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cbert

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Everything posted by cbert

  1. cbert

    Pneumonitis

    I sincerely thank you all for responding and sharing your experiences. I am seeing a pulmonologist every two weeks, and the oncologist has halted the Imfinzi for the time being. The pulmonary says the oncologist is my go-to doc, but they are communicating with each other. I am now on 40 mg steroid. I agree the pain could be from coughing as there are no broken ribs. My primary prescribed a muscle relaxant, but I do not think that is helping. My cough seems to come from my head, not my chest. I have had runny nose and post-nasal drip from the outset in November. No one seems interested in explaining that. It is the drip that makes me cough. It is not allergies. OTC cough medicine (Delsym) seems to help. I cannot take codeine. The only pain meds I have been offered are morphine and fentanyl. I do not want to go there; I can take the pain if it does not get much worse. I am hoping this is from radiation and not Imfinzi as I am Stage III and this seems like my last and best hope; however, it is almost impossible to know what the cause is as it could be radiation, chemo, or Imfinzi. The docs are betting on radiation as they think it is unlikely that one dose of Imfinzi would bring this on and it fits the timeline for radiation. I am keeping a close watch as this has scared the beejeesus out of me! I am giving my current care givers until December to figure this out. If they don't, I am going to either Mayo or MD Anderson for a consult. That won't be easy as I live in Maryland. I will go sooner if it gets worse.
  2. cbert

    Pneumonitis

    I had read other things on pneumonitis, but, Tom, they were not as scary as the Mayo information! I seem to be the poster child for side effects. I had every one of them during chemo. Now this. Thanks, though, for sending me the link. Forewarned is forearmed.
  3. cbert

    Pneumonitis

    What are the symptoms of pneumonitis. Is there pain involved. If so, where is the pain. How long does it last. Does if remit with steriod If so, how long did it take and what steroid dose was effect
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