Jennifer7000

Hello Oceana again! I just saw this thread and also want to piggy back onto your question here, hope thats ok! Just to summarise about me for anyone else: I am 44, I have stage 4 colon cancer (mets to lungs as well), diagnosed when I was 39. I just started taking Sotorasib. I came here to find / share information because KRAS G12C is more prevalent in lung than colon cancer and Sotorasib is approved for lung, not colon yet. And I am having a hard time finding people taking Sotorasib! have some practical questions about the side effects. Has anyone any advice on how to find people taking Sotorasib? (I am going to look up that FB page "KRAS kickers") I'm also new to message boards and forums, so apologies for the repeated information. I am going to continue searching now as well!

Hello, I have stage 4 colon cancer (mets to lungs as well). I just started taking Sotorasib. I came here to find / share information because KRAS G12C is more prevalent in lung than colon cancer and Sotorasib is approved for lung, not colon yet. I see that you have not received any responses. I am having a hard time finding people taking Sotorasib! On cancer.org there was just one mention in the lung cancer forum and no response there either. I'm so sorry to hear about your liver results. This side effect is also what I'm afraid of. Did you have any other side effects? And how long after starting did they kick in? Have you restarted Sotorasib? And are you on any combination drugs? I'm sorry that I can't provide you with any useful info yet as I'm only 4 days in. Have you perhaps any advice on how to find others who take Sotorasib? if you have any questions that I could help with I'd be happy to respond if I know. I've done a lot of research on Sotorasib.