Ace

Hey GBean, Really sorry to hear about your husband, I of course understand your position. The dosage she is on is 80mg which seems to be the standard. When we asked our oncologist about higher dosage, she said it's not the norm for her to try this and if it's not working at 80mg, they would move on from tagrisso. Not sure I agree with that, definitely think it's worth exploring higher dosage especially for the brain mets.

Hi all, My 29 year old wife was diagnosed with stage 4 NSCLC lung cancer. My wife was pregnant throughout 2022 and had really bad symptoms such as a chronic migraine, bad pelvic pain, and blurred vision which were all put down to pregnancy symptoms. A couple days after giving birth her vision got really bad - we ended up going to an eye hospital who liaised with our local hospital to get scans expedited and then given the diagnosis 3 weeks after the birth. The cancer spread to her brain (with significant growth), bones, eyes, and liver. She had 10 rounds of palliative radiotherapy to the brain and 1 round to the back/spine. As her type is EGFR exon 19 del, she has been taking tagrisso/osimertinib. It is now been 5 months since on tagrisso and there has been improvement all around. She was on morphine at the start but no more painkillers and there is a bit more normality. We have a super active 2 year old in addition to our new born (who is coming up to 6 months) and are of course terrified for the future. Would love to hear from anyone in a similar situation, other people on tagrisso, people who have progressed. I am watching the blu-945 trials and hoping it gets released soon.

Thank you all - I only picked 'a no one' as I couldn't think of anything 😅 I have now changed it. Really happy to hear people are living a really long time. 29 years old is really so young and we're scared she may not get to see the kids grow up. The kids will grow up with their mother having cancer being the norm.

Hi all, My 29 year old wife was diagnosed with stage 4 lung cancer. My wife was pregnant throughout 2022 and had really bad symptoms such as a chronic migraine, bad pelvic pain, and blurred vision which were all put down to pregnancy symptoms. A couple days after giving birth her vision got really bad - we ended up going to an eye hospital who liaised with our local hospital to get scans expedited and then given the diagnosis 3 weeks after the birth. The cancer spread to her brain (with significant growth), bones, eyes, and liver. She had 10 rounds of palliative radiotherapy to the brain and 1 round to the back/spine. As her type is EGFR exon 19 del, she has been taking tagrisso/osimertinib. It is now been 5 months since on tagrisso and there has been improvement all around. She was on morphine at the start but no more painkillers and there is a bit more normality. We have a super active 2 year old in addition to our new born (who is coming up to 6 months) and are of course terrified for the future.