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CR

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Everything posted by CR

  1. CR

    New to Site

    Sharon, Thanks for the note. The rash you have sounds a bit worse than what I am experiencing. The rash has subsided for the most part on everything except my face. I have this windburn/ acne looking thing going on. And my hair looks like a cross between Albert Einstein and Buckwheat ( the last person that cut my hair said it felt like somebody had taken a match to it) . Nothing on the tongue, however inside the nose it is a bit bothersome. If you run across any magic lotions that help let me know, and I will do the same. Glad you are doing so well, This stuff seems to be doing the same for me, so I guess we just grin and bear it. Chris
  2. CR

    New to Site

    It sounds similar to my circumstances. I went through a year of back pAin, and finally fluid filled my right lung , they then drained fluid( no cancer cells) and performed a VAT to see what was going on. My doctor also feels like what we are seeing on the lower lobe of my lung may be due to the surgery. Regardless, all has been good for a while, no scans for the last year just chest x rays. Doctor likes what he sees, he tells me he is not changing a winning horse and to carry on. So thats the plan. Chris
  3. CR

    New to Site

    Jennie, I was on Irressa for 4 months prior to switching to Tarceva. Like your husband my tumors were on the pluera as well. What is a pluerodesis? What if anything has he found to make the rash manageable? My Rash has not let up and appears to be getting worse. I guess I shouldnt complain, all things consisdered. Besides rash, I lead a normal life as you can get after being dx. Thanks, Chris
  4. Interested in talking with people who are taking Tarceva or Zometa. I have been on these drugs for a while now, curious as to side effects people are experiencing, and just how long people have been able to continue to take these drugs. Chris
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