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Everything posted by AleHondaa

  1. Seems that my ticket to targeted therapy may help me in the long run. It was a good read thank you!
  2. Hello, I’m pretty late I see but I figured I’d chime in as well and say welcome. I’m 22 years old and I was diagnosed about 2 months ago with similar situation to yours except mine gave me issues with my back and neck. I have a mutation called Her-2 which is a rare mutation found in Lung cancer but common in breast. There’s no known trials for it as of right now unfortunately. As someone as young as I am I just thought it was me pulling a muscle or straining something, but unfortunately that’s wasn’t the case. I did 10 days of radiation and now I just started my first infusion of chemo last Friday. It sucks but these folks on the forums have gotten me through a lot and have informed me with so much information it’s crazy. Stay through the fight and you’ll get through this hurdle.
  3. @TJMSince then mine has completely gone away. I have a slight scratchy feeling but that’s it, I’m able to eat mostly anything and drink as well. It did get to a high point where it was really bad and that’s when I called my nurse and got a medicine called Carafate. After that it started healing fast. It was an awful thing to go through but I endured it.
  4. I just caught on to this thread. This seems to be very promising and hopefully pulls through. It would be great to have other options in the future!
  5. I’ll begin posting updates in the member form from now on. I wasn’t super aware that I could post in the others. Sorry about that.
  6. I’m sorry about my misunderstanding @LexieCat. I peaked at your post, I’m keeping you in my prayers 🙏🏼
  7. I’m hoping that it is good progress towards your cancer so it’s one step closer to being taken out @LexieCat. I’ll be looking into SSI very shortly, I just hope that it gets approved pretty fast. I spoke to my boss earlier today and the good thing is I work for a small business so he is very understanding and is willing to work with my through everything I’m going through. We will see how the chemo effects my being and functions to see if I can continue working.
  8. I do have a question. How long did it take anyone to go back to work or did you go back to work? I work at a car audio store so I don’t do a lot of labor intensive work, I want to work through everything so I can do the things I like. I know once my neck is better and my throat is normal I can work but it depends on the chemo.
  9. The pain has subsided substantially thankfully. The medicine seems to be doing it’s job very well. It does seem that everything is hitting me all at once and it really does suck. I’m hopeful that I will be okay soon, just the hurdles that life throws at us.
  10. They gave me some medicine called Carafate. I’m supposed to take it with water dissolved, I’m not sure what it does exactly. But I have been able to hydrate myself, it burns but I can do it. I just hope this is the peak of it, I’m so over not being able to eat things and drink. By far the hardest thing I’ve had to deal with in my life.
  11. I notified them and they prescribed me some meds to take before I eat and before bed.
  12. My esophagus has gotten REALLY bad in the last day. Easily the worst it’s ever been and idk why. My throat feels like it’s ok constant fire and I can’t eat or drink anything. Idk what to do it’s so painful, it was fine a day ago and boom I can barely function. I’m so over it.
  13. We’re all clear and I’m being discharged! The ct scan cleared up their concerns of my C3 being imbalanced but it seems to be all normal. Nothing yet to see if it’s been officially healing but I’ll find out eventually. Things do seem to be going somewhat in my favor I guess.
  14. I have bad news. I got my updated scans done for my neck and it’s not gotten better. Doctor was calling me to go back up to the ER and get an emergency CT scan done. I can’t catch a break! Life has been so cruel to me and I don’t understand why.. It feels like I’ve been healing and it hasn’t and I don’t understand why. So now I don’t know what’s gonna happen, I just hope I don’t need surgery. Wish me luck, I really need it.
  15. So it was postponed because of my labs. My platelet count was too low for me to start today because of the radiation. So I wait another week. A lil relieving but still was kinda good for me to start now. I have the full scoop of what I’m getting. Keytruda, carboplatin, neulasta, pemerotrixin (I think that’s how it’s spelt). Also it sucks how you can’t be sedated during the infusion. That’s would’ve been nice. I also I have to scheduled for the port which wasn’t for today, so it may have worked out for the better.
  16. Well today’s the day. I’m still not ready and I’m absolutely terrified. Wish me luck today please, I’m gonna need it. My throat seems to be 80% cleared up now, not much pain anymore and I can eat somewhat normal. I still have a bunch of mucus but not as much.
