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jls4913

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jls4913 last won the day on May 28 2023

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  • City
    Worcester
  • US State (if applicable)
    MASSACHUSETTS
  • Country
    United States
  • Status
    Lung cancer patient/survivor

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  1. Thank you so much for sharing your experience Tom - it sounds like even after your surgeries you were able to make the most of your life, which is very reassuring. Me, having been diagnosed in my 30s, the fear is that i only have a few years left of “the good life” before my lungs start limiting me. And I want so much more. But it sounds like age is starting to play more of a limiting factor…which oddly gives me a sense of relief, at least for my myself (I do hope you’ll be able to travel again though!). btw I just noticed your book on your profile. I think I’ll spare you the constant blogging and read it instead to address the many follow up questions I had for you😂 thank you again and if there are any 1 lung survivors out there…feel free to post and wish you the best!
  2. Tom, I can’t begin to describe how relieving it is to hear that someone else with 1 lung (leave alone 20 years survival!) is doing well. This itself has just made my day a whole lot better! if you don’t mind, do you mind sharing what your daily life is like? Do you go for walks and hikes without problems? if you don’t mind, can I private message you?
  3. Thank you Lou! Yes, I’m doing my best to avoid searching “Dr Google.” The data on my specific cancer is very old and fortunately we know much more about it now…I’ve been told the goal of my surgery is to achieve prolonged long term control so I will probably live with this cancer for the rest of my life…however, I’m counting my lucky stars that this was caught before it spread to my other lung. And I have a supportive family and network to guide me through the process. looking forward to hearing from others and their experiences!
  4. Hi All, Not technically "lung" cancer, but here goes... I'm in my 30s and was recently diagnosed with a stage IV invasive thymoma. It's a rare tumor of the chest and it is currently invading my right lung. Currently on chemotherapy right now to shrink the size of the tumor before surgery, but the surgeon thinks I definitely need to lose my right upper lobe. On my last CT scans, there were also signs of it invading the other lobes of my right lung...so it is very possible that I will need to have my right lung removed with the pleura. Leaving me with just my left. I've been a jogger pretty much my whole life, jogging every day. I also do weight lifting and try to "keep in shape." Knowing that I'm going to probably lose my ability to keep this up is quite devastating, but I want to live. Any other survivors with 1 lung here? Mind sharing your experiences? How's the recovery and are you able to still keep an active lifestyle? Thanks, J
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