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Yet again

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Everything posted by Yet again

  1. Hi, Yes me! I'm still figuring out what to do ! Debbie
  2. Hi Karen Than you very much fot the Information.I have found that the braf mutation is druggable Moffitt brings up the side effects I told them every treatment so far has had side effects They won't consider any other medications I will try your suggestions.Unfortunateky I can't afford to financially travel to different facilities anymore..Cancer has really drained me in more ways than one Thank you again it is my h appreciated Debbie
  3. Hello Justin,I am sorry to hear of all that you have been through .I pray things turn around soon for all of us I am wishing you much peace and love Thank you for the welcome
  4. Hello Karen Thank you so much for the information I am being treated at Moffitt Cancer center in Tampa Fl My oncologist is a lung cancer oncologist.I have had mecukar testing done in the past and they showed zero mutations I had to leave Moffitt for a couple of years because they would not prescribe Opdivo After getting consultations at Duke ,Md Anderson and Mayo clinic I ended up at Fl Cancer Specialists who were willing to give me Opdivo I remained with .offitt for Neuro.After 3 years at Fl Cancer Specialists I requested a new thoracic oncologist at Moffitt.Six months later gave me a different thoracic oncologist.I asked for Opdivo and he complied My latest progression in my lung was Oct .2022.Iasked Moffitt to order molecular testing My oncologist said it's not covered by insurance I then called Foundation One and arranged the tests I show a Brafv6000 mutation I then asked my .offitt thoracic oncologist if we could explore other drugs and he said no we will stick with Opdivo Im very stressed out with the progression Thank you again
  5. Hello. I am by some miracle a long term survivor of 2 separate primary cancers.I was diagnosed with NSCLC as well as primary glioneuronal brain cancer .I have had 1 brain surgery for the primary brain cancer and 2 additional brain surgeries for metastatic NSCLC.I have had a lobectomy to my right upper lobe . I have had 45 radiation treatments for lung and 15 to brain .I have been on opdivo every 2 weeks continuously since 2015.I have also received cisplatin and alimta when first diagnosed in 2013. In the last 18 months I have had progression in the right lung and now left lung.This was treated with radiation. I feel the Opdivo is. No longer working.My oncologist has kept me on it every two weeks still Do I have an y other options ? I thank you so much for listening .Any direction provided is greatly appreciated
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