  17. I’ll be surprised if the radiation is tougher. I took it on like nothing other than the esophagus issue. It’s still going to scare me, but getting some reinsurance that it isn’t as bad is somewhat reliving. As well as today as definitely easier with the esophagus and I believe it’s starting to go out. I was able to talk a lot more and eat better today which is progress. I also stated driving again, my neck has definitely felt a lot better since the initial fracture, I just need to get back to working. In due time 💪🏼
  18. Hey all, I feel as I need to vent a lil bit. The closer I get to chemo day, the more scared I get. I don’t know what to feel or believe in. I’m so worried that it isn’t gonna work, I know I can’t have that mindset but it’s always crossing my mind. I know I’m young and it’s definitely helped out with the other treatments but I feel so out of it.. Other news, the side effects from radiation are slowly going away but it sure is hell. I can barely speak without some sort of mucus buildup and I’m always spitting stuff out it’s annoying. It still hurts to eat but definitely not like before. I’m so over this, dealing with the brace on my neck is way better then the pain of not being able to eat and drink things. Part of the reason why I’m feeling so off lately. Im glad to see that there’s some advancements in the mutation they found, I’ll pay close attention to it, perhaps there’s a silver lining coming soon. Thanks for the [email protected] Michelle Thank you ❤️
  19. Good news, it seems to be going away but very slowly. Yesterday and this morning were very awful to go through but it’s not as bad as it was. I was able to eat a sandwich which is different to the soup I’ve been chowing down lol. Aiming for a pizza sometime this week so hopefully it heals fast! As for fatigue, none had. I’m moving around good, my leg feels a tad bit tired but I was able to go out for a little bit today and it felt good. The road to recovery is definitely began. The more I got through this, the more I realize everyday that my youth is definitely on my side. I’ve seen your guy’s story in similar situations that what I’m going through and it seems so hard and so far I’ve only had to endure a portion of it. Thank you for keeping me going every day, it really helps me out. ❤️
  20. Thanks for the advice guys. I’m sorry you guys had to endure that. Thankfully you guys are doing better now. I noticed that it’s worse at night and I’m able to tolerate it a lot more in the day. I’m able to eat a lil better today and drink stuff too. As for fatigue, it hasn’t hit me at all and it maybe my youth that has helped with this. I can honestly feel this going on for maybe a week or so and going away so let’s hope so.
  21. Hey all, I just finished my 10x radiation yesterday and the last couple days have been hell. I can’t eat or swallow anything without it feeling like sandpaper going down my throat. I can feel myself getting weaker and losing weight. I find myself spitting up flem constantly to clear my mouth. I tried to use the magic mouth wash but it did nothing for me. All it did was numb my mouth and for 10 minutes at that. What are other remedies I can use to deal with this? Also how long does this generally go away in? This is really effecting my sleep as well and it’s agonizing. I Really need some advice or help. Thank you, Ale
  22. Well, today is my last day of radiation. I’m excited and nervous too, I just hope that it reminds in effect in the issues I had, but I have no doubt that’s the case. My throat has been very very irritated and hurts to swallow at times. Does anyone have some remedies for this? I tried Mylanta and it sort of helped, anything cold like popsicles help a lot but I cant just eat those. I’m gonna bring it up my doctor later on but I wanted to see if someone has dealt with it in a different way.
  23. So I tried looking for the notes and didn’t find the 2 other ones. But I know for a facts he said Carboplatin was another drug. Also they are doing a port. @LexieCat
  24. I finally got my treatment plan mapped out. To be honest I feel a lil bit at ease now and genuinely feel that I’m gonna make it through this. I have my good health and youth on my side with a incredible support system too. As for treatment, I’m getting 4 different drugs. I don’t remember all the names but I know there’s one called keytruda. I am scared of how it’s going to affect my body and my everyday life while my body gets better. It’s just a lot going through my head. As an update on my neck, I’ve definitely felt improvement in movement and strength. I can feel it’s healing and the radiation is definitely helping me with all the other things I had going on. Thank you all again so much for all the info and support you’ve shared with me. If it wasn’t for the awesome Redditor that suggested y’all I would’ve been going crazy looking things up and causing myself to panic. ❤️
  25. Oh okay, good that makes it a lot better on my mind knowing that’s really how they express it.
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