Hi everyone,
Great to join this group and see everybody’s inspiring stories.
My dad was diagnosed with SCLC on Jan 6th 2023. He had a 15cm tumour in his left Lung, at this stage there was no metastasis. After a long month wait with appointments and scans he had his MRI of his brain on the 1st of Feb 2023 and was starting chemo the same day alongside immunotherapy. A small lesion was on his brain and he was subsequently treated for that by targeted radiation and whole brain radiation. He finished his 12 weeks chemo/immunotherapy in April and the scans showed great results with significant reduction of the lung tumour to 5cm and the brain was significantly reduced. It’s now May 20th and he was due to continue immunotherapy and start radiation on his lung late April, but since he last treatment he has slowly declined and not been eating/drinking fluid since about the start of April. He has all up lost 30kg and has gone from a strong man with a lot of strength to not being able to move in the bed. He started to get really week in the legs and can no longer stand up, along with some bladder problems. As a result they scanned his spine due to the symptoms he was experiencing. The scan showed up with multiple lesions all the way down his spine. Waiting to hear from the oncology team as to our best steps moving forward. Does anyone have any advice? They have upped his dexamethasone intake to 8mg to help with the inflammation and hopefully get him eating as he just doesn’t want to eat and drink.
Any tips to help would be really appreciated, we lost our mum to kidney cancer when we were younger and Dad is our world.
