Jump to content

Karen_L

Members
  • Posts

    590
  • Joined

  • Last visited

  • Days Won

    126

Reputation Activity

  1. Like
    Karen_L got a reaction from Scruboak in About to get real   
    @Blossomsmom For what it's worth, a friend once consoled me through a huge no-sleep period with, "Nobody ever died from lack of sleep." I'm not sure it's true, but it somehow made it easier. Rather than lie there, perhaps you'd consider getting up for warm milk with a little honey and cinnamon. It might not ease you into sleep, but it will be a kindness you might enjoy. Plus, neighborhoods can be so interesting at 3 a.m..... Ask me how I know. You can do this; you will do this, and you will be OK. Sending peace. 
  2. Like
    Karen_L got a reaction from Blossomsmom in About to get real   
    @Blossomsmom For what it's worth, a friend once consoled me through a huge no-sleep period with, "Nobody ever died from lack of sleep." I'm not sure it's true, but it somehow made it easier. Rather than lie there, perhaps you'd consider getting up for warm milk with a little honey and cinnamon. It might not ease you into sleep, but it will be a kindness you might enjoy. Plus, neighborhoods can be so interesting at 3 a.m..... Ask me how I know. You can do this; you will do this, and you will be OK. Sending peace. 
  3. Like
    Karen_L got a reaction from TJM in Five year scan - whoops! Corrected to FOUR year scan   
    @Scruboak  Four years or five, a clear scan is a clear scan and worthy of a deep breath of thank goodness and a barrel-full of WHOOPEE!
  4. Like
    Karen_L got a reaction from TJM in lung nodule   
    I've been away from the discussion and this may have resolved itself, but, frankly, I think your situation is completely unacceptable. I would strongly suggest you get yourself to a facility specializing in lung cancer.
    I see you're in Maryland-- you have to be near a reputable cancer center specializing in lung cancer. Yes, I'm emphasizing a place with a specialty in lung cancer. That's because our cancer field is exploding with new research and a generalist cannot stay on top of the new developments.
    All you need is a starting place. It's kind of like being a detective and may take a little effort on your part. I don't have any comments pro or con the following places, but they may be good first steps. 
    Potential resources: two NCI-designated cancer centers in MD. You can find them here:https://www.cancer.gov/research/infrastructure/cancer-centers/find
    I also found a lung nodule clinic affiliated with U of MD, which may be worth checking out. https://www.umms.org/uch/health-services/cancer/cancer-services-and-treatment/lung
    Keep at this. Keep us posted!
     
     
  5. Like
    Karen_L got a reaction from Scruboak in Five year scan - whoops! Corrected to FOUR year scan   
    @Scruboak  Four years or five, a clear scan is a clear scan and worthy of a deep breath of thank goodness and a barrel-full of WHOOPEE!
  6. Like
    Karen_L got a reaction from LouT in lung nodule   
    I've been away from the discussion and this may have resolved itself, but, frankly, I think your situation is completely unacceptable. I would strongly suggest you get yourself to a facility specializing in lung cancer.
    I see you're in Maryland-- you have to be near a reputable cancer center specializing in lung cancer. Yes, I'm emphasizing a place with a specialty in lung cancer. That's because our cancer field is exploding with new research and a generalist cannot stay on top of the new developments.
    All you need is a starting place. It's kind of like being a detective and may take a little effort on your part. I don't have any comments pro or con the following places, but they may be good first steps. 
    Potential resources: two NCI-designated cancer centers in MD. You can find them here:https://www.cancer.gov/research/infrastructure/cancer-centers/find
    I also found a lung nodule clinic affiliated with U of MD, which may be worth checking out. https://www.umms.org/uch/health-services/cancer/cancer-services-and-treatment/lung
    Keep at this. Keep us posted!
     
