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TeamBurke

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  • Posts

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About TeamBurke

  • Birthday 04/02/1974

Profile Information

  • City
    Philadelphia
  • US State (if applicable)
    PENNSYLVANIA
  • Country
    United States
  • Gender
    Female
  • Status
    Not a patient
  • Interests
    NSCLC, EGRF, targeted therapy trials, progression, emotional support

Recent Profile Visitors

179 profile views
  1. Hi All, Thanks for asking about me, I JUST found out the results from my biopsy and it's benign! We really needed this win for the family. Now we can continue with our routine treatments and take some much needed breaths. I'm happy to have found my here. I wish you all a great weekend. Warmly, KB
  2. "Almost completely resolved" is great news! Jim's MRi also showed a rotator cuff in his shoulder issue which he needs to see an orthopedist for. Have you asked your docs about Xgeva infusions for your bones?
  3. Hi everyone, I'm very touched by the genuine warmth you've shown me since joining. Tom, Teri, Lou & Kristin thanks for all your support and outreach. I have joined the FB group, but believe it was for EGFR and Tagrisso most specifically. I will look again, the caregiver group will makes sense for me too. I'm happy to report that Jim had an amazing last appointment with his oncologist! He is responding so well to the Tagrisso and his largest tumor in his lung is about 3/4 smaller in just 6 months. The met to his brain has really cleared up as well, lots of shrinkage and many masses have disappeared in his lungs and brain. Jim's labs came back normal and he is steadily gaining weight. The Xgeva, his bone infusions, are working too. We were able to see his bones healing over in his scans and he can do more physically without being so high risk for fractures. Other than some rash like hives on his chest and what I call "Tagrisso toes" (purple dots) and dry skin, he is not seeing any serious side effects (yet) and doing all the things and more before we found out about this diagnosis. Our kids have been more anxious lately, our son especially is very worried for my upcoming biopsy this Tuesday. He has seen me go through surgeries and treatment and it's unnerving to have two parents with cancer. It's been emotionally difficult to juggle taking care of both the medical and emotional needs of my family. But I finally just got everyone set up in counseling/therapy and we try to be as open as we can about it without it taking over our lives. As Jim snow says "win the day" - that's what we all work on over here. Warmly, Kristina
  4. I'd love to have him join Tom, he's more reserved than me and so I'll have warm him up to the idea. Also I think he's quite nervous to read so much about his condition. I do all the researching and advocating for him right now, but he's getting better with speaking about it.
  5. Hi Everyone, First, thank you all for responding, your insight is invaluable to us. Judy: thanks for the recommended FB group to join, it's easy to get overwhelmed in looking for the right groups, articles, advice etc. Gary: I'm with you on fighting alongside your first love, it's heartbreaking, inspiring and exhausting all at once. May I ask what NED is? I'm guessing it's the next round of TKI medication? Tom: a former 215'er! We really are a "special" bunch here in Philly. 17 years, Congratulations! I will review your links more closely - thanks for including them. Lexi: Jim and I are both being treated at Perleman. One of us is always there. We live so close to Penn it's just a 10 min walk, which was suer helpful when I was going to radiation. Jim has gained 18 lbs. since August when he was diagnosed and I feel him well and often. His care team seems suer happy about his response to the Tag (I started a Tag Time Happy Hour) it's where friends and family think of us at 5:00 nightly (when Jim takes his Tag) and drink to Jim's health. I had no idea what it would become of it, but people always text, call and send funny videos etc - it has made us both feel less alone and who doesn't love positive vibes?) He has had 3 brain tumors disappear and the other are 3/4 to 1/2 the size they were. Hi lungs look like night and day since his 1st round of scans. I measure and obsess over the summery notes and images, I'll be a tech soon He receives bone injections and that too has helped heal over his fragile hip and spine. We even got the green light to do some skiing last month and it was wonderful to fill our lungs with fresh mountain air and feel normal for a few moments. For me they have found 2 new masses ( one lung and one breast) but they have just ruled out the lung as not a concern and I'm goin in 3/9 for another biopsy of the breast. THANK YOU TO YOU ALL! Feeling grateful to have found this group. Be well, KB
  6. Hi, I'm Kristina and new to this site and forums in general. So here goes... My 47 year old husband Jim, was diagnosed with stage IV lung cancer (NSCLC, EGFR+) this August. It was an absolute shock to us as I've only seen my husband sick once in the 22 years we've been together. It was also a shock as I've been battling breast cancer since October of 2019 and we could hardly believe or accept his diagnosis on top of mine and dealing with the pandemic! With that said Jim has started Tagrisso, a targeted therapy and is responding really well. We are within walking distance to one of the best Cancer Centers in the country. We are known as "Team Burke" since the kids came along in 2009 and 2013. We have two awesome children that inspire and ignite us daily. I'm not what else I should be saying other than I'm happy to be connecting to a community of patients and caregivers that may help us along this journey and hopefully how we may one day help others. Warmly, Kristina
  7. Hi,

    I'm Kristina and new to this site and forums in general. So here goes...

    My 47 year old husband Jim,  was diagnosed with stage IV lung cancer (NSCLC, EGFR+) this August. It was an absolute shock to us as I've only seen my husband sick once in the 22 years we've been together. It was also a shock as I've been battling breast cancer since October of 2019 and we could hardly believe or accept his diagnosis on top of mine and dealing with the pandemic! With that said Jim has started Tagrisso, a targeted therapy and is responding really well. We are within walking distance to one of the best Cancer Centers in the country. We are known as "Team Burke" since the kids came along in 2009 and 2013. We have two awesome children that inspire and ignite us daily. 

    I'm not what else I should be saying other than I'm happy to be connecting to a community of patients and caregivers that may help us along this journey and hopefully how we may one day help others. 

    Warmly,

    Kristina

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