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Miami Janet

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Posts posted by Miami Janet

  1. Hi Shannon,

    My Mom had a feeding for awhile as she could not swallow. Without it she would not have made it as long as she did. I took care of her tube and once you get the correct info it is nort hard. The good thing is you can build up your Dads calories without any effort from him. Also his meds can all be put through the tube. If he doesnt need it at a later date they can remove it. Good luck with it

    Janet

  2. Hi Karen,

    You sound like a very strong woman who has been taking great care of her husband. Im sure you will have the strength to do what you have to do. Dont wait too long to call in hospice as it may take a day or 2 to set up...remember you can always go off hospice if you decide on another treatment. My thoughts and prayers are with you.

    Love, Janet

  3. Hi Millie,

    You and dad are in my prayers...I think its probably difficult for him to go to doctors at this time even though it is necessary. When I went for my check up aftrer Mom passed I cried at the office and yesterday also. The doctor just seems to bring back bad memories of taking Mom to so many appointments. Best of luck in keeping Dad busy and healthy

    Janet

  4. Hi Holly,

    I agree with you, everyday I sit and cry while Im on this site and my husband cant understand why Im on if it makes me so sad. It seems like all of our wonderful friends, Moms SDads, husbands, wives, etc are suffering so. Certainly would be nice to see this disease cured. My daughter (13 yrs old) has a good friend and her Mom just passed last week from lung cancer. She also has a younger brother. I think getting through the funeral this past weekend was even harder then my Moms funeral where I was too busy to cry. Anyway Holly, I think that maybe by helping and supporting the new mmbers here and the people still in the mildst of the battle, we are honoring ou Moms.

    Much Love,

    Janet

  5. Hi Linda,

    It a coincidence, my Mom was also an RN...No symptoms until one day she couldnt swallow. Its nice that you will be taking care of your Mom...I was happy that I was able to do so but yes it is a full time job. As far as questions for the doctors in my case they would not give out info on the prognosis which was very frustrating for me....her cardiologist gave her 4 months max to live and she lived over a year so I guess thats why they dont want to say. Best of luck in your role as a caregiver...well be hear

    Janet

  6. Hi Christopher,

    I am so sorry to hear of your Dads decline. I know most people have a good experience with hospice. If you want to bring him home someone will need to stay with him as hospice only visits and helps out unless there is a crisis and then they are there 24 hours. Once the crisis passes they cut back again. I ordered a book called crossing the creek and it was pretty informative on the dying process but I unfortunately got it a day before my Mom passed away(couldve used it sooner) If you think you could use it I will mail it to yu. Hope your Dad is able to remain peaceful and comfortable. PM me with info if you want the book

    Janet

  7. Great news on the shrinkage...Hope Dad improves in the eating department..Im sure he doesnt want to end up in the hospital with an IV. I think thats the only thing that made my Mom eat...she wanted to stay home....keep us updated..Janet

  8. Hi Tammy,

    For my Mom chemo was not too bad...she lost hair and was tired but thats about it...the hair grew back. The chemo/radiation gave her a lot more time and it was also her decision to fight. She didnt have nausea, vomiting or any of the other things you may worry about. Im sure you will come to the right decision for you...Janet

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