fortunately, Ed had outgrown that stage and is a great dog--so sweet, good with children and generally well behaved. He's been so great, too, in helping me through cancer just by being there. A lot of times if I've been crying, he will make these whining noises and then come lick my face!
I kind of spoil him--he gets just about whatever he wants
Dogs are the best medicine and I feel you cannot spoil them enough. They give you so much LOVE in return. You are their life.
fed up
in NSCLC GROUP
Posted
We went to the gastro doc yesterday and asked again what does an uptake in the mid abdomn upper right lobe UPTAKE being SVU 4.7 mean. His answer was don't know as was our primary's ans and ONC wouldn't say.I asked my brother last night ( he is a dentist in the navy and from what I told him he said a colonoscpy would not go up that high.All I want is a CT scan that was recommened on the scan report but nobody is hearing me.To me that would pin point any problems or am I wrong?
Lorrie