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VickiP

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  • Posts

    9
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Profile Information

  • City
    Des Moines
  • US State (if applicable)
    IOWA
  • Country
    USA
  • Status
    Lung cancer patient/survivor
  • Interests
    children, grandchildren, running, gardening

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VickiP's Achievements

  1. I know I am coming out of nowhere but I got "Emperor of Maladies" based on LexieCat's recommendation. I downloaded it from my library and am listening to it on my headphones. It is amazing! There is so much I didn't know about the history of cancer discovery. Somehow things make a little more sense. Thank you very much, LexiCat.
  2. Thanks for the responses. Different immuno therapies for different situations. I will ask about magnesium.
  3. Thanks. I don't know how long I will stay on Keytruda. At one point it was going to be two years. I did have an opaque glass (?) nodule that showed on my last two scans. Since it hadn't changed, the decision had been to just keep monitoring. I see my oncologist next week so I will ask him again about that. I read a post about hip pain and other pains and have noticed some in my hip sometimes also. But I'm aging. Another thing is a side crampy like pain. (I used to have that awhile ago and it turned out that I had broken a rib from coughing.). Anyway, all questions to bring up. Since I see him alternative times I usually have some. (I know you are all familiar with the questions drill but I can always use some prompting too. Sometimes I find myself just saying "I'm fine." )
  4. I am new to this smart and welcoming group of travelers in the lung cancer world. I have been in the world for two years but haven't gone far in talking to other patients. I am not an outgoing person but now I know It feels right to talk. I had had a biomarker test during the biopsy of my tumor and (while I was in the hospital with pneumonia) my doctor started chemo and keytruda. (They kindly waited until after midnight to start the infusion so that my hastily acquired Medicare supplement was in effect!). Now I get an infusion every three weeks. Yesterday I got on this immunotherapy forum and read through. Now I have a basic question: I saw a lot of comments about the "Durva Club" and durvalamab, I have never heard that word or known anything about that immunotherapy treatment. Keytruda is all I know. Are the different immunotherapies used for different tumor compositions?
  5. Thanks LouT. Now I know what NED means. I thought I knew some cancer language but I realize that there are many that I have never heard.
  6. Wow. I want to read your book. Thanks for sharing.
  7. Thanks. Good advice about things we can't control. I will remember when I start to stray into the "what if..." world.
  8. Thanks LexieCat. During the period of diagnosis testing, etc. I got sick and was hospitalized for a week or so. I think my family thought I was dying and my doctor decided to go ahead anyway and start the chemo and immuno. while I was still in the hospital. It was a wild whirl. But then three months later I was better. Anyway, I looked through this forum and felt it was full of people who understand and it made me smile. I feel a mixture of odd guilt that I feel fine and the foggy knowledge that the next scan may (probably?) show a recurrence. Anyway thanks. I guess I am supposed to go to a separate forum now.
  9. Hi. My name is Vicki. I am 71 and have two adult children and 5 grandchildren. I have a long time partner who has been my caretaker. I quit smoking over 35 years ago, still run several miles a week and do yoga. I am retired except that I teach online a little. I was diagnosed with Stage 4 NSCLC in April 2019. I had a tumor on my lung and a spot on my liver. My doctor started me on chemotherapy and immunotherapy at first. We stopped the chemo and continued Immunotherapy after my first scan showed no sign of cancer. It is been more than two years now and I still feel great. I get an infusion of immunotherapy every three weeks and a scan every three months. There hasn't been a decision on how long this course will continue. I was in a daze over everything (COVID too) and just now am waking up and exploring questions. I want to connect and figure out where things go from here.
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