Jump to content

Carrie5260

Members
  • Posts

    5
  • Joined

  • Last visited

  • Days Won

    1

Carrie5260 last won the day on May 17

Carrie5260 had the most liked content!

Profile Information

  • City
    Franklin
  • US State (if applicable)
    NEW JERSEY
  • Province or district (if non-US)
    NJ
  • Country
    United States
  • Gender
    Female
  • Status
    Prefer not to say
  • Interests
    Paper crafts, model building

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

Carrie5260's Achievements

Newbie

Newbie (1/14)

8

Reputation

  1. Thank you Susan ! You’re right, I’m quickly learning that too much information is not helpful. I’m a nurse, so I guess heading to the Internet was an automatic response ... but I’m finding it’s only made me more anxious. Thank you for your reply and your advice, I really appreciate it !
  2. Hi Iris, I’m new to this site, and new to this “world”. I’m still waiting on a diagnosis, and I feel a lot of anxiety. I can only imagine how devastated you must feel about your recurrence. I don’t know what you’ve been through, or what treatment you received to achieve NED, but I’m sure it required strength. If there’s one thing I’ve learned from this forum, it’s the multitude of treatments available. Be strong. Beat this recurrence. Ask for support when you need it. I will keep you in my thoughts and prayers. I wish you the very best.
  3. Thank you Lexiecat !! My two big decisions are Penn vs Inspira and lobectomy vs segmentectomy. I expected that Penn would be my obvious choice, but when I met the Inspira surgeon I really liked him and couldn’t argue with his success rate, statistically speaking (if I understood correctly). It also seems logical that the lobectomy would be safer than a segmentectomy. It’s all so confusing ! Thank you so much for your advice.
  4. I’m still trying to find my way around this forum. I don’t know how to respond to my replies individually, so I’m going to respond to both of you (Lexiecat and Judy M2). Thank you so much for taking the time to respond. I really appreciate the information and encouragement. My mass is in my left lower lobe. Initially there was some discussion of a needle biopsy or a bronchoscope biopsy). My mass is positioned near the wall of my lung, right between two ribs. The needle biopsy seemed to be the appropriate route, however there seemed to be some concern that they wouldn’t be able to obtain a sufficient sample. The oncologist consulted a surgeon and he suggested a wedge biopsy. They felt it was the best way to obtain a biopsy and perform curative surgery at the same time. If the mass is not found to be malignant, they’d close me up after just the wedge resection. If malignant, the surgeon would do a segmentectomy. This opinion comes from a surgeon at Inspira, in NJ. I’m going for a second opinion at the University of Pennsylvania this Wednesday. I met with his PA two weeks ago (she felt strongly that it was scar tissue from an old pneumonia) and scheduled a repeat CT scan in 4 weeks. We’re hoping the mass will be smaller... if not, they would also recommend a wedge resection. She said that at Penn, they do a lobectomy (rather than a segmentectomy) if cancer is found. The Inspira surgeon said that he hasn’t seen improved outcome with lobectomy vs segemtectomy. He also said that in all cases where he’s removed the mass while at stage 1, he hasn’t had any recurrence ! Depending on size, they do a short course of chemotherapy post op. Lexiecat, I live in Franklin Twp (Newfield) NJ. (Gloucester county). We’re practically neighbors. Thank you for your information about the VATS surgery - I was expecting a more painful post op course than you’ve described, so that’s encouraging. Judy M2, my doc talked to me about the biomarkers and mutations that can be utilized to treat cancer. Your experience with immunotherapy is very encouraging ! I’m very happy for you - for both of you. I will keep both of you in my prayers. I pray that I get lucky and my mass shrinks. If this turns out to be cancer, my greatest concern is for my son. He’s 25, so clearly an adult, lol. He’s currently living in CA, attending graduate school at UC Irvine, pursuing his PhD in physics. I haven’t told him about the mass, because I’m still hoping it will turn out to be an infection or inflammation. Why have him worry about the possibility of cancer when I don’t have my answer yet ? He’ll be home for a visit the week after my repeat CT scan. If surgery becomes necessary, I’ll be able to discuss it with him then. My doctor thinks I should give him some information before he comes home - that he’ll be blindsided otherwise ... but I as far as I’m concerned, there’s no definitive information to tell him at this point. I’m really concerned that his concern for me could derail everything he’s worked so hard for. What do you folks think ? I apologize to all for the long post. I promise not to make it a habit ! ❤️
  5. My name is Carrie. During a follow up CT scan for back pain, the radiologist found a mass in my left lung. I’ve had a CT scan of the chest/abdomen/pelvis, a PET scan, and an MRI of my brain. The mass is between 3 and 4 cm. It did light up on PET scan. I’ve seen two oncologists and one surgeon so far. The second oncologist was a second opinion. They disagree on my plan of care, but we’ve agreed to a repeat CT on June 7th. If the mass is same size or larger, I’ll be scheduled for surgery. There’s still a chance that this could be inflammation or infection, but the oncologist seems convinced it’s cancer. I’m terrified. I can’t get rid of the knot in my stomach and chest. Does this sound familiar to anyone else ? How do you deal with the anxiety ?
×
×
  • Create New...