     
  7. Like
    Karen_L got a reaction from LouT in Finally!   
    What a lovely surprise. I vote for going out to dinner to celebrate!
  8. Like
    Karen_L got a reaction from LouT in I seem to be struggling accepting good news!   
    I, too, had a PE and then mysterious swelling of both calves way later, for no apparent reason. The oncologist on call was baffled. I, too, went to the ER, had a vascular sonogram, was forgotten in my little room and had to seek discharge.... 🤪 I don't even remember what was decided or what I did. I don't have it now.
    Still, one foot still swollen would concern me. Have they suggested compression socks? Don't be a "good patient" and sit in silence. This demands an answer and a concrete response.  
  9. Like
    Karen_L got a reaction from LouT in About to get real   
    @Blossomsmom For what it's worth, a friend once consoled me through a huge no-sleep period with, "Nobody ever died from lack of sleep." I'm not sure it's true, but it somehow made it easier. Rather than lie there, perhaps you'd consider getting up for warm milk with a little honey and cinnamon. It might not ease you into sleep, but it will be a kindness you might enjoy. Plus, neighborhoods can be so interesting at 3 a.m..... Ask me how I know. You can do this; you will do this, and you will be OK. Sending peace. 
  10. Like
    Karen_L got a reaction from LouT in Five year scan - whoops! Corrected to FOUR year scan   
    @Scruboak  Four years or five, a clear scan is a clear scan and worthy of a deep breath of thank goodness and a barrel-full of WHOOPEE!
  11. Thanks
    Karen_L got a reaction from TJM in Finally!   
    What a lovely surprise. I vote for going out to dinner to celebrate!
  12. Like
    Karen_L reacted to RJN in I seem to be struggling accepting good news!   
    I came across a column a few days ago from a self-proscribed hypochondriac. Turns out it was someone with a history of hodgkin’s. I was thinking that it really is a side-effects of cancer recovery. Even if all goes to plan, you will always be extra wary of any physical symptoms. I get a bit worried if I have the tiniest cough. Just spoke to someone who is convinced her dodgy hip is bone metastasis, rather than the logical conclusion that carrying around her toddler grandkids might be to blame. But better safe than sorry - so good to get it checked. And when that is done, celebrate your clear scan again!
  13. Like
    Karen_L got a reaction from Tom Galli in Latest scan results   
    @Blossomsmom May 6th probably can't come soon enough. I'll be thinking of you as the date approaches.
  14. Like
    Karen_L got a reaction from Livin Life in lung nodule 6mm to 9mm   
    I'm always envious when surgery is an option for someone. It offers such a measurable outcome.
    For myself, starting into year 4 of this nonsense, I will will act aggressively and decisively the moment there is a change in the status of my scans. YMMV-- we all have different approaches and priorities. Best of luck. 
  15. Like
    Karen_L got a reaction from Livin Life in Hi everyone.   
    @Anthony, a friend of mine has an Exon 19 mutation, with lots of mets to the bones. He was diagnosed 16 years ago. 16  Don't quit before the miracle....
  16. Like
    Karen_L got a reaction from Tom Galli in lung nodule 6mm to 9mm   
    I'm always envious when surgery is an option for someone. It offers such a measurable outcome.
    For myself, starting into year 4 of this nonsense, I will will act aggressively and decisively the moment there is a change in the status of my scans. YMMV-- we all have different approaches and priorities. Best of luck. 
  17. Like
    Karen_L got a reaction from Tom Galli in Hi everyone.   
    @Anthony, a friend of mine has an Exon 19 mutation, with lots of mets to the bones. He was diagnosed 16 years ago. 16  Don't quit before the miracle....
  18. Like
    Karen_L got a reaction from Tom Galli in 9 months past surgery scan all clear   
    @RJN Complete remission? OMG, woman, you need a ticker tape parade. I'm thrilled for you. Here's hoping your summer plans shape up to be glorious!
  19. Like
    Karen_L got a reaction from Scruboak in New Scans Are In: Three Years & Going Strong, Plus Thoughts on Stress   
    @Scruboak, your simple statement, "I struggle with this," spoke volumes to me. And, I cracked up because letting go of my agenda is not one of my strong points. 🤪
  20. Like
    Karen_L got a reaction from LouT in lung nodule 6mm to 9mm   
    I'm always envious when surgery is an option for someone. It offers such a measurable outcome.
    For myself, starting into year 4 of this nonsense, I will will act aggressively and decisively the moment there is a change in the status of my scans. YMMV-- we all have different approaches and priorities. Best of luck. 
  21. Like
    Karen_L got a reaction from LouT in New Scans Are In: Three Years & Going Strong, Plus Thoughts on Stress   
    @Scruboak, your simple statement, "I struggle with this," spoke volumes to me. And, I cracked up because letting go of my agenda is not one of my strong points. 🤪
  22. Like
    Karen_L got a reaction from LouT in Latest scan results   
    @Blossomsmom May 6th probably can't come soon enough. I'll be thinking of you as the date approaches.
  23. Like
    Karen_L got a reaction from LouT in Hi everyone.   
    @Anthony, a friend of mine has an Exon 19 mutation, with lots of mets to the bones. He was diagnosed 16 years ago. 16  Don't quit before the miracle....
  24. Like
    Karen_L got a reaction from RJN in 9 months past surgery scan all clear   
    @RJN Complete remission? OMG, woman, you need a ticker tape parade. I'm thrilled for you. Here's hoping your summer plans shape up to be glorious!
  25. Like
    Karen_L got a reaction from TJM in lung nodule 6mm to 9mm   
    I'm always envious when surgery is an option for someone. It offers such a measurable outcome.
    For myself, starting into year 4 of this nonsense, I will will act aggressively and decisively the moment there is a change in the status of my scans. YMMV-- we all have different approaches and priorities. Best of luck. 
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.