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Strongmamaof3

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  • City
    Toms River
  • US State (if applicable)
    NEW JERSEY
  • Country
    USA
  • Status
    Lung cancer patient/survivor

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  1. @JuneKthat seems like all good news! So happy to hear that your treatment seems to be working! May I ask what other chemo you are receiving with Opdivo? It’s interesting how many different combinations there are. Also, just wondering if your tumor had any mutations that you are aware of. Thanks for all your help. I know everyone’s cancer is different but hearing other stories sure gives me hope. I’m sure things will continue to go well for you! Hang in there!
  2. @PNWlady I was wondering if you have had any updates. I have a similar story to yours. I am stage IV NSCLC and I tried the first 3 drugs you did with no success. I just had a follow up appointment today and the doctor is suggesting two immunotherapies Opdivo and Yervoy but I asked about your second line of treatment as well and that is an option. I have two more doctors to get a second and third opinion while we wait to see what insurance approves. Hoping all is well. Sending thoughts and prayers and hope to hear from you!
  3. I am reading through this thread because today my doctor recommended me to be on Opdivo/Yervoy after my first line of treatment didn’t show any success which also included keytruda. I’m nervous as I’m reading about this back pain because I had a severe allergic reaction to taxol at the beginning of my journey and it included bad back pain. Please keep posting about your journey with this. I am interested to see if it works. My doctor told me I had to wait 12 weeks after treatment to get rescanned. Is that what you did as well? I don’t have any common mutations as well and I’m at stage IV NSCLC, 35 years old and non smoker. Jena - Strongmamaof3
  4. i appreciate all of the responses above, words of encouragement, and advice. I just finished with my appointment at MSK to discuss options and driver mutations. She said the team recommends Yervoy and Opdivo, two immunotherapy drugs because they have shown a higher success rate for people who have a higher estimated tumor mutation burden (TMB) and my number is 9.9 out of 10. The issue she said is getting this treatment approved through insurance. Has anyone had any success or failure with this treatment option? The identified driver mutation is CDKN2Ap16INK4A which currently has no approved treatment. Their is a clinical study for that and some other mutations I have but it is only in phase 1 and now it’s not necessary to consider phase 1. As far as radiation she said that we can do it at any time but since I am having no crazy symptoms besides a minimal cough (which could be from treatment) it isn’t necessary to do it right now. I am still going to two more doctors this week, which she is aware of and I have her blessing. It will be interesting to see their approach. If anyone has any thoughts to this it is appreciated!
  5. Hi I’m a 35 year old female, non smoker diagnosed with NSCLC in May. I was pregnant when I was diagnosed and so it was based off an MRI which found a mass in my right lung and swollen lymph nodes. During pregnancy my only treatment option was taxol and carboplatin. I was allergic to the taxol and so we decided to wait until I delivered a few weeks later to do treatment after a ct and pet were done. After the scans they also found a spot on my hip and some nodules in my left lung and that classified me as stage lv. I just finished 4 rounds of cisplatin, pemetrexed, and keytruda done every 3 weeks. My scans after round two showed stability and even decreases. My scans now after round 4 shows increases as well as a few more spots on my hip. My doctor is looking for a clinical trial that might match one of the mutations I have before we have another regimen. I am currently being treated at MSK in NJ but this week while we are on a break from treatment we have decided to get second opinions from jersey shore and UPENN. Just wondering if anyone has had any experience with this regimen of chemo not working or any other types of chemo not working and what they did after it. I have read one story on here that was been truly inspiring. Any help, insight, or advice is greatly appreciated.
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