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Holdonhope

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Everything posted by Holdonhope

  1. Drew, I think he is responding the therapy. Definitely moving and breathing better than before he started. My dad does not have a targetable mutation and his PDl-1 markers were negative on biopsy. So we take it day by day. I will keep you and your mom in my prayers.
  2. Hi my dad was diagnosed in July with the same presentation. Malignant pleural effusion with Mets to spine. The malignant pleural effusion was difficult to control. He had 4 thoracentesis. He eventually had a pleurodesis and has been doing well since. He doesn’t have targetable mutations so he is on chemo and immunotherapy. Everyone treatment course is different. My advice for caregivers would be try to be on top of things as much as possible and seek second opinions if you can.
  3. I am so sorry for your loss. My prayers go out to you and your wife.
  4. I know how you feel. Waiting is the hardest part. My dad was diagnosed with stage in a week ago and we are still waiting for the genetics markers. The way my dad has been coping is trying to get as healthy as possible before any Treatment starts. We spend our time more Preciously these days.
  5. Thank you everyone for the kind words and encouragement.
  6. My dad was diagnosed last Friday with Stage iv nsclc. He has a 3 cm subcarinal mass with malignant pleural effusion to the right lung. It’s adenocarcinoma. No lesions in the head or liver, at least from the ct scan. We are pending a MRI brain and pet scan. They sent liquid biopsy (ctDNA) on Friday and next gen sequencing from the malignant pleural fluid. We are super scared my dad is 72. I can’t imagine him not here. The results should be back in 1 to 2 weeks. The wait is driving me crazy.
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