Hello,
My name is Julie. On October 31, 2022, I had a CT scan that showed a mass of 4.0 cm x 2.9 cm blocking my airway. It had collapsed my lung. My oxygen levels were extremely low, so I was admitted to the hospital. I was told that it was highly likely cancer. Had bronchoscopy the next morning. Bronchoscopy was unable to get good biopsy. EBUS procedure scheduled and unfortunately, not able to get good biopsy either. The way it was explained to me was they were getting fluid instead of tissue. Had PET Scan which showed an uptake of 13.7 but fortunately only in the lung area - had not spread anywhere else. I was only in the hospital for about 2 days and sent home with 24/7 oxygen because my oxygen levels were so low. Met with oncologist on November 14 and Pulmonologist prior to that. Both believe that this is cancer, but of course, I need a good biopsy. Tumor board is also involved in my case. VATS procedure scheduled for Jan 5, but was canceled by surgeon the day before surgery. The mass has shrunk 1cm. Now is 4.0 cm x 1.9 cm. He said that if it were cancer it would not shrink without treatment which is wonderful news! However, because this has been such a long process, I am still concerned. I have a follow up CT scan on April 3. I guess I am asking for opinions. Has anyone else been through this? No one is sure what this mass is. I am told by the doctors that they have not seen a mass like this before. I still have a collapsed lung and will probably have surgery for that at some point, but right now they want to monitor the mass.