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Kim_F

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  • City
    Austin
  • US State (if applicable)
    TEXAS
  • Country
    United States
  • Status
    Lung cancer patient/survivor

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  1. Yes, I am working on getting a second opinion appointment at MD Anderson, which is about a 3 hr drive from Austin where I live. MD Anderson wanted to wait until I’m finished with palliative radiation to my hip which I’m getting through my local cancer center, starting soon.
  2. Thank you Tom! I would feel better checking every now and then if I have progression in the brain (to make sure Tagrisso is doing its job at prevention), but it seems this is not the norm unless you have neurological symptoms. I have seen various posts in the forums about folks getting PET scans as part of their regular every 3 month monitoring, so I wasn’t sure if I should be advocating for that or if CTs are sufficient. I am hopeful that I respond well as I start this next chapter.
  3. Hello everyone, I am 51, newly diagnosed with Stage IV NSCLC, Adenocarcinoma with EGFR Exon 21. I have mets to liver, bone and lymph nodes. My diagnostic brain MRI was normal. I will hopefully start Tagrisso this week (the request is currently with insurance for authorization). My question is, how do we know if I develop brain mets in the future? My oncologist said he only does CT scans for surveillance, and a brain MRI would only be ordered if I had neurological symptoms. He doubted insurance would approve it as a purely surveillance measure. Waiting until I have neurological symptoms seems too late to me, and brain mets could be asymptomatic as well. Is this a standard approach? I also wonder how new bone mets would be detected with the CT-only approach. Thank you for any insight!
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