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Everything posted by AleHondaa

  1. Thank you for sharing this story with me @Lisa Haines. It’s really inspiring to see that someone as yourself faced such a terrible diagnosis and it’s gives me so much hope that I’ll be okay. It’s gonna be a long fight but I’m going to stick with it. As for my next step, I’ll be doing a follow up with my med oncologist to proceed with treatment with I finished radiation. I should be radiation after next week and I’ll probably start my chemo afterwards. Then from there I believe it may 1 time every 3 weeks. The thing that gets me is that the doctor said 2 years of treatment until it worsens and I still don’t know how to take that in. Has anybody else had a similar response from a doc and beaten their odds? I’d love to you know. Thank you all ❤️
  2. I guess we’ll have to see what the treatments do. I’m not trying to be discouraged, but I am disappointed this is all going on. Just the way these doctors put it just makes it seem so conclusive and it gets to you really bad.
  3. Today I met with the doctor for clinical trials. Unfortunately, there is no clinical trial or pill I can be given for this. So it’s resorting to the traditional chemotherapy/immunotherapy. I’m so heartbroken right now, I feel like this just gets worse and worse by the day. I know it’s a process but the more news I receive just seems to be worse every time. Hopefully this will be effective with me and take care of it. I just don’t want to be strapped up to an iv for the rest of my young life. Hopefully there is a silver lining out soon.. I also want to thank you guys for being there for me, I know all of us have a huge battle ahead, including myself.
  4. Update for my people’s lol I had my appointment with the neurosurgeon and it seems that there’s growth on my c2. Good thing is radiation feels like it’s being effective since I’ve been feeling a good amount of relief recently. If that’s the case then I don’t need surgery and the bone will be able to heal on it own. I haven’t had any pain recently which is good and it’s really just discomfort now. Thankfully things seem to be going in a good direction. If anything I’ll be needed more radiation but we’ll see. 🙏🏼
  5. So they’re still continuing the treatments regardless. I just long for this the go away fast, it’s an awful thing to go through. I felt in a dark place this morning but I’m feeling better now mentally. It’s just another hurdle I’m going through. Thank you to everyone for your support, I really appreciate it. ❤️
  6. I’m trying my best to stay a float. It’s really hard being in this position. My hospital wants me to see a neurosurgeon which can’t be good. I have to get another mri and I hate those. I just can’t catch a break, it makes me think what did I do in life to deserve this.
  7. The radiation did not cause this. I felt the pain before I started and then it got unbearable. I was in the hospital when they said I have a fractured area in my neck. It does suck a lot, I have to rely on people to help me for a lot of things. Thankfully I have my lovely girlfriend by my side helping everyday she can and I have my parents. I really do hate relying off of others, to be honest it puts my self esteem down a lot. But it’s just a bad pothole in a long road, I’ll get through it. (I can’t drive too and I love driving)
  8. So I had my second treatment postponed today because of of pain I had in my upper neck area. They gave me Percocet and moltrin, the Percocet did a number on me and caused me to almost faint and fall. I was at my appointment when this happened and taken to the hospital immediately. Since I’ve been here I have gotten a ct scan done and they’ve found that I’ve fractured my neck. Now I’m stuck in the hospital until I get some answers. This is the worst I’ve ever been through, has anyone been through something similar?
  9. I do really hope so, let’s hope for the best!
  10. Okay so I have a big update, they found a mutation but it’s not a common one. The mutation is HER-2 (idk if that’s the correct spelling). Found mainly in Breast cancer patients, also found in lung cancer too but not as common. Currently there is no FDA approved medicine to combat this but my oncologist is highly considering clinical trials since there is most likely something that could help me. If not, then I have to get the traditional chemo and immunotherapy combo. My doctor also said he can see me doing good since I am younger and other wise healthy. I’m so glad I got some good news today. If there’s anything about this I should know please inform me. Thank you everyone!
  11. They haven’t given me a stage yet. But I would think it’s a high 3 or 4 because of spread. Also does anyone know if nausea and vomiting is normal after the first radiation treatment? I haven’t ate much all day and I got the treatment done and I’ve thrown up twice so far.
  12. I just had my first round of treatment today, it went well. However I’m feeling pain in my neck area and it’s very hard to move around. I saw my doctor and he said it may be fluid removed from the biopsy coming back. So I hope it goes away so I don’t have to deal with it.
  13. So they haven’t talked about me getting any radiation on my lung. Just the spots in my back area. I don’t know if that’s a bad thing or not 😕.
  14. Thank you to everyone showing love and support! I really do feel more motivated to beat this thing. I officially start radiation treatments on Monday. Any tips with these? Should I eat differently or ingest more protein (which I’ve been doing)? So far I haven’t a coughs or anything of that nature. Other then small uncomfortableness in my left lower back I’ve felt fine.
  15. Thank you Sandy and Tom for the needed advice. I’ll be giving this my all and I’ll do my absolute everything to beat it. 🙂
  16. Okay, thank you for all the info. I’ll be updating the form as soon as I find out more info.
  17. I’m really hoping that there is a mutation. How effective is the pill to get it to shrink and potentially eliminate it? Or how effective is it in general? I’ll definitely keep all of you posted, you guys seem to be a great support system by far.
  18. It’s okay I’m glad to share any info needed. They didn’t specify what spots on my lower back but the found a mass on my left lower portion on my back. The one on my neck is on the spinal area on my back towards my neck. It has spread to my lymph nodes on my neck. Also was mentioned was lesions on 2 of my bones on my neck. They performed 2 biopsy’s, one on my neck and one on my lower left back. They got most of their info off of the second biopsy. They’re giving me radiation for those spots not the lung. I’m still waiting for the pathology to come back to see if they can target a mutation. I’ve already discussed and banked a sample with a fertility place locally. I live with my parents and my sister. They’re a great support system on top my loving girlfriend.
  19. So they haven’t given me a stage yet. They said it’s Adenocarcinoma. It has spread to my lower back and my neck area on my back. I’m glad to hear that there is that long of a prolonged state with this. They are going to start radiation treatments to potentially get rid of the spots on my back area and potentially remove the lower area one. I also took interest to do clinical trials if my treatments don’t do as well. But I have faith my body will do it’s job and fight this off.
  20. Hello all, Within the last month I was diagnosed with Lung cancer NSCLC. I’m only 22 years old and this has impacted my life tremendously. The way I look at everyday things feels to be like if I was on a checklist for the days I may have left. I haven’t found out what sort of mutation they are attacking if there is one but I’m waiting on those results. My oncologist had said that this isn’t curable or removable unfortunately. But I will still remain as positive as can be and try to beat this thing. I’d love to hear some of your stories as well and to give me an idea what kind of road I have ahead of me. I’m too young for this and I want to have a family one day so I won’t give up on that dream. Thank you all for being here <3.
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