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Jyoung20

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    Scan results

    in MEMBER UPDATES

    Posted

    Hey Friends!!

    I wanted to share with you guys the news from my scan and onc. appointment yesterday.

    The scan results were great and my onc. told me that I was his longest Tarceva survivor. 4 years and counting.

    I was wondering if any of you know what happens after 5 years on Tarceva.. Do you just continue to take it?

    He said he may wean me off of it, but that scares me a little..

    Your opinions would be greatly appreciated.

    Love and God Bless!!

    Jamie

    Please pray for this young man

    in HOPE

    Posted

    His name is Jordan and his sister was a student of mine when I was a band director in MS. He is desperately in need of your prayers as he is a point where he has to decide to stop treatment ( because its not working) and live out his life with his family at home or continue some type of treatment. He is only 22 and he was only diagnosed a few short months ago.

    Here is a link to his caringbridge page... I know any positive comments to the family and prayers would be greatly appreciated.

    Thank You and God Bless!!

    Jamie

    http://www.caringbridge.org/visit/jordanlindsey

    Question for Tarceva Users

    in NSCLC GROUP

    Posted

    Hey Barb,

    I have been on 100mg now for about 2 years and have had no change. I dont have any side effects often but when they flare up, I take the minocycline to get it under control.

    According to one of the founding researchers, the side effects usually last for about 8 months (on and off again). By the time I reached 8 months the rash was not hard to deal with at all.

    Hang in there. You may want to see a dermatologist. The scalp itch, she found, was due to a staph infection.

    Hope this helps!!

    xoxo

    Jamie

    Writing a book!!! Chemo gals..

    in ADVOCACY

    Posted

    Hey Chemo Gals!!

    I have been thinking about it for some time now and have decided to write a book.

    The book will be collection of short stories, letters, journal entries, or events that you may have experienced while in treatment.

    Some story characteriestics that we would like to focus on:

    humorous

    light

    hopeful

    miraculous

    determination

    etc.

    I'm just beginning this book journey but I feel this is something I need to do. Say a prayer for me.

    Thanks for your help!!!!

    Jamie

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