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RosieSD

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RosieSD last won the day on December 2 2022

RosieSD had the most liked content!

Profile Information

  • City
    San Diego
  • US State (if applicable)
    CALIFORNIA
  • Province or district (if non-US)
    San Diego
  • Country
    United States
  • Status
    Lung cancer patient/survivor
  • Interests
    Painting, other arts and crafts, nature walks, traveling, and relaxing with a good book by the beach

Recent Profile Visitors

141 profile views
  1. Hi June, I’m glad you were able to finish your treatment even with the back pain returning. I still have one more treatment of Opdivo on the 3rd week of October with scans scheduled for mid-November. I’m still a bit scared of the treatment knowing how painful it was, and I also had a weird feeling of things closing in and getting a bit dark. I’ll be holding on to hope that I’ll get through this next immunotherapy treatment with the Benadryl and small dose of steroid to treat the side effects. I’m hoping your scans prove your chemotherapy is effective. I’ve read of possible “pseudo-progression” when it comes to immunotherapy where some patients’ scans show tumors to increase in size even 4 months into their treatments, and after 2 more months ( 6 months into treatment) start to see their tumors shrink. I’m praying you’ll receive positive results especially since you’re already on a strong combination of chemotherapy. Hope there’s good news for us in the horizon, and even though we’ve both experienced some pain with Opdivo, that if it works out for both of us then all that pain is worth going through. Wishing you well, Rosie
  2. Hi June, I’m messaging you right now from the cancer center. I started with the pretreatment of Benadryl then on to the Opdivo treatment. Sure enough, the back pain crept up again and they just gave me a dose of steroid. I’m waiting now before they restart the treatment. We’re both are sort of on the same boat, hoping this immunotherapy works. I’m not prescribed chemo meds though, my oncologist does recommend switching to chemo if the Opdivo-yervoy combo don’t work. My next scans are gonna be in November. I’m praying for you and your treatment today, that it all goes well. I hope these meds will help us through. ~ Rosie
  3. Hi, I’m Rosie. I just got diagnosed with stage 3 NSCLC. I’m a mom to a 4 year old girl, and work as a substitute teacher here in San Diego, California. I went through diagnostic tests and scans and was surprised at the results since I was a non-smoker and lived mostly a healthy lifestyle. I have a few small tumors on my lower right lung, and two enlarged lymph nodes on my right collarbone. My oncologist gave me options for treatment, namely chemo, chemo-immuno combo and firstline immunotherapy. I chose to do immunotherapy, a combination of Opdivo & yervoy. I received my second dose of Opdivo yesterday, and had a bad reaction early into the infusion. I started to feel a sharp pain in my lower back. The nurse paused the infusion, adjusted my position and restarted the drip. A minute passed then I felt the pain start again, so I was given a steroid drip to ease the pain. We continued to finish the Opdivo treatment. I was told that I would need an IV of benadryl before my next infusion to take care of any side effects. There are times I get depressed and worried that I wouldn’t be around to care for my daughter or watch her grow. Then there are times I would think about her, and I would feel a sense of resolve that I can endure the treatments, and that there’s hope at the end of all of this. I learned to treasure every moment I have with my girl. Now I’m holding on to hope that I’m on my way to being fully healed.
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