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hel

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  • City
    charleston
  • US State (if applicable)
    SOUTH CAROLINA
  • Country
    us
  • Status
    Lung cancer patient/survivor

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  1. hel

    Pnemonitis

    Hi This is a little late to your post, but I did want to share a bit. I had similar treatment for stage 3b, chemoradiation. started durva a month after ending proton radiation, and i believe the pneumonitis started within that first month. i was essentially ignored in my reporting of symptoms. at first just a bit of congestion, then ultimately nightly fever, night sweats, low O2 and increased difficulty breathing. I always had about a 98 02 prior. Anyhoo, when the CT was done, i was dx'd with pneumonitis. ground glass opacity is one of the characteristics. there was a nodule, and consolidation and GGO. i gotta lot going on it was not in both lungs, it centered around the area of radiation, so it was attributed to the proton therapy. this is common. just wanted to make the point about the GGO. i am on steroids - man, is my house clean - was at 40 and on my request bumped it to 60 and noticed an immediate improvement. I am now attempting to step down by 5 mg increments. tried 10 - more congestion. perhaps contacting the CEO of the hospital, cc'ing the head of oncology, about the delay in follow up? all the very best to you.
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