Cheryl T

Thanks, Karen. Still waiting for the appt. Fingers crossed he will have a few more ideas.

Thanks for your replies people. The metamucil seems to bulk me up a bit but is still not the answer. My GP suggested I try codeine. Last week I had a to take a 4 hour and return trip to the big smoke which really worried me. I took the codeine, starting 8 hours before the trip then 2 every 4 hours and it worked! But not something you want to do every day. Will save that for necessary times. In the meantime I have tried lomotil with better results than imodium. Will try the bowl of white rice for first meal, Tom, it can't do any harm. However, after 15 months it looks like Tagrisso has stopped working for me. The last 2 scans have shown growth of the main tumour by 1mm then 4mm, respectively. If the next scan shows further growth then my oncologist is suggesting hard chemo, which I really don't want. My integrative doctor has suggested I seek a second opinion so has referred me to an oncologist who specialises in lung cancer. So just waiting for that appointment. In the meantime I continue on the Tagrisso until my next scan in November. 🤞🤞

Thanks, Judy. It was the length of time this has been going on that really concerns me. It is even preventing me from straying too far from home. The long walks have had to stop. I have been through that many imodium tabs I think I am paying the wages for the pharmacy assistant! I am drinking a lot of Hydrate, the last thing I want is to end up in hospital. If the metamucil does not work I will contact my GP, again. My oncologist does not seem concerned. Just tells me to take imodium.

Hi everyone, hope you are all doing well. I have been on Tagrisso 80 for 15 months now and got off relatively lightly with regards to side effects. A few pimples initially, but that was it. However, the past 4 months have been a different story. First a skin rash that lead to my skin just sheeting off me. Got that under control and no sooner did my nails become a problem. Once my pride and joy, my nails are now a bittle mess. Just have to keep them as short as I can. My big problem, however, is diarrhoea. I have had it consistently for the past 4 weeks. Imodium doesn't work, the white diet doesn't work, arrowroot drinks don't work so now I am trying Metamicil after reading it can also be used to treat diarrhoea. Has anyone else found the diarrhoea this bad?