Jump to content

AleHondaa

Members
 View Profile  See their activity

  • Posts

    125

  • Joined

  • Last visited

  • Days Won

    4

 Content Type 

Posts posted by AleHondaa

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey guys!

    I hope you guys a great Christmas and have a happy new year as well! I’ve been okay I guess, better than I have before and I now have a full time job so I’m working again. Keeping myself distracted from everything, I’m still having major financial problems but that will resolve within time I guess. I been having headaches like migraines lately like everyday for the past couple days. Is this to do with the keytruda? I heard that it’s a side effect from it but I’m not entirely sure. I’ll be seeing my doctor in the next week so if it’s needed to brought up I will. @Karen_L thank you for the advice I just saw it recently but a lot of what you said has been helpful. It’s what I’ve been trying to do since everything has happened. If anyone can help out that would be great! I really hate to think of the worse but that what immediately comes to mind with all this. 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Tom and Lou,

    Thank you guys for the clarity. This has been a tough road and it’s clear that it will have a mark on our mental health at one point. From what I’m seeing, it’s fatigue from the battle really, and our mental health is a cost to this if we let it. I will continue to better myself as much as I can as I go through these struggles in life. But what’s important is that I’m still here, still around and I should be grateful for this. I tend to spend a lot of time in the past, trying to realize what I could’ve done differently but really that’s most likely what has been dragging me down. I didn’t have control back then and I definitely don’t have control later on from now. 
     

    Thank you,

    Ale

    Mri scan

    in MEMBER UPDATES

    Posted

    Hi Justin

    I’ve been catching up on your thread since my absence of the forums and I need to say that you are inspiring. We’ve all been through so much with all this fighting but damn you are a trooper. Keep giving it your all and never give up! 
    Regardless on how bad things can be, they tend to get better. I learned that by being inspired by everyone on here including you! 
     

    Keep Fighting,

    Ale 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey guys!

    Hope everyone’s well and had a wonderful Thanksgiving! I’ve been great health wise, nothing new has shown up and everyday I feel healthier and more energy. I’ve been hitting the gym and eating like crazy trying to gain weight back. However, my mental health has taken a decline.

    I lost my job at the start of the month, been struggling with bills and watching my parents struggle while I can’t do anything about it. Past problems have come back to haunt me and I’ve lost a lot of motivation for things. I’ve fallen in a depression and it’s incredibly hard right now. I had a visit with my therapist today and she mentioned that the cause of my recent depression could maybe be the cause of me being on a treatment that’s so hard on the body for a little bit and that now that I am off of it, my mental health has been tired out from maintaining positivity for so long. She mentioned that I should ask you guys if you’ve had a similar experience when getting off chemo. Has anyone just get put in their dumps after dealing with such a harsh treatment? 
     

    I feel like its maybe a reach since there’s so many factors to why I feel this way right now especially with the holidays but I felt like I should ask. Maybe some advice would be helpful too. Hope everyone is okay and fighting their battle to the hardest. 
     

    Happy Holidays!

    Ale

     

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Guys!

    I have great news! Today will be my last chemo!! After today, I will just be on keytruda :). I’m so thankful for everything and the support I’ve received from everyone here. The fight isn’t over but it seems like the light at the end of the tunnel is approaching me.

    Maintaining a good attitude and just living life day to day like it doesn’t exist is truly the key to fighting this. Everyone else that’s fighting, just keep pushing and you’ll make it! Believe me, god works miracles to those who go through his trials in life. 
     

    Ale 🤍

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey guys! 
     

    It’s been a bit so I feel as it’s time for an update. Chemo has honestly been a walk in the park. I’m gaining weight back, I have lots of energy and my hair is coming back! I finally feel like my old self again, even though it at times my life isn’t but that’s okay. I’ve been working and studying in college while facing this battle. 
     

    However, scan results are next week and I’m very nervous. I really hope that this works in some way, I’ve been through a lot with all this and just want the good news. But I’m also very keen on not getting my hopes up unfortunately. 

    So I really ask everyone to please pray and wish me good luck. I really hope everyone as been well and safe. The worlds been crazy lately, last thing some of us need with this disease. 
     

    Much Love, 

    Alejandro

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Well, the thing I didn’t want is actually happening. My hair is going away, down the drain, all of it. This is really affecting me mentally now, self esteem just down the drain. I know it’s for the better and it will be coming back it’s still one of those things that consistently reminds me of what I’m fighting. My beard seems to be staying 🤷🏻‍♂️.  
     

    Other news, I get my second dose on Tuesday then scans afterwards. I hope this is all worth it. I hope this actually does something. 
     

    Hope everyone is well and fighting their battles with success. 
     

