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Stephanie Ellen

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Everything posted by Stephanie Ellen

  1. Thanks Lexie. The PET scan did not show other mets thankfully. I do not know the name of the other immunotherapy agent. The doc say that it's similar to an off brand Keytruda made from another company that usually shows improvement in the long term, usually around the 3 year post to mark. She says that side effects can be rough but is hopeful that mom can tolerate them because she is fairly healthy and relatively young otherwise. I will try to get the exact name. It wouldn't be started until cycle 3 after all of the markers are back. The onc said that there were a few that they didnt send out in Denver so we r waiting for those.
  2. Update. Mom and i met with the Roswell Park oncologist yesterday after having a PET scan. She said that the cancer is improved vs her last ct and we will be moving forward with continuing alimta and carboplatin for her 2nd round. The doc sent additional bloodwork for more thorough testing. So far her markers are negative. The onc mentioned adding keytruda along with a second immunotherapy. Does anyone have experience with this? Thanks for listening. It's really comforting to have this forum. Stephanie
  3. Hi! We have our 2nd opinion with a thoracic oncologist on Thursday in Buffalo. I'm hoping for the best and trying to stay positive for my mom. Thank you!
  4. I'm eager to get her biomarker results back. They said around 2 weeks. I'm glad that you are managing well. Thanks for the info.
  5. Yes, thank you Lexie. They did admin Alimta and are holding off on Keytruda. She's had a positive turn around with her oxygen requirements the last 2 days and I'm hoping she can be discharged soon so that we can travel to Buffalo. She had had an MRI of the brain and CT of abdomen/pelvis which were negative for mets so far. Because of her high oxygen demands, she hasn't had the opportunity for a PET scan as they aren't available at the hospital shes at. I am so glad I found this group. This is really a tough situation. I love her so much. Thank you for welcoming me.
  6. Hi Lou, Thank you. I just read it. I think my mom is still in shock over the diagnosis. I appreciate the welcome words. Stephanie
  7. Hi Everyone, I am a 34 year old RN whose mother age 54 was diagnosed this past week with Stage 4a adenocarcinoma. Large area on the right with spread to the left showing a few small infiltrates. She has been a smoker for approx 35 years and quit a few months ago prior to feeling sick. Her only other medical problem is Hashimoto's hypothyroid. She is currently admitted to the hospital due to low oxygen sats. She's maintaining her o2 on 12L but we are hoping to wean her down to 5L so that we can go home and seek treatment at Roswell Park in Buffalo, NY where I live. She completed her first round of chemo on Saturday. This was Carboplatin and Alimta. They are considering keytruda with the next round. We are awaiting genetic marker results. I am wondering if anyone with a similar experience can offer any insight with moving forward or if there are additional things we should be doing. Thank you all for being here. ❤️ Stephanie
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