VMim

Hi Shelkay - we’re you also PDL1 negative? did your cancer symptoms worsen before they improved? My mom was diagnosed on April 22nd 2022 with stage4 non small cell lung cancer. After completing the next gen sequencing study we were fortunate to find the BRAF v600E mutation. At this point we only saw tumor in her left lungs (huge 10.5 cm) and some small specs on the liver and left adrenal glands. On May 22nd we started her on dabrafenib and tramatenib as a first line of treatment. Her cough worsened and just today (June 26 2022) when we did her first pet scan post starting treatment we actually see the tumor has grown and also spread to more places including her right adrenal gland and bone marrow. All her doctors are confused and I am heart broken!!

My mom was diagnosed on April 22nd with stage4 non small cell lung cancer. After completing the next gen sequencing study we were fortunate to find the BRAF v600E mutation. At this point we only saw tumor in her left lungs (huge 10.5 cm) and some small specs on the liver and adrenal glands. On May 22nd we started her on dabrafenib and tramatenib as a first line of treatment. Her cough worsened and just today when we did her first pet scan post starting treatment we actually see the tumor has grown and also spread to more places including her right adrenal gland and bone marrow. All her doctors are confused and I am heart broken!!