JEA

Good Bro, I get it. It’s hard dealing with the “scanxiety” and waiting for the call saying everything looks stable. Sending strength to you and your brother!! Just an FYI, chances are extremely high that his health issues after Hodgkins treatment were caused by the treatment he received. There’s a Facebook group for Hodgkins survivors with another group called Hodgkins International. They have guidelines for Hodgkins survivors as to what type of surveillance follow ups are needed. It’s well documented that radiation and chemo cause all sorts of problems down the road. Word is finally getting out thanks to some dedicated Drs. The info I learned there is what helped my lung cancer be discovered so early.

Hi Lou, I have 2 new nodules in right middle and lower lobes. The consensus from Thoracic/Oncology Board Drs is that they are slow growing adenocarcinomas. The kicker is, due to location neither one are able to be biopsied. I was told that chemo is not an option due to small size but the only option would be stereotactic radiation. Unfortunately because they are so small that is not an option until they grow! Feel like I’m between a rock and a hard place with a ticking time bomb in my chest! So frustrating!! I may end up getting second opinion at Dana Farber after next ct scan.

Hi, I’m Jeanne. New to this forum but not a stranger to cancer for sure. Dx’d with NSCLC stage 1 in 2016 and currently monitoring another 2 probable adenocarcinomas in R lung. Had Vats RUL in 2016 as only treatment. Prior to that though is my extensive history with cancer starting in 1974 (yeah, I’m old) with Hodgkin Lymphoma treated with massive doses of radiation therapy. Courtesy of radiation I developed thyroid cancer in 2008, breast cancer in 2011 and lots of lovely skin cancers starting in 2012 and ongoing. Kudos to all the survivors and those recently diagnosed. We’re a pretty tough bunch whether we want to be or not!