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Kamoto

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Kamoto last won the day on December 25 2023

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  • City
    Bozeman
  • US State (if applicable)
    MONTANA
  • Country
    United states
  • Status
    Lung cancer patient/survivor

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  1. Brain, right rib bone, back and lymph nodes. All gone except the lung mass which is probably there but extinct.
  2. Japanese? No Italian. Italians don’t need suntan lotion, we use Bain De Solei for the St Tropez tan. Lol thanks Karen, yes doing well
  3. Can’t they do this by blood? I think that’s what happened to me, couldn’t get enough tissue during biopsy, so they just went the blood route.
  4. 45 below zero for five days straight. Power bill was still only 230 for the month. I love hydroelectric power
  5. So went to dermatologist. You won’t believe this. I have a 3rd distinct cancer. Basal cell skin cancer. They want to cut the rest out, but I said no cutting until the oncologist says it’s fine. I see him Monday. Wonder if he will allow it. Stage IV Lung Stage II Esophagus Basal Cell Skin
  6. Yet to see oncologist, as driving over there is a nuisance. I finally had some dental work done. I’ll go in the new year. I’m less worried about the scalp issue. I think my Tagrisso is affecting the healing of anything. I sharpened my knives for the holidays, and cut two of my fingers. The dam cuts won’t heal either. I was squeezing lemon juice into my apple pie mixture, and it burned like heck. I think I’ll call the pharmacist for Tagrisso and ask her what to do. Merry Christmas to everyone.
  7. I had my chest and abdomen CT scan last week, and no evidence of disease. However, I have a sore on top of my head which bleeds daily and hasn’t healed for almost a month now. I see Oncologist next week, but was wondering if anyone had this metastatis. I’m guessing this is a symptom which will necessitate a PET scan. Seems 19% of Stage IV NSCLC jump to scalp.
  8. Before you go down any "surgery" or "Chemo/Radiation" road, think about whether you want to confirm your Oncologists treatment plan with one of the nationally recognized cancer centers (IE, MD Anderson Houston, Mayo in Minnesota, Denver Jewish in Colorado, etc). A hospital Oncologist has to treat every cancer which comes through their door, whereas the national centers have specialists who ONLY deal with lung cancer. I'll vouch for Mayo Clinic, who did my esophageal ultrasound and mapped out where the cancer was so the local hospital could zap it with precision radiation.
  9. Brain MRI is in November. That will be the 2nd one I’ve ever had. I’ve had two total PET scans in the year since discovery. They are 9000 a piece so I understand why I won’t have another until there are symptoms. Stage IV lung with previous met to the brain
  10. Yikes. i have zero side effects at 80MG. i had a pencil eraser brain met, and tagrisso whacked that within six months. i'd be afraid of my heart at such a high dose. who is your 2nd opinion center? i use Mayo Clinic in Rochester MN and they agreed with my local cancer centers plan for 80MG. My Montana oncologist was on the team at Denver Jewish hospital which helped get Tagrisso approved. Be careful with Oncologists who want to toxic dose you. the repercussions can be worse than the hoped for cure.
  11. I wouldnt go past 80mg. just because you increase the dose doesn't mean you accelerate the reduction or removal of tumors. my brain tumor was the size of a pencil head, and within six months was gone on 80MG. my lung is reduced by about 80% and i'll now more on tuesday as i have a scan scheduled. Tagrisso can have some serious side effects. If she tolerates the 80mg does well, as I do, stay with that. i have zero side effects. I wouldn't want the heart issues which could come with a higher dose.
  12. He just started. I sure do hope that when he hits his bottom, you don't stick to this no sugar nothing good diet. i wanted to be able to taste. i was getting only 400 calories a day, and a box of sweet tarts may have helped me stay alive. sometimes my only tolerable food was a McDonalds Filet o Fish. he will need anything he can tolerate. Being naturopathic while battling chemo radiation sounds good, but staying alive is more important. Tread lightly down this road.
  13. Soon as I discussed with Homeopathic Doc, I turned the corner. So I never used her services. Thanks to Jimmy John turkey sandwiches with provolone cheese. Since the Feb 14th post, it is now April 24th, I've put back ten pounds. Once my taste buds returned, it was nice to be able to eat half a package of Chips A'Hoy with zero guilt. Anything to put pounds back on was welcomed. Going to sleep and feeling your skin stretching over your ribs was an uneasy feeling. So to all those who think the residual effects of chemo/radiation last forever, hang in there. Deadened senses when they are reawakening can be brutal to deal with. Just takes time, and eventually you will back. Would I do it again if the targeted drug stops working? No way in hell. That is suffering I wouldn't wish on anyone and I can't do it again. I'm like the people in Naked and Afraid who just get broken down mentally. As someone who had zero illnesses for 57 years, I'm not equipped to deal with health struggles 🙂
  14. I'm on ten months of targeted therapy. Tagrisso. I'm in the treatable camp, for the lung cancer, and the cure camp for my esophagus cancer. Tagrisso will hopefully treat me for about 3 years before the smart cancer figures out a way around the medicine. If that happens, I'll need a new drug. If the drugs don't work, I refuse chemo radiation as that crap nearly killed me curing the esophagus cancer. Mind over body. Who is in control, the cancer or you? Don't let it define you, and live as long as possible with the advances in modern medicine.
  15. Dublin CA? Hah, I spent the past 20 years living in East Dublin near Dougherty Elementary. I moved to Bozeman MT to escape the crazy lockdowns of the pandemic. My chemo/radiation trips to Bozeman Health were only 15 mins and six miles away. I can't imagine driving over the bridge every day to get to Stanford from Dublin. I have to add, your a trooper to go through chemo at 75. The ONLY reason I did chemo/radiation was I would eventually choke to death with no warning that it was about to happen (Stage II Esophagus and Stage IV Lung). Stupid chemo nearly killed me at 58. If I didn't have a forty pound stomach I likely would have been a goner. If the stupid lung cancer requires chemo/radiation the answer from me would be no. I'm one and done with that toxicity. So good on you for going through it at 75. I'm impressed.
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