I'm still getting used to the site, and can't find a way to reply to individual people who posted.
Monica, yes, I had neuroendocrine lung cancer in 2008, was clear after treatment for just under 10 years and then during a routine CT scan in 2017 we found the nodule. It was biopsied and found to be malignant. I never got a cancer "type" from my oncologist, which I always thought was strange. They just told me it wasn't neuroendocrine cancer but a cancer that was probably from my smoking history (I quit in 2008).
Mike, I have a friend who is seen at Stanford which has a great reputation and his doctor has offered to see me for a second opinion. Right now I'm just waiting to see what my June CT shows.
Thanks again for everyone's replies. The worst thing to me about dealing with this is feeling like no one understands, but these posts remind me there are a lot of people who do.