    Sad Ale 😕

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    So quick update after my first infusion yesterday, after being poked and chemo’d up I felt fine most of the day. I’m assuming it’s because of the steroids. However, today I do feel sluggish and nauseous after waking up. About how long can I expect this to go on and does it get worse through out the week? I am going to “medicate” if you know what I mean hahaha as it always helps with my nausea. Thanks again to everyone for y’all help and input for everything. 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hi guys,

    Well tomorrow is my first day on the treatment, I’m very nervous and anxious. I really don’t want to be on it, mainly from how sick I’ll feel and losing my hair. My biggest thing is I don’t want to look sick, right now if you see me you wouldn’t expect me to have what I have. I don’t know what to expect out of this and I’m kinda scared. Could I get any tips of being on these drugs and things to do Improve quality of life? Im hopeful it will do the job and work but I’m very scared at the same time. Doc mentioned it would be just 3 months and then I’d be just on keytruda but I feel like these 3 months are gonna be long. If any has suggestions or advice, please share.

    Thank you,

    Ale

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Tom,

    I just read the blog you made about hope and your damn right. After this mornings terrible realization, I told my friends and family about it. Everyone was upset and scared for me, I had friends tell me they broke down crying because of what I just told them. I came to the realization that they need me as much as I need them and that I can’t lose hope or give up because of this. So I’m going to continue on this fight and I’m going to win. Out of one of my favorite movies, Han Solo once said “Never tell me the odds!” Meaning to me that they don’t matter, at all. So thank you for what you said, because I made me look at everything and realize there’s a horizon pass all this. 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey guys,

    Its been a good while since I’ve posted an update so here’s the series of events I’ve been through and what news I just received today. 
     

    So in March I stated that my enhertu stopped working. After that I went in for a trial but after a biopsy they deemed I wasn’t eligible. So afterwards the doctors decided to keep me on enhertu and mix radiation on top. Recently, the radiation seems like it worked on stopping the main spot from growing. About a week ago, I was admitted to the hospital for a case of pneumonia and they did scans. Unfortunately, it spread once again and truly shown that the enhertu stopped working. That’s everything that’s happened since March.

    Now, the doc wants to put me back on chemo, which I’m highly against as it takes away everything I’m able to do. They mentioned on putting me on my original treatment plan which was Carboplatin, Keytruda and Pemetrexed. Except this time they’ll sub out Pemetrexed and put in Taxol instead. But today I learned there’s no beating this, only control. I’m losing hope and I need motivation to keep going.. This chemo isn’t something I want to do and I just want to go back to normal life as a young adult. However, I beat the odds of survival and that’s something that gives me a little spark but I’m just really down and I could use the motivation.

    Hope everyone’s well..

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey all!

    Its been a while since I’ve posted on here and I have a lot of news to cover regarding my disease.

    My latest scans indicated that there was progression on the tumor but not much very little. So the Inhertu has stopped doing it’s job. My doctor had pointed me in the direction of a clinical trial that I might’ve been eligible for. Since then I had gone through the screening process to check my eligibility. They preformed a biopsy on my lung to see if I still showed signs of the HER-2 protein on the tumor. Unfortunately today I received the news that I’m no longer expressing the HER-2 and I’m not eligible for the trial. Next course of action for me is to see at Lung Cancer specialist at Penn to see what other courses of action we can take. They mentioned oral meds and maybe chemo again which I do not want to go through. 
     

    This battle has not been easy and I hate to say it but I’m starting to lose hope. I know I can’t and I have to be strong but the reality of it is really hitting right now. My life has gotten better, I’m working again, I’m working out everyday at the gym and seeing progress with my body. I even have a date with a girl I’ve been into for a very long time. It’s just very hard to be going through this and I hope that some good can come out of it. I wish everyone the best and I hope things have gone good with y’all battles as well. 
     

    Ale 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hey y’all,

    Happy New Years and happy holidays to everyone here! I want to thank y’all for being a support system that I didn’t think I needed until I tried this out. My latest scans show good results as more shrinking has taken place. Doc even says that it seems my lung is regrowing new and healthy tissue. It also seems that the spots in my back or decayed or dying off. If this keeps up I’m sure to be on a road to a clean bill of health hopefully. I tend to just live day by day appreciating whatever moments I get. I hope everyone else has had good luck in fighting their own battles and if it hasn’t my prayers are out for you to get better or get good news. 

    My updates (22 Years old, NSCLC)

    in MEMBER UPDATES

    Posted

    Hello all,

    It’s been a while since I’ve posted, so far I’m doing okay. Disease wise I’ve been doing good, no new symptoms and treatment seems to be doing it’s thing. I have scans coming up so hopefully they reveal good things. However, mentally wise I haven’t been doing too good. I find myself in a pretty bad depression due to a heart break, money issues and the disease itself. If y’all may recall, me and my significant other of a year and half had split up. We had gotten back together and then split again after 2 months. It’s been 2 months since then but it still torments me to this day. There’s not a day I go through that I don’t think about what could’ve been. I quit my job due to complications with my higher up and since I worked right next to my best friend.. I’ve had on going issues with money. I’ve had to rely on my parents for help and thankfully they’re there to help me with my struggles but it still takes a toll mentally. As for dealing with the disease, its still sorreal to me that I was given this. Why me? What did I do to deserve this? Why does it have to exist? These questions go through my head everyday. So far I got a new job today and things -SEEM- to be going a little better. I go to the gym everyday, 6 days a week to better myself and my form. That’s all I really have, sorry to dump this on y’all but I needed to vent a little bit on my struggles. Hope everyone is doing good and good news and fortune has come y’all way. 

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept