KenHorse
Members-
Posts
44 -
Joined
-
Last visited
-
Days Won
8
KenHorse last won the day on February 26
KenHorse had the most liked content!
Profile Information
-
City
Aurora
-
US State (if applicable)
OREGON
-
Province or district (if non-US)
Butteville
-
Country
United States
-
Status
Lung cancer patient/survivor
-
Interests
Muscle cars, ham radio, music
Recent Profile Visitors
The recent visitors block is disabled and is not being shown to other users.
-
Tom Galli reacted to a post in a topic: Atypical Carcinoid Upper Left Lobe Resection surgery
-
LouT reacted to a post in a topic: Atypical Carcinoid Upper Left Lobe Resection surgery
-
Atypical Carcinoid Upper Left Lobe Resection surgery
KenHorse replied to Dina A's topic in INTRODUCE YOURSELF!
There's not really much I can add to the numerous excellent responses by others but I'll add that I also had a lobe removed last April (right lower), done VATS and the process was much easier to go through than my overly active imagination allowed me to believe. I never needed any pain meds stronger than acetaminophen and ibuprofen and even those, only for a few days after getting home (I was in hospital 1 night). Aside from some complications I experienced that I'm a now past (I'm part of the lucky 3% who do!), I've been doing fine So far, NED. You'll do great, I just know it -
Karen_L reacted to a post in a topic: Quick Note of Good News
-
LouT reacted to a post in a topic: Quick Note of Good News
-
LouT reacted to a post in a topic: Second scan after treatment Monday, Nov. 20
-
KenHorse reacted to a post in a topic: Second scan after treatment Monday, Nov. 20
-
BridgetO reacted to a post in a topic: My 6 month CT scan is next week
-
BridgetO reacted to a post in a topic: My 6 month CT scan is next week
-
Tom Galli reacted to a post in a topic: My 6 month CT scan is next week
-
Chuck K reacted to a post in a topic: My 6 month CT scan is next week
-
RJN reacted to a post in a topic: My 6 month CT scan is next week
-
When this journey started for me, the nodule they found in my RLL was incidental to a scan I had to see if my diagnosed prostate cancer had spread (it hadn't). I guess I was lucky (if one can call it lucky) that my NSCLC was discovered at such an early stage. So, had the prostate removed at the end of January and my RLL at the beginning of April. Then, back into surgery at the end of June to fix a chyle leak. It's been an interesting year. Anyway, the results of my latest scan is the effusion is greatly reduced and NED otherwise!
-
The results of my CT Scan are posted on their website but I am not going to look (learned my lesson about test results without context at the beginning of this adventure). Phone consult with my pulmonologist tomorrow afternoon. I'll know then
-
KenHorse started following My 6 month CT scan is next week
-
After all the fun I've had with the aftermath of my RLL (https://forums.lungevity.org/topic/52143-probable-chylothorax/), I'm actually kinda anxious about the results of my upcoming CT Fingers crossed....
-
Well....I reward myself (for behaving during the week, at least food wise , by splurging once during the weekend. Cheeseburger, Mexican or Hawaiian food, pizza, etc.
-
Here I am, over a month later since my last update and I'm doing great! I'm back on my regular diet (although I have to admit I still watch my fat intake so as to maintain my boyish figure ) Doing all my normal activities again and no breathing issues Next CAT scan is due at the end of October and hopeful things remain good.
-
I had a RLL done on April 3rd of this year. Recovery was much easier for me than my imagination had led to believe it would be. However, 8 weeks later I developed a chylothorax (the details of which may be found at https://forums.lungevity.org/topic/52143-probable-chylothorax/). Bottom line is the actual surgery (and recovery) was surprisingly easy for me. Very little SOB (which resolved after about a month) and no more pain that couldn't be managed by acetaminophen. I am back to my usual routines and life at the moment and feel pretty damn good!
-
Not yet but I'm working towards it! I've increased my fat intake by 40% up to this point. So far, so good (I have 2 more weeks before I can go all out on fat content! Then Carl's Jr......look out!)
-
I think this is probably the last post I need to make on this issue but..... I'm on Week 2 of increasing my fat intake (by 20% per week) and am happy to report no respiratory symptom changes. I am breathing well, not out of breath with moderate activity and the twinges of pain have all but disappeared.
-
I'm not a terribly physical guy, at least not in the sense of walking/running/biking! What I am is a car guy who loves working on my cars. Does that count as needing lung rehab?
-
Just got done mowing the lawn (for the first time since I started this thread back in May) and I feel good! No SOB, no pain and no tiredness! A bit sweaty (my surgeon said I could do physical activity "as I can tolerate it". Well, I can tolerate a LOT! Good to be back in the swing. I'll take it!
-
My surgeon (not pulmonologist) says the reason for the slow reintroduction of fat more to allow my body to absorb the leaked fluid and make sure the ligation area is well scarred. Figured I'd ask my surgeon as he is the "hands on" guy 😆
-
I wanna cheeseburger I tell ya!
-
Update - X-ray looks stable (no increase in fluid). So I can slowly return to a regular diet over the next weeks...(apparently I have to up my fat intake slowly, still waiting for an explanation as to whether that's to allow my body to acclimate to increased fat intake or not to "shock" the repair by a sudden increase in chyle flow_
-
Maybe this thread is finally drawing to a close? Met with both my pulmonologist and thoracic surgeon this morning and just came back from having another chest x-ray. It's been 2 days short of 6 weeks of my post op ultra low fat diet ( < 10 grams a day). If today's xray shows no increase in the fluid in my chest, that means the leak is finally sealed and I can return to a regular diet (although my gut tells me - pun is deliberate 😁 - I should ease back into it to minimize any eruption possibilities, if you know what I mean 🫢 As for the remaining fluid, I am told it is difficult for my body to reabsorb it but since it is asymptomatic (at least so far), it can be ignored or, if I chose, they could do a CT scan assisted thorcentisis. My pulmonologist "warned" me that could be traumatic and when I asked what he meant by that, he said I'd be awake and it would be done with a large needle. I laughed and told him as if this would be the worst thing to happen to me. "Numb me up and have at it" I said.