Maryloumoo

I have rheumatoid arthritis and I am currently in the worst flare of my life. I can’t even brush my own hair. My rheumatologist wants me to take methotrexate but I am terrified. I’ve read it can cause serious lung issues and I can hardly breathe as it is. I’m so sad! Anyone?

I now have what’s called phrenic nerve palsy. Apparently something happened during surgery to irritate this nerve. I still have a lot of trouble breathing with the slightest exertion. Had a sniff test done and that’s what they found. My diaphragm has moved up into that space (lower right lobe) too far. I have to wait a year like this to see if it improves! If not, another surgery. Anyone else ever have this?

Chris, you will do fine. My surgeon did use a nerve block but I am not sure what it’s called. I am still fairly numb around my right side and front but I can feel it’s effect is lessened over the day today. There’s still no pain! It’s sore, very sore but no pain. I have not used any pain meds since day two. Just Tylenol. it’s a major surgery but it’s very doable. I was very anxious and I asked for the ‘ I don’t care anymore’ meds pretty soon. You will get through just like me and I hope so much that you get good news! Please check in as soon as you feel able! I will be here cheering you on and sending you love! You got this! I am sure of that!!

Hi all! My surgery was 5/26/22. I had to stay 4 days because of the chest tube just wasn’t ready to come out. The tube was not painful, just very annoying. The nodule was cancer so they did the full lobectomy. The surgery wasn’t bad! I had a lot of nausea afterward, but that’s how anesthesia effects me always. Pain and nausea were controlled with meds and I was up walking the evening of the surgery. I had a combo davinci / vats- surgeon had to switch from robot to vats to get a better look and to actually go in with her fingers to find the culprit nodule! I am very sore but not in pain. My breathing is different, not painful just hard to take deep breaths. I’m do all the exercises and I feel like I will heal well. surgeon is confident she got all the cancer and no further treatments are warranted. Just scans every few months. I’m happy with the outcome and glad it was not a recurrence of the other cancer I had! i can’t remember who it is on here who is having the same surgery here soon and was very anxious, I hope whoever that is reads this! It’s not a day in the park but it’s really not that bad! I’m just sore and that’s it. I’m coughing as I should which can hurt a bit while I’m coughing but overall I feel pretty good. I got up this morning and made my own coffee and breakfast! Everyone is different, sure, but as far as surgery goes, this ain’t a bad one after the first day! Good luck to you. Here if you have any questions for me!

So, it’s been a bit since I’ve posted. As the title says, I walked out before my lung surgery and I’m so glad I did! Too many details to type but the short story is, the place was awful in my opinion and it just wasn’t for me. I did not feel comfortable or cared for. I left. i spoke with my oncologist and she got me in with a new surgeon and I will now have my surgery at the same hospital that I did my chemo/rads before. The new surgeon ordered a chest Ct and wouldn’t ya know, they found another nodule in the upper area of the same lung. So now there are two. The second one is too small to do anything with so who knows how that will go. Anyway. Surgery Thursday 5/26/22! I feel much better than I did before! I will post soon as I can after and let everyone know how it went. i do have a question! Did anyone have the pre-surgery drink? I was told I can have water up until 2 hours before surgery! I’m so happy for that! I can’t hardly stand not having my water through the night haha